Give me a break!

Exel, Job van; Graaf, Gjalt de; Brouwer, Werner

doi:10.1016/j.healthpol.2008.03.001

Cited by 72 publications

(25 citation statements)

References 31 publications

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“…The study populations consisted mainly of elderly persons [9,11,14,28,29,34-38,43,51,54,56,57,59,60,62-64,72-76], but home care professionals too were often the subject of study [12,17,18,21,30,32,45,46,49,53-55,58,65-68,71]. Only a few studies focused on specific types of clients (e.g.…”

Section: Resultsmentioning

confidence: 99%

“…A large number of studies focused on the supply side of the home care system [8-13,15,17-20,22-25,27,30,31,33,41,45,47-50,53,55,59,61,65-68,70-72,76,77], or sought to explain the differences between receivers and non-receivers of home care [29,32,34,38-40,42,44,46,51,57,58,64,73,75,79-81]. Several studies focused on the relationship between formal home care provision and informal care [28,29,32,34,38,39,42,44,46,51,54,57,58,64,69,73,75,79-81].…”

Section: Resultsmentioning

confidence: 99%

“…Several studies focused on the relationship between formal home care provision and informal care [28,29,32,34,38,39,42,44,46,51,54,57,58,64,69,73,75,79-81]. Quality and improvement of quality were the subject of seven studies [10,28,49,54,68-70].…”

Section: Resultsmentioning

confidence: 99%

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Home care in Europe: a systematic literature review

Genet

Boerma

Kringos

et al. 2011

BMC Health Serv Res

380

384

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BackgroundHealth and social services provided at home are becoming increasingly important. Hence, there is a need for information on home care in Europe. The objective of this literature review was to respond to this need by systematically describing what has been reported on home care in Europe in the scientific literature over the past decade.MethodsA systematic literature search was performed for papers on home care published in English, using the following data bases: Cinahl, the Cochrane Library, Embase, Medline, PsycINFO, Sociological Abstracts, Social Services Abstracts, and Social Care Online. Studies were only included if they complied with the definition of home care, were published between January 1998 and October 2009, and dealt with at least one of the 31 specified countries. Clinical interventions, instrument developments, local projects and reviews were excluded. The data extracted included: the characteristics of the study and aspects of home care 'policy & regulation', 'financing', 'organisation & service delivery', and 'clients & informal carers'.ResultsSeventy-four out of 5,133 potentially relevant studies met the inclusion criteria, providing information on 18 countries. Many focused on the characteristics of home care recipients and on the organisation of home care. Geographical inequalities, market forces, quality and integration of services were also among the issues frequently discussed.ConclusionsHome care systems appeared to differ both between and within countries. The papers included, however, provided only a limited picture of home care. Many studies only focused on one aspect of the home care system and international comparative studies were rare. Furthermore, little information emerged on home care financing and on home care in general in Eastern Europe. This review clearly shows the need for more scientific publications on home care, especially studies comparing countries. A comprehensive and more complete insight into the state of home care in Europe requires the gathering of information using a uniform framework and methodology.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Home care in Europe: a systematic literature review

Genet

Boerma

Kringos

et al. 2011

BMC Health Serv Res

380

384

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“…Most often this is home care or counseling. Utilizing a nursing service not only relieves the family caregiver but might also alleviate the feelings of guilt perceived by the care recipient [29]. Utilization of professional services may also increase to create a stable care atmosphere and avoid moving to institutionalized care – thus reducing stress upon the care recipient.…”

Section: Discussionmentioning

confidence: 99%

Which need characteristics influence healthcare service utilization in home care arrangements in Germany?

Dorin

Turner

Beckmann

et al. 2014

BMC Health Serv Res

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BackgroundWe see a growing number of older adults receiving long-term care in industrialized countries. The Healthcare Utilization Model by Andersen suggests that individual need characteristics influence utilization. The purpose of this study is to analyze correlations between need characteristics and service utilization in home care arrangements.Methods1,152 respondents answered the questionnaire regarding their integration of services in their current and future care arrangements. Care recipients with high long-term care needs answered the questionnaire on their own, the family caregiver assisted the care recipient in answering the questions, or the family caregiver responded to the questionnaire on behalf of the care recipient. They were asked to rank specific needs according to their situation. We used descriptive statistics and regression analysis.ResultsRespondents are widely informed about services. Nursing services and counseling are the most used services. Short-term care and guidance and training have a high potential for future use. Day care, self-help groups, and mobile services were the most frequently rejected services in our survey. Women use more services than men and with rising age utilization increases. Long waiting times and bad health of the primary caregiver increases the chance of integrating services into the home care arrangements.ConclusionThe primary family caregiver has a high impact on service utilization. This indicates that the whole family should be approached when offering services. Professionals should react upon the specific needs of care dependents and their families.

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“…This instrument was developed in 2006, in a similar way as the EuroQol instrument [38], and it has been applied in several studies since [26,39-45]. …”

Section: Introductionmentioning

confidence: 99%

Measuring the impact of caregiving on informal carers: a construct validation study of the CarerQol instrument

Hoefman

Exel

Brouwer

2013

Health Qual Life Outcomes

Self Cite

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BackgroundInformal caregivers provide a significant part of the total care needed by ill or disabled persons. Although informal care is often the preferred option of those who provide and those who receive informal care, caring can nevertheless be very straining. This study investigates construct validation of an instrument of the impact of caregiving, the CarerQol.MethodsData was collected among adult caregivers (n = 1,244) selected from the general population using an online questionnaire in October 2010, in the Netherlands. The CarerQol measures and values the impact of informal care. The CarerQol measures subjective burden (CarerQol-7D) and well-being (CarerQol-VAS). Construct validation comprised clinical, convergent and discriminative validity tests.ResultsClinical validity was supported by statistically significant associations of CarerQol-VAS and caregivers’ health, income and employment status, care recipients’ health, and the relationship between caregiver and care recipient. Convergent validity was supported by positive associations of CarerQol-VAS with the two positive CarerQol-7D dimensions (fulfillment and support) and negative associations with the five negative CarerQol-7D dimensions (relational problems, mental health problems, problems combining daily activities, financial problems and physical health problems). Moreover, CarerQol-VAS was negatively associated with other instruments measuring caregiving burden.ConclusionsConstruct validity tests in a large, heterogeneous sample of caregivers show that the CarerQol validly measures the impact of caregiving. The CarerQol can be used in informal care research and economic evaluations of health care interventions. Hence, its use can facilitate informed decision making in health care.

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Give me a break!

Cited by 72 publications

References 31 publications

Home care in Europe: a systematic literature review

Home care in Europe: a systematic literature review

Which need characteristics influence healthcare service utilization in home care arrangements in Germany?

Measuring the impact of caregiving on informal carers: a construct validation study of the CarerQol instrument

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