Grief after Perinatal Loss

Kersting, Anette; Nagl, Michaela

doi:10.1002/9781118981559.ch31

Cited by 44 publications

(76 citation statements)

References 103 publications

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“…Other index pregnancy-related factors in the PE group showed that a higher birth weight was associated with higher marital quality; a longer time since index pregnancy was associated with less optimism; and if the index pregnancy was a first pregnancy, this was associated with more optimism at follow-up. Psychological factors are known to be elevated after perinatal loss [33,34], though a nested-case control cohort did not observe more depression on average seven years after stillbirth [35]. In total seven persons experienced perinatal loss in the comparison group, which limits any group comparison in the current study.…”

Section: Discussionmentioning

confidence: 96%

Long-term follow-up of psychosocial distress after early onset preeclampsia: the Preeclampsia Risk EValuation in FEMales cohort study

Mommersteeg

Drost

Ottervanger

et al. 2016

Journal of Psychosomatic Obstetrics & Gynecology

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Objective: To examine long-term psychosocial distress in women with a history of early onset preeclampsia (PE) compared to a comparison group. Methods: Women with and without a history of early onset PE participating in the 'Preeclampsia Risk EValuation in FEMales' (PREVFEM) study were sent questionnaires, on average 14.1 years (SD ¼ 3.2, range 5-23 years) after the index pregnancy. In total 265 (77%) women with PE and 268 (78%) age-matched women without PE returned questionnaires (mean age 43.5, SD ¼4.6 years). Group differences were examined on indicators of psychosocial distress, depressive symptoms, anxiety, fatigue, loneliness, marital quality, trait optimism and Type D personality, and unadjusted and adjusted for a priori chosen and study-specific covariates. In secondary analyses, the effect of previously detected hypertension was examined, as well as pregnancy-related events within the PE group. Results: Women with a history of PE reported more subsequent depressive symptoms (B ¼ 0.70, 95% CI 0.09-1.32, p ¼ 0.026) and more fatigue (B ¼ 1.12, 95% CI 0.07-2.18, p ¼ 0.037) compared to the non-PE group, but the differences explained less than 1% of the variance. The differences remained after adjustment for age, BMI and education level, and additional adjustment for partner, being unemployed and physical activity. No significant differences were observed for anxiety, loneliness, marital quality, optimism, or Type D personality. These differences were not explained by fouryear previously measured elevated blood pressure in the PE group. Having had a stillborn child or early neonatal death during the index pregnancy was associated with higher depressive symptoms, anxiety, fatigue, and loneliness in the PE group, but these factors explained only a small proportion of the variance in these psychosocial distress factors. Conclusion: A history of early PE is associated with slightly higher levels of depressive symptoms and fatigue on average 14 years later, but this is unlikely to be of clinical relevance. ARTICLE HISTORY

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Section: Discussionmentioning

confidence: 96%

Long-term follow-up of psychosocial distress after early onset preeclampsia: the Preeclampsia Risk EValuation in FEMales cohort study

Mommersteeg

Drost

Ottervanger

et al. 2016

Journal of Psychosomatic Obstetrics & Gynecology

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“…In a longitudinal study by Korenromp et al (2009) that started at four months following the termination procedure, it was determined that poor psychological response at that initial timepoint was the most important predictor of the long-term outcome. Additional risk factors contributing to the likelihood and duration of these consequences include quality of partner support, doubt of the diagnosis/severity of the condition, religious ties, maternal age and level of education (Korenromp et al, 1992;Kersting et al, 2012). Furthermore, though these consequences have been largely reported in mothers, psychological distress has also been reported among fathers Robson, 2002).…”

Section: Introductionmentioning

confidence: 98%

“…Previous studies have explored these consequences and have found that grief, posttraumatic stress and depression are common responses (Elder et al, 1991;Kersting et al, 2009;Kersting et al, 2012). Almost all studies have found evidence of these responses, particularly grief, in the first few weeks and months following the procedure.…”

