Having a child with asthma – quality of life for Swedish parents

Dalheim-Englund, Ann-Charlotte; Rydström, Ingela; Rasmussén, Birgit H.; Möller, Christian; Sandman, Per‐Olof

doi:10.1046/j.1365-2702.2003.00825.x

Cited by 27 publications

(30 citation statements)

References 27 publications

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“…All the articles were published in English and 18 of the studies were descriptive design ( Table 1). [20] To test the relation between caregiver's quality of life and other variables.…”

Section: Resultsmentioning

confidence: 99%

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Caregiver Burden in Pediatric Asthma: A Systematic Review

Ekim¹,

Ocakçi²

2017

Health Sci J

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“…All the articles were published in English and 18 of the studies were descriptive design ( Table 1). [20] To test the relation between caregiver's quality of life and other variables.…”

Section: Resultsmentioning

confidence: 99%

“…Quality of life of the caregiver does not differ significantly in terms of age or gender of the child [14]. Moreover, being a single parent affect the quality of life negatively in terms of psychological and social domains [15,20].…”

Section: Quality Of Lifementioning

confidence: 99%

Caregiver Burden in Pediatric Asthma: A Systematic Review

Ekim¹,

Ocakçi²

2017

Health Sci J

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“…Asthmatic children living in urban areas had higher QoL score than those living in rural areas as illustrated in table (5). Table (6) and figure (2) show that there was a significant decrease in overall PAQLQ score in obese patients than the normal weight children (p <0.001). …”

Section: Resultsmentioning

confidence: 94%

“…Asthma puts a serious burden on children's HRQL, despite the availability of effective and safe treatment. (2,3) www.jmscr.igmpublication. In Egypt, the prevalence of asthma among school children in the Nile Delta region is about 7.7 %.…”

Section: Introductionmentioning

confidence: 99%

Evaluation of Health-Related Quality of Life among Children Attending Asthma Clinic in Alexandria University Children's Hospital

Eissa¹

2017

jmscr

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“…AlAkour, et al, (35), y Dalheim-Englund, et al, (36) reportaron niveles más bajos de calidad de vida en padres de niños con asma grave, con respecto a padres de niños con asma leve. De igual forma, Stelmach, et al, reportaron una asociación significativa entre la calidad de vida de los padres de niños asmáticos medida con el Pediatric Asthma Caregiver's Quality of Life Questionnaire (PACQLQ), con el grado de control de asma de sus hijos, encontrando un cambio significativo en la puntuación de dicho cuestionario en los padres de los niños que lograron un adecuado control de su asma (37).…”

Section: Discussionunclassified

Validación inicial de una escala para medir el nivel de sobrecarga de padres/cuidadores de niños asmáticos

2013

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Introducción. A pesar de la alta probabilidad de que los padres o cuidadores de niños asmáticos presenten sobrecarga, no se han validado instrumentos para medirla en el contexto del asma pediátrica. Objetivo. Iniciar la validación de una escala para medir la sobrecarga de los padres o cuidadores de niños asmáticos y determinar los factores asociados con esta sobrecarga. Materiales y métodos. Mediante un estudio analítico de corte transversal se midió el nivel de sobrecarga de los padres o cuidadores de niños asmáticos de 1 a 16 años, utilizando una versión abreviada de la escala de Zarit. Se hizo un análisis factorial exploratorio de los componentes principales de esta escala, y se evaluó su validez de constructo y su validez interna. Se ajustaron modelos de regresión logística para identificar los factores asociados con una sobrecarga intensa en los padres o cuidadores de los niños asmáticos. Resultados. La mediana (rango intercuartílico) de la edad de los 162 niños analizados fue de 6 años (rango, 4 a 9). Del total de padres o cuidadores, 37 (22,8 %) estaban experimentando sobrecarga intensa. El análisis factorial mostró una estructura probable de dos factores que, en conjunto, explican el 61,5 % de la varianza total de los resultados. La única variable que se asoció de forma independiente con una sobrecarga intensa en el análisis multivariado, fue el asma no controlada (OR=5,38; IC 95 % : 1,43-20,16; p=0,012). Conclusiones. La escala de Zarit utilizada tiene una aceptable validez interna y una adecuada validez de constructo para determinar el nivel de sobrecarga que experimentan los padres o cuidadores de niños asmáticos. El grado de control del asma del niño fue la única variable que se asoció de forma independiente con este nivel de sobrecarga.Palabras clave: asma, estudios de validación, carga de trabajo, padres, niños, cuidadores, pediatría. doi: http://dx.doi.org/10.7705/biomedica.v33i3.813Initial validation of a scale to measure the burden for parents/caregivers of children with asthma and factors associated with this burden in a population of asthmatic children Introduction. Despite the high probability of a heavy burden for parents and/or caregivers of children with asthma, instruments intended to measure it have not been validated in the context of asthma. Moreover, factors associated with this burden are unknown. Objective. To begin the validation of a scale to measure the burden for parents/caregivers of asthmatic children, and to determine the factors associated with this burden. Materials and methods. We performed an analytical cross-sectional and validation of scale study. At the outpatient section of the Clinic of Pediatric Pulmonology in the Hospital Universitario Clinica San Rafael, we measured the burden of parents and/or caregivers of children with asthma using a shortened version of the Zarit scale throughout 2011. We performed a principal components factor analysis and adjusted logistic regression models to identify independent factors associated with a heavy burden. Results. The median (...

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Having a child with asthma – quality of life for Swedish parents

Abstract: The fact that they just evaluated their QoL during the preceding week only, and did so at the time when their children were being treated with asthma medication, might have influenced the results in a positive direction.

Cited by 27 publications

References 27 publications

Caregiver Burden in Pediatric Asthma: A Systematic Review

Caregiver Burden in Pediatric Asthma: A Systematic Review

Evaluation of Health-Related Quality of Life among Children Attending Asthma Clinic in Alexandria University Children's Hospital

Validación inicial de una escala para medir el nivel de sobrecarga de padres/cuidadores de niños asmáticos

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