Functional status instruments: Outcome measure in the evaluation of patients with chronic obstructive pulmonary disease

Lareau, Suzanne C.; Breslin, Eileen Hanafin; Meek, Paula

doi:10.1016/s0147-9563(96)80032-x

Cited by 60 publications

(33 citation statements)

References 46 publications

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“…O teste adequado para demonstrar a reprodutibilidade de um instrumento é o coeficiente de CCI, com valor maior ou igual a 0,7 24 ; para os QFC, o valor aceito é acima de 0,6 16 . Observamos nesta validação que, com exceção de dois domínios o digestivo (para grupos etários de 6 a 13 anos) e o papel social (para o grupo dos acima de 14 anos), todos os outros tiveram valores de CCI superiores a 0,6.…”

Section: Discussionunclassified

Linguistic validation of cystic fibrosis quality of life questionnaires

et al. 2006

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Objective: The purpose of this study was to validate the Portuguese translations of four cystic fibrosis quality of life questionnaires (CFQ). The first three were developed for patients with cystic fibrosis aged from 6 to 11 years, from 12 to 13 years and 14 years or more, while the fourth was developed for the parents of patients aged 6 to 13 years. Material and methods:The four CFQ translations contained from 35 to 50 questions covering nine domains and were validated as follows: translation from English to Portuguese, pilot application, back translation and then approval by the author of the English versions. The four translations were applied to 90 stable patients (30 from each age group) and the parents of patients aged 6-13 years (n = 60), on two occasions with a 13 to 17 day interval. Intraclass Correlation Coefficients (ICC) were used to measure reproducibility. This study was approved by the Commission for Ethics in Research at the institution.Results: Reproducibility was good (ICC = 0.62 to 0.99) for the four translations in all domains, with the exceptions of the Digestion domain for the 6 to 11 and 12 to 13 years age groups with ICC = 0.59 and 0.47, respectively and the Social Role domain for the 14 and over age group (ICC = -0.19 ). Conclusion:The translation and cultural adaptation for Brazil resulted in four CFQ versions that are easy to understand and offer good reproducibility.J Pediatr (Rio J). 2006;82(2):151-6: Questionnaires, quality of life, cystic fibrosis, validation. ResumoObjetivo: O propósito deste estudo foi validar em português as quatro versões de questionários de qualidade de vida em fibrose cística, desenvolvidos para pacientes com fibrose cística de 6 a 11 anos, de 12 a 13 e mais de 14 anos, e para os pais de pacientes de 6 a 13 anos.Material e métodos: A validação das quatro versões de questionários de qualidade de vida em fibrose cística (de 35 e 50 questões, abrangendo nove domínios) constou de: versão inglês-português, aplicação-piloto, tradução retrógrada e aprovação da autora da versão inglesa. As quatro versões foram aplicadas a 90 pacientes estáveis (30 de cada grupo etário) e aos pais de doentes de 6-13 anos (n = 60), em duas entrevistas, com intervalo de 13-17 dias. Foi avaliada a reprodutibilidade pelo coeficiente de correlação intraclasse (CCI). O estudo foi aprovado pela comissão de ética em pesquisa da instituição.Resultados: A reprodutibilidade foi boa (CCI = 0,62 a 0,99) para as quatro versões, em todos os domínios, exceto o digestivo (CCI = 0,59 e CCI = 0,47) para os grupos etários de 6 a 11 e 12 a 13 anos, respectivamente, e domínio papel social (CCI = -0,19 ) para o grupo acima de 14 anos. Conclusão:A tradução e a adaptação à língua e à cultura brasileiras das quatro versões de questionários de qualidade de vida em fibrose cística mostraram-se de fácil entendimento e boa reprodutibilidade. IntroduçãoA mucoviscidose ou fibrose cística (FC), ou doença fibrocística do pâncreas é a mais comum das doenças genéticas letais entre os caucasianos e é a mais fre...

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Section: Discussionunclassified

Linguistic validation of cystic fibrosis quality of life questionnaires

et al. 2006

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“…During the study of reproducibility intra-and inter-observed, the intra-class correlation (Cronbach) was calculated and an excellent concordance was observed when the application was made by the same person or by different experimenters. The minimum acceptable value to demonstrate reproducibility of a new instrument is an intra-class correlation coefficient equal or higher than 0.70 for a new questionnaire and higher than 0.80 for an old questionnaire (29) . In the present study the coefficients found were equal or higher than 0.90.…”

Section: Doubtsmentioning

confidence: 99%

Validation of the Airways Questionnaire 20 - AQ20 in patients with chronic obstructive pulmonary disease (COPD) in Brazil

et al. 2003

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“…Defining and identifying outcomes based on patients' perceptions of symptoms and health status can be confusing. For example, the assessment of activities of daily living may considered in the context of a health status outcome (15), a quality-of-life outcome (16), a functional performance outcome (17) or a functional status outcome (18). Additionally, activities of daily living and activity levels during daily life are separate constructs.…”

Section: Defining Outcomesmentioning

confidence: 99%

“…Additionally, the Quality of Well Being Survey can be used as a health utility tool for the determination of cost effectiveness (48). While information regarding activities of daily living can be gleaned from these instruments, their usefulness for this purpose is limited (18). This is primarily due to the narrow scope of questions that query activities of daily living.…”

Section: Measurement Instrumentsmentioning

confidence: 99%

The Relationship Between Exercise Tolerance and Other Outcomes in COPD

Berry

2007

COPD: Journal of Chronic Obstructive Pulmonary Disease

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Exercise training has been shown to be a clinically effective therapeutic intervention for COPD patients resulting in a myriad of beneficial effects. These include improvements in exercise tolerance, health-related quality of life and activity levels. Activity levels can be assessed using health-related quality of life instruments or instruments designed especially for this purpose. Previous studies show that the relationships between activities of daily living, assessed using generic health-related quality of life instruments, and exercise vary considerably with correlations ranging from 0.18-0.72. The relationships between activities of daily living, assessed using disease specific health-related quality of life instruments, and exercise also vary considerably with correlations ranging from 0.14-0.59. The relationships between activities of daily living, assessed using activities of daily living instruments, and exercise are less variable and generally stronger with correlations ranging from 0.34-0.83. Relationships between generic health-related quality of life instruments and exercise vary considerably (0.19-0.65) as do relationships between disease specific health-related quality of life instruments and exercise (0.18-0.61). The correlations between changes in activities of daily living and changes in exercise following pulmonary rehabilitation are generally weak (0.13-0.28). The correlations between changes in health-related quality of life and changes in exercise following pulmonary rehabilitation are also generally weak. The fact that these outcomes are not tightly associated is due, in part, to the variability in responses to the instruments used and the fact that the various instruments were often designed to assess different constructs.

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Functional status instruments: Outcome measure in the evaluation of patients with chronic obstructive pulmonary disease

Cited by 60 publications

References 46 publications

Linguistic validation of cystic fibrosis quality of life questionnaires

Linguistic validation of cystic fibrosis quality of life questionnaires

Validation of the Airways Questionnaire 20 - AQ20 in patients with chronic obstructive pulmonary disease (COPD) in Brazil

The Relationship Between Exercise Tolerance and Other Outcomes in COPD

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