Functional status and muscle strength in people with duchenne muscular dystrophy living in the community

Uchikawa, Ken; Liu, Meigen; Hanayama, Kozo; Tsuji, Takao; Fujiwara, Toshiyuki; Chino, Naoichi

doi:10.1080/16501970410023461

Cited by 55 publications

(54 citation statements)

References 17 publications

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“…The use of computer visualised incentives led to an improvement in function of spirometry testing in those shown to have a moderate intellectual or behavioural disturbance (Gauld et al 2005). Additionally, Uchikawa et al (2004) found in a group of 7 -14 year old boys with DMD living in the community, that motor scores were higher in those with good cognitive functioning compared to those with impaired cognitive functioning, even though muscle strength was not significantly different. The authors note that poor cognitive functioning has an adverse effect on activities of daily living in DMD and that this impacts training and performance of these activities.…”

Section: Functional Evidence Of Cns Aberrations In Dystrophinopathymentioning

confidence: 90%

Duchenne Muscular Dystrophy and Brain Function

Anderson¹,

Head²,

Morley³

2012

Muscular Dystrophy

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Section: Functional Evidence Of Cns Aberrations In Dystrophinopathymentioning

confidence: 90%

Duchenne Muscular Dystrophy and Brain Function

Anderson¹,

Head²,

Morley³

2012

Muscular Dystrophy

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“…In our previous study, 3 eating was the easiest item, followed by bowel management and locomotion. In the current study, locomotion was the easiest item, followed by bowel management and eating.…”

Section: Discussionmentioning

confidence: 99%

“…We also calculated the percentage of patients who were independent (scored at 6 or 7) for each FIM item (% independence), which was used as an indicator of item difficulty in a previous study. 3 Furthermore, we compared item difficulty, indicated as % independence, between patients aged ≥15 years and those <15 years.…”

Section: Methodsmentioning

confidence: 99%

“…Therefore, one of the important goals of patient management is the maintenance of ADL as long as possible. However, only a few reports investigating ADL in patients with DMD have used valid and reliable instruments, 2,3 and no study includes patients aged 15 and older, despite the fact that many patients now survive into adulthood. The aim of this study was to use the Functional Independence Measure (FIM SM ), 4, 5 a validated functional instrument, to assess disabilities in patients with DMD over a wide age range and to analyze the percent of independence associated with each FIM SM item.…”

Section: Introductionmentioning

confidence: 99%

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Activities of Daily Living (ADL) Structure of Patients with Duchenne Muscular Dystrophy, Including Adults

et al. 2009

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), and determined the difficulty order of the FIM SM items with the percentage of patients who were independent (6 or 7) for each FIM item (% independence). Results: The ADL of patients with DMD had an order in terms of difficulty. For the motor subscale, the most difficult item was stairs, and the easiest item was locomotion. On the cognitive subscale, problem solving was the most difficult item. When we compared item difficulty between patients <15 years of age and those ≥ 15 years, the % independence was lower in the older age group for all motor items. The decrease in the % independence of the eating item with age was significant; however bladder management was well maintained. Conclusions: ADL of patients with DMD has a specific difficulty order. The order of difficulty is based on the relative level of independence/dependence. The difficulty order was maintained, although the structure of ADL changed with age. (Keio J Med 58 (4) : 223 -226, December 2009)

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“…It has been shown that there is a negative correlation between manual muscle test results and FIM results in studies performed [194]. The manual muscle test score of 3 is a critical threshold value.…”

Section: Training For the Activities Of Daily Living And Adaptive Appmentioning

confidence: 99%

Neuromuscular Diseases and Rehabilitation

Demir¹

2017

Neurological Physical Therapy

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Neuromuscular diseases (NMDs) are a heterogeneous group of diseases that are inherited or acquired, resulting from an abnormality in the anterior horn motor cells, peripheral nerves, neuromuscular junctions, or muscles.In NMDs, evaluation is performed to monitor the progression of the disease, to determine the appropriate treatment methods, to investigate the efficacy of treatment methods, and to predict and prevent possible complications. Evaluation methods should include evaluation of respiratory functions, muscle testing, normal joint movement, evaluation of flexibility, evaluation of motor functions and functional capacities, functional posture, and gait analysis.The aim of physiotherapy approaches is to improve the quality of life of patients and their families. The rehabilitation program should include the protection of the functional level of the patient and the physical and psychological functions, increasing the physical and mental capacity of the patient, and slowing the progress of the disease symptoms. The rehabilitation program should include the preservation of muscle strength, an exercise program for the prevention of contractures, increasing respiratory function and aerobic capacity, gait and balance training, fall prevention, walking aid training, psychosocial approach, vocational counseling, ergotherapy processes and nutrition expert support.

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Functional status and muscle strength in people with duchenne muscular dystrophy living in the community

Abstract: Activities of daily living in patients with Duchenne muscular dystrophy are related to age and muscle strength, and manual muscle testing grade 3 is an important cut-off point to predict their disability.

Cited by 55 publications

References 17 publications

Duchenne Muscular Dystrophy and Brain Function

Duchenne Muscular Dystrophy and Brain Function

Activities of Daily Living (ADL) Structure of Patients with Duchenne Muscular Dystrophy, Including Adults

Neuromuscular Diseases and Rehabilitation

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