Health Care Professionals' Experiences With Preloss Care in Pediatrics: Goals, Strategies, Obstacles, and Facilitators

Kochen, Eline M.; Boelen, Paul A.; Teunissen, Charlotte E.; Jenken, Floor; Jonge, Roos R. de; Grootenhuis, Martha A.; Kars, Marijke C; Bender, Manon J.N.L.; Berkestijn, F.M.C. van; Falkenburg, Jeannette L.; Frohn-Mulder, Ingrid M.E.; Knoester, Hennie; Molderink, Alice

doi:10.1016/j.jpainsymman.2020.11.001

Cited by 3 publications

(6 citation statements)

References 33 publications

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“…From previous research, we learned that healthcare professionals feared parents were unaware of the severe prognosis as they showed limited emotions. Healthcare professionals felt the urge to repeat themselves, or search for an emotional response in parents to be sure parents understood the message 15,16 . Yet parents in this study appear to be well aware of their child's impending death and their own active tendency to downregulate their grief during conversations with healthcare professionals.…”

Section: Discussionmentioning

confidence: 67%

“…Healthcare professionals felt the urge to repeat themselves, or search for an emotional response in parents to be sure parents understood the message. 15,16 Yet parents in this study appear to be well aware of their child's impending death and their own active tendency to downregulate their grief during conversations with healthcare professionals. The latter is done because parents want to remain a stable partner in the conversation in order to safeguard their child's care.…”

Section: Discussionmentioning

confidence: 81%

“…The position of parenting, and what parents value in bereavement care in the context of increased losses during the end of life, is still largely unclear. Consequently, healthcare professionals experience difficulty in delivering adequate pre‐loss care to parents during the end of life 15,16 . Insight into parental coping with grief during their child's end of life is needed to facilitate pre‐loss care aligned to the parents' needs, which could contribute to effective and holistic bereavement care for parents.…”

Section: Introductionmentioning

confidence: 99%

“…Consequently, healthcare professionals experience difficulty in delivering adequate pre-loss care to parents during the end of life. 15,16 Insight into parental coping with grief during their child's end of life is needed to facilitate pre-loss care aligned to the parents' needs, which could contribute to effective and holistic bereavement care for parents. Therefore, this study aimed to gain insight into how parents experience and cope with losses and grief during their child's end of life.…”

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confidence: 99%

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A grounded theory study on the dynamics of parental grief during the children's end of life

et al. 2023

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Despite medical advantages, many parents are still confronted with child loss due to preterm birth, trauma or life-threatening illnesses.Losing a child is considered the ultimate loss that any parent can experience. Bereaved parents are at risk of developing adverse psychological and physical consequences, 1-3 and are prone for prolonged grief disorder. 4,5 Grief is a natural response to the loss of someone, or something, meaningful and encompasses a range of emotions including separation distress, anxiety and dysphoria. 6 Bereavement care is an integral part of paediatric palliative care, yet it is developed mostly in order to

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Section: Discussionmentioning

confidence: 67%

Section: Discussionmentioning

confidence: 81%

Section: Introductionmentioning

confidence: 99%

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confidence: 99%

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A grounded theory study on the dynamics of parental grief during the children's end of life

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“…Physical, psychosocial, and spiritual domain of care should be considered for setting up the goals. 11 12 13…”

Section: Role Of Nurses In Palliative Care Of Childrenmentioning

confidence: 99%

Nursing Perspective of Providing Palliative Care to the Children—A Narrative Review

Agrawal

Sarin

Garg

2023

Journal of Health and Allied Sciences NU

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Introduction Palliative care of children (PCC) is a philosophical and a structured approach to providing tailored care to children with life-threatening diseases. Understanding the role of nurses and empowering them to take up the role of palliative care nurse are imperative to strengthen these services and make the palliative care services more accessible to the patients. Method The literature search was done in two database, PubMed and Scopus, using keyword and Medical Subject Headings (MeSH) terms such as children, palliative care, end of life, hospice, bereavement, and nursing. Records were screened by authors and relevant articles were included in the review. Discussion PCC should start with the diagnosis of the illness continue through all the phases of illness. Bereavement support to the family is also a part of palliative care. Nurses are in a key position to play important role in the PCC team. Nurses play various roles such as direct care provider, communicator, patient advocate, respite nurse, and counselor. Conclusion PCC is aimed to improve the quality of life of the child and family. It is crucial to achieving universal health coverage. Role of nurse is vital in providing PCC.

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Bereavement Counsellors’ Experiences Supporting the Families of Deceased Children Within a German Bereavement Network– A Qualitative Interview Study

Betke,

Stiel,

Schwabe

2024

Omega (Westport)

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Background: The “Bereavement Network Lower Saxony” (BNLS) provides professional bereavement support to families grieving for a child. The present study aimed at exploring the experiences of BNLS bereavement counsellors in providing bereavement support to affected families. Methods: 12 semi-structured qualitative interviews were conducted with bereavement counsellors of the BNLS between June and August 2022. Interviews were recorded, transcribed and analysed using qualitative content analysis, according to Mayring (2010). Results: Bereavement counsellors perceived that grief could be experienced very differently, and thus bereavement support must always be based on the individual needs and resources of bereaved family members. Bereavement counsellors appreciated exchange within the network and supervision to cope with emotional load that arises from compassion for those affected. Conclusions: Bereavement support within a network structure may improve the accessibility of individual support and enable exchange between counsellors, thus ensuring better bereavement support. Public outreach and strategic partnerships with clinics may amplify the positive impact of this support service.

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Health Care Professionals' Experiences With Preloss Care in Pediatrics: Goals, Strategies, Obstacles, and Facilitators

Cited by 3 publications

References 33 publications

A grounded theory study on the dynamics of parental grief during the children's end of life

A grounded theory study on the dynamics of parental grief during the children's end of life

Nursing Perspective of Providing Palliative Care to the Children—A Narrative Review

Bereavement Counsellors’ Experiences Supporting the Families of Deceased Children Within a German Bereavement Network– A Qualitative Interview Study

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