How appropriate is the WHOQOL-BREF for assessing the quality of life of adolescents?

Skevington, Suzanne M.; Dehner, Svenja; Gillison, Fiona; McGrath, Elly; Lovell, C. R.

doi:10.1080/08870446.2013.845668

Cited by 35 publications

(21 citation statements)

References 30 publications

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“…This is consistent with the unique social and emotional aspects for different age groups [31,64,65]. It is advocated that adolescent outcome measures should address the importance of separation from parents [31,66]. However, few adolescents in this study selected and rated independence from parents highly.…”

Section: Results In Context With Previous Literaturesupporting

confidence: 75%

“…This study also demonstrated the different activities important to different age groups as well as older adolescents worrying more about the future. This is consistent with the unique social and emotional aspects for different age groups [31,64,65]. It is advocated that adolescent outcome measures should address the importance of separation from parents [31,66].…”

Section: Results In Context With Previous Literaturesupporting

confidence: 68%

“…'Daily activities' was separated from 'general hobbies' to identify potential functional differences. We also used cards such as 'family', 'friends', 'boyfriend and girlfriend' and 'independence' that have been shown to be important to adolescents, to allow possible age differences to emerge [31]. Authors who employed a Q-sort task to prioritise 33 health outcomes for paediatric neurodisability reflected that this was challenging due to "the large number of concepts" [32].…”

Section: Methodsmentioning

confidence: 99%

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Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking

et al. 2020

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Purpose Chronic fatigue syndrome (CFS)/myalgic encephalopathy (ME) is relatively common in children and is disabling at an important time in their development. This study aimed to develop a conceptual framework of paediatric CFS/ME using the patient-perspective to ensure that the content of a new outcome measure includes the outcomes most important to young people. Methods We developed a child-centred interactive card ranking exercise that included health-related quality of life (HRQoL) outcomes identified from a previous review of the literature as well as qualitative work. Adolescents and their parents selected and ranked the outcomes most important to them and discussed each outcome in further detail. Adolescents were purposively sampled from a single specialist paediatric CFS/ME service in England. Interviews were audio recorded and transcribed verbatim, and thematic framework analysis was used to develop the final conceptual framework. Results We interviewed 43 participants in which there are 21 adolescents, 12-17 years of age with mild-moderate CFS/ ME and their parents (20 mothers and 2 fathers). 'Symptoms', 'tiredness', 'payback and crashing' and 'activities and hobbies' were ranked most important to improve by both children and parents. Children ranked 'school' higher than parents and parents ranked 'mood' higher than children. A youth-specific CFS/ME conceptual framework of HRQoL was produced that included 4 outcome domains and 11 subdomains: sleep, tiredness, problems concentrating, individual symptoms, fluctuation and payback, daily and general activities, participation in school, leisure and social life, mood, anxiety and self-esteem. Conclusions An interactive card ranking exercise worked well for adolescents aged 12-17 to elicit the most important outcomes to them and explore each domain in further detail. We developed a final conceptual framework of HRQoL that forms the basis of a new paediatric patient-reported outcome measure (PROM) in CFS/ME. Keywords Chronic fatigue syndrome/myalgic encephalopathy (CFS/ME) • Adolescents • Conceptual framework • Healthrelated quality of life (HRQoL) • Patient-reported outcome measure (PROM) • Qualitative

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Section: Results In Context With Previous Literaturesupporting

confidence: 75%

Section: Results In Context With Previous Literaturesupporting

confidence: 68%

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking

et al. 2020

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“…Similarly, the appropriateness of the World Health Organization Quality of Life (WHOQOL-BREF) for use among youth has been questioned, as its development was almost based on adults or adult patients, and discussions about its applicability and/or validation in children and adolescents are scarce ( 18 ). Some authors have called for the development of a new adolescent version of the WHOQOL ( 19 ).…”

Section: Introductionmentioning

confidence: 99%

The Ugandan Youth Quality of Life index: assessing the relevance of incorporating perceived importance into the quality of life measure and factors associated with the quality of life among youth in slum areas of Kampala, Uganda

