“If it benefits someone, it will be good:” perspectives on research participation from pregnant women living with HIV

Raciti, Catherine G.; Marsha, Joy; Nafiseh, Amira; Masese, Eric R.; Apondi, Edith; McHenry, Megan S.

doi:10.1080/09540121.2022.2057411

AIDS Care

2022

DOI: 10.1080/09540121.2022.2057411

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“If it benefits someone, it will be good:” perspectives on research participation from pregnant women living with HIV

Catherine G. Raciti

Joy Marsha

Amira Nafiseh

et al.

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2024

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Recruitment of pregnant and breastfeeding women in pharmacokinetic studies: strategies, opportunities, barriers, and recommendations

Nakijoba,

Kawuma,

Asiimwe

et al. 2024

BMC Res Notes

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Pregnant and breastfeeding women are often under-represented in clinical research, including pharmacokinetic studies, due to ethical and logistical challenges. This paper examines strategies to improve the recruitment and retention of this demographic in pharmacokinetic research, drawing on experiences from five studies conducted at the Infectious Diseases Institute, Makerere University, Uganda. Key strategies implemented include Community Advisory Board meetings, the involvement of Peer Mothers as Co-Investigators, established recruitment sites, the use of safety protocols, and the utilization of diverse communication platforms, including social media and stakeholder meetings. Despite these efforts, substantial barriers, such as scheduling conflicts and frequent staff turnover at recruitment sites, continue to threaten progress. The paper recommends flexible scheduling, strengthening public engagement, and transparent demonstration of adherence to ethical principles; justice, non-maleficence, respect, and beneficence to ensure the safety and inclusivity of pregnant and breastfeeding women. The inclusion of this population in pharmacokinetic studies is essential for providing evidence-based care that meets their unique health needs.

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Recruitment of pregnant and breastfeeding women in pharmacokinetic studies: strategies, opportunities, barriers, and recommendations

Nakijoba,

Kawuma,

Asiimwe

et al. 2024

BMC Res Notes

View full text Add to dashboard Cite

show abstract

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“If it benefits someone, it will be good:” perspectives on research participation from pregnant women living with HIV

Cited by 1 publication

References 18 publications

Recruitment of pregnant and breastfeeding women in pharmacokinetic studies: strategies, opportunities, barriers, and recommendations

Recruitment of pregnant and breastfeeding women in pharmacokinetic studies: strategies, opportunities, barriers, and recommendations

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