Hope and Optimism as an Opportunity to Improve the “Positive Mental Health” Demand

Laranjeira, Carlos; Querido, Ana

doi:10.3389/fpsyg.2022.827320

Cited by 37 publications

(25 citation statements)

References 38 publications

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“…Disease progression and treatments may have prevented better results. However, considering that the instrument can detect changes in 48 h, these results may indicate the need to reinforce hope-promoting interventions and activities in order to obtain gains in QoL over time [ 47 , 48 ].…”

Section: Discussionmentioning

confidence: 99%

Hope-Based Program for Portuguese Outpatients with Advanced Chronic Illness in a Community Setting: A Randomized Control Trial

Querido

Laranjeira

2023

IJERPH

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Background: Hope is widely considered a subjective phenomenon able to bring beneficial consequences to human health and existence. Maintaining hope amid a life-threatening disease and during palliative care is critical. The study aims to examine the effectiveness of a psychosocial supportive Hope Promotion Program (HPP) in enhancing hope, comfort, and quality of life in Portuguese adult outpatients with advanced and progressive chronic illness. Method: Using a parallel Randomized Control Trial (RCT) with pre-post design, 56 cancer outpatients from two day hospitals. Participants were randomly assigned to either a control group (n = 28) or an intervention group (n = 28). The primary outcome measure was hope. Secondary measures included comfort and quality of life. Participants were assessed at baseline, day 15, and day 30 of follow-up. Results: Baseline characteristics were similar between the two groups. In the intervention group, there was a significant increase in the total hope scores after the HPP (day 15). Significant differences were still present after one month (p < 0.05). There was also a significant increase in comfort and quality of life scores in the intervention group one month after HPP (p = 0.018). Conclusions: The HPP may be an effective intervention to increase hope and improve comfort and quality of life among palliative patients. Future studies should increase sample size, diversify settings, and include longer and more detailed follow-ups.

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Section: Discussionmentioning

confidence: 99%

Hope-Based Program for Portuguese Outpatients with Advanced Chronic Illness in a Community Setting: A Randomized Control Trial

Querido

Laranjeira

2023

IJERPH

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“…As several authors have suggested, hope and optimism can be factors in good outcomes, but they can also foster unrealistic expectations. [19][20][21] We need to better understand the different ways that patients, IRBs, and investigators may view the benefits of research participation. Perceptions of the benefits and burdens may vary depending on the trial phase and designated aims.…”

Section: Discussionmentioning

confidence: 99%

“…As several authors have suggested, hope and optimism can be factors in good outcomes, but they can also foster unrealistic expectations. 19 , 20 , 21 …”

Section: Discussionmentioning

confidence: 99%

Association of Perceived Benefit or Burden of Research Participation With Participants’ Withdrawal From Cancer Clinical Trials

et al. 2022

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ImportanceAttrition in cancer clinical trials (CCTs) can lead to systematic bias, underpowered analyses, and a loss of scientific knowledge to improve treatments. Little attention has focused on retention, especially the role of perceived benefits and burdens, after participants have experienced the trial.ObjectivesTo examine the association between patients’ perceived benefits and burdens of research participation and CCT retention.Design, Setting, and ParticipantsThis survey study was conducted at a National Cancer Institute–designated comprehensive cancer center in the Northeast region of the US. The sample included adult patients with a cancer diagnosis participating in cancer therapeutic trials. Data were collected from September 2015 to June 2019. Analysis of study data was ongoing since November 2019 through October 2022.ExposuresSelf-reported validated survey instrument with a list of 22 benefits and 23 burdens of research participation that can be rated by patients with a 5-point Likert scale ranging from 1 (strongly disagree) to 5 (strongly agree).Main Outcomes and MeasuresA primary outcome was actual withdrawal from the CCT, and a composite outcome was composite withdrawal that included both actual withdrawal and thoughts of withdrawing. Bivariate and multivariable logistic regressions were used.ResultsAmong the 334 participants in the sample, the mean (SD) age was 61.9 (11.5) years and 174 women (52.1%) were included. Top-cited benefits included both aspirational and action-oriented goals, including helping others (94.2%), contributing to society (90.3%), being treated respectfully (86.2%), and hoping for a cure (86.0%). Worry over receiving a placebo (61.3%), rearranging one’s life (41.9%), and experiencing bothersome adverse effects (41.6%) were notable burdens. An increased burden score was associated with a higher probability of actual withdrawal (adjusted odds ratio [OR], 1.86; 95% CI, 1.1-3.17; P = .02) or composite withdrawal (adjusted OR, 3.44; 95% CI, 2.09-5.67; P &lt; .001). An increased benefit score was associated with lower composite withdrawal (adjusted OR, 0.40; 95% CI, 0.24-0.66; P &lt; .001). For participants who reported the benefits as being equal to or greater than the burdens, 13.4% withdrew. For those who perceived the benefits as being less than the burdens, 33.3% withdrew (adjusted OR, 3.38; 95% CI, 1.13-10.14; P = .03). The risk of withdrawal was even higher for the composite outcome (adjusted OR, 7.70; 95% CI, 2.76-21.48; P &lt; .001).Conclusions and RelevanceThis survey study found that patients perceived important benefits from CCT participation, and this perception was associated with trial retention, even among those who also perceived substantial burdens. A broader dialogue among stakeholders can inform an ethical and patient-centric focus on benefits throughout the course of a CCT to increase retention.

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“…Having hope is described as a central or core component of mental health recovery (Laranjeira & Querido, 2022 ; Leamy et al, 2011 ). People diagnosed with mental health issues have described it as intrinsic to life, sometimes hidden, and often more noticed in its absence than its presence (Murphy et al, 2022 ).…”

Section: Introductionmentioning

confidence: 99%

“…Hope has been variously defined, with no universal agreement, and some have argued that there is limited utility in identifying a unified definition of hope because of its multifaceted and context-specific nature (Herrestad et al, 2014 ; McCormack et al, 2017 ). For the purposes of this paper, we define hope as “the feeling of having possibilities, trust in others and in the future, zest for life, expression of reasons and will to live, inner peace, optimism, associated with setting goals and mobilization of energy” (Querido, 2020, cited in Laranjeira & Querido, 2022 ).…”

Section: Introductionmentioning

confidence: 99%

How do Mental Health Services Foster Hope? Experience of People Accessing Services

Honey

Hancock

Barton

et al. 2023

Community Ment Health J

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Hope is essential to mental health recovery, yet little is known about how mental health services can foster hope. This paper addresses the question: How can mental health services influence the sense of hope experienced by people who access their services? Sixty-one people who accessed a new mental health service were interviewed about their experiences, including about how the service had influenced their sense of hope. Interviews were analysed using constant comparative analysis. The data revealed that hope increased when people perceived positive changes in themselves and their circumstances: developing new understandings and perspectives; having effective strategies to manage challenges; seeing progress or having plans; and having support. Changes were attributed to three major features of the service: accessibility; staff competence and wisdom; and caring interactions. The findings highlight that, while individual clinicians are important, other interactions with services and the wider service context are also critical for facilitating hope.

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Hope and Optimism as an Opportunity to Improve the “Positive Mental Health” Demand

Cited by 37 publications

References 38 publications

Hope-Based Program for Portuguese Outpatients with Advanced Chronic Illness in a Community Setting: A Randomized Control Trial

Hope-Based Program for Portuguese Outpatients with Advanced Chronic Illness in a Community Setting: A Randomized Control Trial

Association of Perceived Benefit or Burden of Research Participation With Participants’ Withdrawal From Cancer Clinical Trials

How do Mental Health Services Foster Hope? Experience of People Accessing Services

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