Health-Related Quality of Life in Mexican Children and Adolescents with Non-Syndromic Craniosynostosis

Abstract

Objective Assess the Health-Related Quality of Life in children and adolescents with non-syndromic craniosynostosis and compare it with participants without craniosynostosis. Design Non-experimental, cross-sectional design. Setting The assessment was done remotely and the instrument was sent via chat or email. Patients/ Participants Participants (ages 8–17) with non-syndromic craniosynostosis (n = 27) and without craniosynostosis (n = 26). Main Outcome Measure(s) We used an adapted version for the Mexican population of the Health-Related Quality of Life Questionnaire for Children and Adolescents -KIDSCREEN-52. Results All scores were in the average clinical range and both groups scored similarly in all domains except those with craniosynostosis were significantly lower in the Social Support and Peers domain (rpb = 0.48). Conclusions Children and adolescents with non-syndromic craniosynostosis reported similar Health-Related Quality of Life as the control group, except for the Social Support domain, which should be investigated in future studies.