Renzaho

Kamara²,

Kamanga

2016

Global Health Action

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BackgroundWhile quality of life (QoL) has long been an explicit policy goal for international development programmes, no instruments have specifically been developed for measuring health-related QoL in resource-limited settings. The aim of this study was to develop and validate a QoL instrument for use in international aid and development programmes and to assess factors associated with QoL among youth participating in a civic engagement project in Kampala.DesignUsing systematic random sampling, data were collected on 663 participants aged between 13 and 24 years in Kampala. The QoL questionnaire included 36 questions divided into a two-part scale: 18 questions rated for satisfaction (Part 1) and 18 other questions rated on importance (Part 2). The total sample was randomly divided into two split-half samples: one for the exploratory factor analysis (EFA; N=310) and the other for the confirmatorty factor analysis (CFA; N=353). The effect of demographic, socio-economic, and lifestyle factors on QoL was assessed using linear regressions.ResultsThe EFA yielded three factors: living conditions and lifestyle (seven items, α=0.84), social relationships (five items, α=0.86), and personal independence (five items, α=0.76). In the CFA, the initial model demonstrated a poor to marginal fit model. Its re-specification by examining modification indices resulted in a good model fit: Comparative Fit Index=0.95, Root Mean Square Error of Approximation=0.06, and p of Close Fit >0.05. The model incorporating perceived importance had lower Akaike Information Criteria and Bayesian Information Criteria values than the unweighted model, thereby providing very strong support to weight satisfaction scores with importance ratings when measuring QoL in Uganda. Poor QoL was associated with poor educational attainment, drug and substance misuse, and family disruption.ConclusionsThe findings suggest that there is a relationship between QoL and lifestyle and structural issues among youth in Uganda. The study provides the first validated QoL measure to allow government and non-government organisations in low- and middle-income countries to track progress of international aid and development programmes.

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“…Del mismo modo, cuando mencionamos el término calidad de vida (CV) de un paciente, comprendemos esta idea como la discrepancia entre la expectativa y su realidad; en otras palabras, cuanto mayor sea la desigualdad entre los mencionados, menor será su CV (3) . Asimismo, la calidad de vida relacionada con la salud (CVRS), la cual es multidimensional, predomina por la interrelación de factores individuales, sociales y ambientales (4) , y claramente diferenciable por parte del paciente de la percepción del estado de salud (5) . Participan aspectos en relación con al menos tres componentes: uno individual (relacionado con el estrés que supone la enfermedad para el paciente), uno de interacción (que tiene que ver con el apoyo social) y otro comunitario (relacionado con un sentido de pertenencia) (6,7) .…”

Section: Cambios Hemodinámicos Y Calidad De Vida En Pacientes Con Cánunclassified

Cambios hemodinámicos y calidad de vida en pacientes con cáncer de próstata luego de un entrenamiento HIIT Y MICT. Ensayo clínico aleatorizado (ONCO-EXE TRIAL)

et al. 2019

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Introducción. El cáncer de próstata es el más frecuente en hombres y constituye la segunda causa de mortalidad. La rehabilitación basada en ejercicios se muestra efectiva y segura para mitigar los efectos del cáncer. Objetivo. Determinar los cambios hemodinámicos y calidad de vida en pacientes con cáncer de próstata luego de un entrenamiento de alta intensidad (HIIT) o continuo, a intensidad moderada (MICT). Métodos. Ensayo clínico aleatorizado con 249 pacientes con cáncer de próstata en estadio II distribuidos en tres grupos (MICT, HIIT y grupo control) a quienes se les aplicó el cuestionario EORTC QLQ C-30 para calidad de vida, ecocardiograma, prueba de esfuerzo, signos vitales y la escala FACT-Fatigue Scale. El programa de entrenamiento tuvo una duración de 36 sesiones de 70 minutos, tres veces por semana. Resultados. Al comparar los resultados post entrenamiento de las variables hemodinámicas, logramos determinar cambios en la fracción de eyección (GE1: 49,0 ± 5,6 vs 52,0 ± 5,4; GE2: 45,0 ± 5,3 vs 51,0 ± 3,2; GC: 48,0 ± 4,1 vs 48,0 ± 4,4; p<0,005), frecuencia cardíaca máxima (GE1: 155,0 ± 7,0 vs 159,0 ± 4,0; GE2: 156,0 ± 14,0 vs 168,0 ± 5,0; GC: 155,0 ± 7,0 vs 155,0 ± 6,0; p<0,005). Al igual que los resultados para calidad de vida (GE1: 55,1 ± 10,3 vs 70,9 ± 10,2; GE2: 59,8 ± 9,9 vs 118,0 ± 14,6; GC: 60,2 ± 7,6 vs 62,3 ± 9,4; p<0,005). Conclusiones. El HIIT y MICT mejoraron significativamente la calidad de vida, fatiga, y todas las variables hemodinámicas evaluadas en la investigación. Se demostró mayores beneficios con el HIIT. El grupo control de atención habitual sin entrenamiento físico, no presentó cambios significativos.

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How appropriate is the WHOQOL-BREF for assessing the quality of life of adolescents?

Abstract: The evidence indicates that developing a new adolescent version is justifiable. Cross-cultural research should build on these preliminary findings.

Cited by 35 publications

References 30 publications

Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking

Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking

The Ugandan Youth Quality of Life index: assessing the relevance of incorporating perceived importance into the quality of life measure and factors associated with the quality of life among youth in slum areas of Kampala, Uganda

Cambios hemodinámicos y calidad de vida en pacientes con cáncer de próstata luego de un entrenamiento HIIT Y MICT. Ensayo clínico aleatorizado (ONCO-EXE TRIAL)

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