‘I am not the kind of woman who complains of everything’: Illness stories on self and shame in women with chronic pain

Werner, Anne; Isaksen, Lise Widding; Malterud, Kirsti

doi:10.1016/j.socscimed.2003.12.001

Cited by 274 publications

(224 citation statements)

References 26 publications

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“…Attribution of symptom worsening due to healthcare interactions, however, has not previously been observed, but experiences of detrimental effects of physical therapies and overexertion have (Brown, Khorana, & Jason, 2011; Jason, Benton, Torres-Harding, & Muldowney, 2009). The use of war metaphors has also previously been reported (Davis & Nichter, 2015; Werner, Isaksen, & Malterud, 2004). Contested illnesses can be characterized as ‘‘illnesses you have to fight to get” (Dumit, 2006).…”

Section: Discussionmentioning

confidence: 62%

“It´s incredible how much I´ve had to fight.” Negotiating medical uncertainty in clinical encounters

Lian

Robson

2017

International Journal of Qualitative Studies on Health and Well

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Purpose: Clinical encounters related to medically unexplained physical symptoms (MUPS) are associated with high levels of conflict between patients and doctors. Collaborative difficulties are fused by the medical uncertainty that dominates these consultations. The main aim of this study is to explore the interactional dynamics of clinical encounters riddled by medical uncertainty, as experienced by people living with long-term medically unexplained fatigue in Norway. Method: A qualitative thematic analysis of written texts from 256 study participants. Results: We found that patients experience being met with disbelief, inappropriate psychological explanations, marginalisation of experiences, disrespectful treatment, lack of physical examination and damaging health advice. The main source of their discontent is not the lack of biomedical knowledge, but doctors who fail to communicate acknowledgement of patients’ experiences, knowledge and autonomy. War metaphors are emblematic of how participants describe their medical encounters. The overarching storyline depicts experiences of being caught in a power struggle with doctors and health systems, fused by a lack of common conceptual ground. Conclusion: When physical symptoms cannot be detected, explained and managed by biomedical knowledge and technology, good doctor-patient partnerships are crucial. Without clearly acknowledging patients’ perspectives and capabilities in clinical practice, such partnerships cannot be achieved.

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Section: Discussionmentioning

confidence: 62%

“It´s incredible how much I´ve had to fight.” Negotiating medical uncertainty in clinical encounters

Lian

Robson

2017

International Journal of Qualitative Studies on Health and Well

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“…At times a person can come to doubt their own experiences. 363,370,371 Second-order construct: Osborn and Smith 1998: 342 …”

Section: Second-order Construct: Holloway 2007: 379 Stigma In Everydamentioning

confidence: 99%

“…However, the proliferation of studies exploring the experience of chronic non-malignant pain 97,140,206,214,250,261,296,327,342,343,348,363,379,385,427,433,[443][444][445][446][447][448][449][450][451][452][453][454][455][456][457][458][459][460] makes it difficult for clinicians and policy makes to use this knowledge to inform practice and policy, and increases the danger that these findings are 'doomed never to be visited'. 27 Research findings need to be accessible if they are to have an effect on care and policy.…”

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confidence: 99%

“…This model also implies an illness trajectory whereby, following diagnosis and treatment, a person's health is restored. 465 Studies also report that patients feel that they are not believed, 97,250,427,443,447,448,452,460 and may even start to doubt their own experience of pain. 327,433,447,448,451,457 These findings are supported by a meta-synthesis of patient experiences of Fibromyalgia.…”

mentioning

confidence: 99%

“…327,433,447,448,451,457 These findings are supported by a meta-synthesis of patient experiences of Fibromyalgia. 429 Patients with chronic pain also present a certain moral narrative 393 in order APPENDIX 1 to legitimize their condition, 443,449,452,459 and use social comparison to rank themselves in relation to others. 342,443,450,453,458 Qualitative studies have also shown the importance of self-identity, yet at the same time, an acceptance of changes to identity.…”

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confidence: 99%

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A meta-ethnography of patients’ experience of chronic non-malignant musculoskeletal pain

Toye

Seers

Allcock

et al. 2013

Health Services and Delivery Research

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Health Services and Delivery ResearchISSN 2050-4349 (Print) ISSN 2050-4357 (Online) This journal is a member of and subscribes to the principles of the Committee on Publication Ethics (COPE) (www.publicationethics.org/).Editorial contact: nihredit@southampton.ac.ukThe full HS&DR archive is freely available to view online at www.journalslibrary.nihr.ac.uk/hsdr. Print-on-demand copies can be purchased from the report pages of the NIHR Journals Library website: www.journalslibrary.nihr.ac.uk Criteria for inclusion in the Health Services and Delivery Research journalReports are published in Health Services and Delivery Research (HS&DR) if (1) they have resulted from work for the HS&DR programme or programmes which preceded the HS&DR programme, and (2) they are of a sufficiently high scientific quality as assessed by the reviewers and editors. HS&DR programmeThe Health Services and Delivery Research (HS&DR) programme, part of the National Institute for Health Research (NIHR), was established to fund a broad range of research. It combines the strengths and contributions of two previous NIHR research programmes: the Health Services Research (HSR) programme and the Service Delivery and Organisation (SDO) programme, which were merged in January 2012.The HS&DR programme aims to produce rigorous and relevant evidence on the quality, access and organisation of health services including costs and outcomes, as well as research on implementation. The programme will enhance the strategic focus on research that matters to the NHS and is keen to support ambitious evaluative research to improve health services.For more information about the HS&DR programme please visit the website: www.netscc.ac.uk/hsdr/ This reportThe research reported in this issue of the journal was funded by the HS&DR programme or one of its proceeding programmes as project number 09/2001/09. The contractual start date was in October 2010. The final report began editorial review in November 2012 and was accepted for publication in February 2013. The authors have been wholly responsible for all data collection, analysis and interpretation, and for writing up their work. The HS&DR editors and production house have tried to ensure the accuracy of the authors' report and would like to thank the reviewers for their constructive comments on the final report document. However, they do not accept liability for damages or losses arising from material published in this report.This report presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect those of the authors, those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. Published b...

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Chronic Illness

Charmaz

Rosenfeld

2009

The New Blackwell Companion to Medical Sociology

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‘I am not the kind of woman who complains of everything’: Illness stories on self and shame in women with chronic pain

Cited by 274 publications

References 26 publications

“It´s incredible how much I´ve had to fight.” Negotiating medical uncertainty in clinical encounters

“It´s incredible how much I´ve had to fight.” Negotiating medical uncertainty in clinical encounters

A meta-ethnography of patients’ experience of chronic non-malignant musculoskeletal pain

Chronic Illness

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