HIDRAdisk: an innovative visual tool to assess the burden of hidradenitis suppurativa

Age and gender influence on HIDRAdisk outcomes in adalimumab‐treated hidradenitis suppurativa patients

“…However, in order to analyse all HS aspects, it is crucial to define the precise burden of the disease and to objectively evaluate the rate of HS improvement at baseline and after therapy. In this context, HIDRAdisk, a simple and innovative visual HS QoL instrument, has been recently psychometrically validated in Italy demonstrating to improve the management of HS once implemented in routine clinical practice . We herein showed, although in a retrospective study from a single centre, that improvement in HS after adalimumab treatment measured with mSS significantly correlated with QoL evaluated by HIDRAdisk.…”

“…Disease tools commonly used to describe patient discomfort such as Dermatology Life Quality Index (DLQI), Skindex‐16, as well as Work Productivity and Activity Impairment (WPAI) are not specific for HS and not useful on large numbers of patients. Recently, a new graphical tool able to better describe HS burden, the so‐called HIDRAdisk, has been introduced . HIDRAdisk is designed to be filled out by the patient with the dermatologist, fostering their communication.…”

“…When the burden of HS decreases, the area of the polygon shrinks, providing an intuitive representation of the progress achieved. Chiricozzi et al . firstly introduced this tool through a mixed methodology: patient‐only (patients affected by HS for ≥24 months) and physician‐only (with well‐documented experience in the research field) focus groups created to capture the experience and perspective of the disease on both sides; a modified Delphi method was then applied to assess the level of convergence of both opinions about the items selected and their weight within the disease experience of HS.…”

“…Recently, a new graphical tool able to better describe HS burden, the so-called HIDRAdisk, has been introduced. 4,5 HIDRAdisk is designed to be filled out by the patient with the dermatologist, fostering their communication. Being a visual instrument, with the answers shown graphically through a polygon, HIDRAdisk gives an immediate and global picture of the disease burden, also allowing patients and physicians to visualize the course of the disease over time.…”

Tuscan consensus on the diagnosis and treatment of hidradenitis suppurativa

“…For HS grading, Hurley classification is used, while to define disease severity and to monitor the efficacy of medical therapy, the HiSCR (Hidradenitis Suppurativa Clinical Response) and the IHS4 (International Hidradenitis Suppurativa Severity Score System) are preferred. DLQI (Dermatology Life Quality Index) and/or HIDRAdisk can be used to evaluate the impact of HS on the quality of life of patients.…”