Identifying and integrating patient and caregiver perspectives in clinical practice guidelines for percutaneous renal biopsy

Abstract

Patient and caregiver involvement in developing guidelines on renal biopsy ensured that their concerns and needs for education, psychosocial support, and self-management were explicitly addressed; enabling a patient-centred approach to renal biopsies. This article is protected by copyright. All rights reserved.

KHA‐CARI Guideline recommendations for renal biopsy

“…Despite this, there is limited evidence regarding patients' experiences and requirements when undergoing a renal biopsy. Education, psychosocial support and self‐management have been identified as a requirement for those in need of a renal biopsy . The method in which the information is conveyed to patients as well as the provision of support for the decision‐making process are also important …”

“…Process of renal biopsy: Communication throughout the patient journey (Adapted from Gutman et al, (p. 26) with permission. )…”

“…Ungraded suggestions for clinical care Patients with a pre‐biopsy haemoglobin (Hb) <80 g/L are more likely to require a blood transfusion post‐biopsy . Anaemia appears to be a surrogate marker for other bleeding risk factors (female gender, hypertension, impaired renal function, older age).…”

“…Education, psychosocial support and self-management have been identified as a requirement for those in need of a renal biopsy. 1,2 The method in which the information is conveyed to patients as well as the provision of support for the decision-making process are also important. 3 Although the procedure is considered to be safe, especially since the introduction of spring-loaded needles and real-time imaging, [4][5][6][7][8][9][10][11] bleeding is the most common complication.…”

“…35 Biopsy of a renal transplant has been described exclusively with the patients in the supine position, [35][36][37] however, like native kidney biopsy patient position in transplant biopsy is frequently not reported. 38,39 F I G U R E 1 Process of renal biopsy: Communication throughout the patient journey (Adapted from Gutman et al, 1 (p. 26) with permission. )…”