Section: Introductionmentioning

confidence: 99%

Support Desired by Women Following Termination of Pregnancy for a Fetal Anomaly

Ramdaney

Hashmi²,

Monga

et al. 2015

Journal of Genetic Counseling

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With the rapidly evolving field of prenatal testing, there is a growing need to provide support for women pursuing termination of pregnancy following the discovery of a fetal anomaly. Previous studies have documented that women in this situation often feel unsupported, but the type of resources desired by this population remains undetermined. We studied the awareness and utilization of support resources in 51 women at the time of the procedure, at 6 weeks, and at 3 months following the event. Though largely knowledgeable of existing resources at the time of the procedure, only 50 % admitted contemplating their individualized need for support. Most expected to rely on the support of family and friends. Additionally, 50 % expressed the desire to commemorate the pregnancy, though none wanted direct contact with their healthcare provider(s). Responses from the 6 weeks and 3 months assessments were consistent with previous literature as many women indicated not coping as expected and were unprepared for the psychological consequences following the procedure. Our findings indicate that women in these situations may not realize what their long‐term support needs will be. They further indicate that guidelines for routine follow‐up care should be established among healthcare providers that respect this population's initial desires to avoid reminders of the pregnancy and promote a flexible timeframe for support uptake. Additional support resources that promote flexible uptake as well as meet the desires of anonymity and ease of access need to be developed for this population.

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“…Similarly, context and culture are underlying forces that influenced all the cases and are particularly important to bear in mind when working with families whose background differ from those of the music therapist (Forrest, 2011(Forrest, , 2014Mondanaro, 2016). In addition to cultural differences, mothers and fathers can experience distinct challenges when having a baby in the NICU (Mondanaro, Ettenberger, & Park, 2016), which may result in different ways of coping when facing the death of their baby (Capitulo, 2005;Kersting & Wagner, 2012). Thus, developing a selective understanding of grief and loss in parents is crucial for end-of-life care in the NICU but also vital with respect to other causes than death (Dyer, 2005a, b).…”

Section: Conclusion Onclusionsmentioning

confidence: 99%

Music Therapy During End-of-life Care in the Neonatal Intensive Care Unit (NICU) – Reflections from Early Clinical Practice in Colombia

Ettenberger

2017

Voices

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Abstr Abstract actMusic therapy during end-of-life care has become an increasingly applied therapeutic option for a broad range of populations in a variety of settings. While music therapy in the Neonatal Intensive Care Unit (NICU) is a well-established field of clinical research and practice, there is a lack of literature that specifically addresses issues related to end-of-life care in this setting. In this article, the author aims to reflect upon some of the potentials, difficulties, and challenges when accompanying babies and their families during their last stages of life in the NICU. Three case vignettes will be described in order to exemplify aspects related to rituality, culture, memory making, and family-centred care. It is hoped that these case studies prompt the exchange of ideas and experiences among music therapists and other health care professionals concerned with end-of-life care in the NICU. K Ke eywor ywords: ds: end-of-life care, music therapy, NICU, preterm infants, palliative care, family-centred care, Colombia Intr Introduction oductionAnother plausible model for an origin of early human music is the lament, a widespread performance by individuals or groups in which the natural behaviour of weeping and moaning in grief at the loss by death or separation from a loved one became formalized and elaborated in song/poetry/movement, and shared with others to relieve feelings of helplessness, individual isolation, despair, and the anxiety attendant on the interruption death makes to the life of an individual or group. (Dissanayke, 2009, p. 26)

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Grief after Perinatal Loss

Cited by 44 publications

References 103 publications

Long-term follow-up of psychosocial distress after early onset preeclampsia: the Preeclampsia Risk EValuation in FEMales cohort study

Long-term follow-up of psychosocial distress after early onset preeclampsia: the Preeclampsia Risk EValuation in FEMales cohort study

Support Desired by Women Following Termination of Pregnancy for a Fetal Anomaly

Music Therapy During End-of-life Care in the Neonatal Intensive Care Unit (NICU) – Reflections from Early Clinical Practice in Colombia

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