Impacto del hecho de cuidar en la salud de los cuidadores familiares

Roger, Montserrat Roca; Bonet, Inmaculada Úbeda; Gallego, C. Fuentelsaz; Pisa, R. López; Palom, Anna Ribas; Viñets, Lourdes García; Oriol, Rosalía Pedreny

doi:10.1016/s0212-6567(00)78650-1

Cited by 42 publications

(7 citation statements)

References 1 publication

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“…Regarding psychological adjustment, similarly to previous reports [26, 40], distress levels remained fairly consisted across time for patients yet spouses seemed to improve. Overall, our findings support as well as extend the caregiving literature [5, 14, 15, 17, 18, 41, 42] in several important ways.…”

Section: Discussionsupporting

confidence: 88%

“…Nevertheless, spousal baseline reports of their caregiving-related health problems predicted both patients and spouses’ distress scores at 3-month as well as 6-month follow-up. Two items of this 4-item subscale specifically assess fatigue, a common problem among family caregivers [41, 42, 45, 46]. Spouses’ exhaustion may predict patient distress because spouses may be too tired to provide for patients’ physical and emotional needs.…”

Section: Discussionmentioning

confidence: 99%

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Longitudinal associations between caregiver burden and patient and spouse distress in couples coping with lung cancer

Milbury

Badr

Fossella

et al. 2013

Support Care Cancer

140

115

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Purpose While spouses play a vital role in the care of cancer patients, caregiving exerts a physical and psychological toll. Caregiving burden may not only compromise spouses’ quality of life but also the quality of care and support they are able to provide. Consequently, spousal caregiving burden may also negatively impact patients’ psychological adjustment. However, the effect of caregiving burden on patients’ psychological distress is unknown. Thus, this 6-month longitudinal study examined the associations between caregiving burden and distress in both lung cancer patients and their spouses. Methods Patients and their spouses individually completed questionnaires within 1 month of treatment initiation (baseline) and at 3-month and 6-month follow-up. Distress was measured with the Brief Symptom Inventory and caregiving burden with the Caregiver Reaction Assessment. Results Multilevel modeling of data from 158 couples revealed that baseline spouses’ reports of caregiving-related health problems were significantly associated with 3-month (p<0.001) and 6-month (p=0.01) follow-up distress in both patients and spouses even when controlling for baseline distress and dyadic adjustment. Further, there was evidence that baseline spouses’ reports of schedule disruption (p=0.05) predicted 3-month patients’ distress and baseline spouses’ reports of financial strain (p<0.05) and lack of support (p<0.10) predicted their own distress at 6-months. Conclusion Caregiving burden is problematic for both patients and spouses. Couples in which spouses report caregiving-related health problems may be at particular high risk of long-term elevated distress. Targets of future couple-focused interventions such as self-care and use of social support are discussed.

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Section: Discussionsupporting

confidence: 88%

Section: Discussionmentioning

confidence: 99%

Longitudinal associations between caregiver burden and patient and spouse distress in couples coping with lung cancer

Milbury

Badr

Fossella

et al. 2013

Support Care Cancer

140

115

View full text Add to dashboard Cite

show abstract

“…The association of family dysfunction and excessive stress associated with care may be justified by the inability of family members to adapt to the needs and crises, not by mobilizing resources or even their participation in the care of the elderly 24,35 . Good family functionality, on the other hand, can ensure that the elderly, even if dependents, continue to live in community, along with their families.…”

Section: Discussionmentioning

confidence: 99%

Cuidadores de idosos e tensão excessiva associada ao cuidado: evidências do Estudo SABE

Nunes

Brito

Duarte

et al. 2018

Rev. bras. epidemiol.

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RESUMO: Introdução: A presença de múltiplas doenças e agravos crônicos pode ocasionar a incapacidade funcional do idoso, o qual poderá requerer a necessidade de ajuda de outra pessoa. A prestação de cuidados diários e ininterruptos pode gerar no cuidador situações estressoras, levando-o a sobrecarga. Objetivo: Descrever o perfil sociodemográfico e assistencial dos cuidadores de idosos e analisar os fatores associados à tensão excessiva associada ao cuidado. Métodos: Trata-se de um estudo transversal, parte do Estudo Saúde, Bem-Estar e Envelhecimento (SABE), realizado no município de São Paulo, no ano de 2010, com 362 cuidadores. A tensão excessiva associada ao cuidado foi avaliada pela escala de Zarit, e considerou-se ausência de sobrecarga pontuação inferior a 24 pontos e presença de sobrecarga os escores ≥ 24 pontos. Utilizou-se regressão de logística hierárquica para analisar os fatores associados à tensão dos cuidadores familiares. Resultados: A maioria dos cuidadores era familiar (91,5%), do sexo feminino (75,4%), com média de idade de 53,9 anos (desvio padrão - DP ± 15,5), casado (65,3%), residente no mesmo domicílio do idoso (68,2%). Um terço deles apresentou sobrecarga de cuidado, que foi associado à idade (odds ratio - OR = 1,04; p = 0,001), ao relato de disfunção familiar (OR = 5,60; p = 0,000) e à prestação de cuidado contínuo (OR = 2,78; p = 0,030). Conclusão: Os dados revelam a necessidade de políticas públicas que incluam as necessidades e o suporte aos cuidadores, em especial, os familiares, a fim de melhorar sua qualidade de vida e a sua prestação de cuidados às pessoas idosas.

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“…La necesidad de descanso de los cuidadores está bien establecida en la literatura (55)(56), y los servicios de respiro o de relevo del cuidador son una respuesta a esta necesidad (57)(58)(59), se les considera centrales para el apoyo a los cuidadores (60). El respiro consiste en tener algo de tiempo sin la responsabilidad de cuidar, en la casa o a través de centros de día, y esta pausa en el cuidado puede variar de unas horas a varios días a la semana (57).…”

Section: El Alivio De La Carga: Los Servicios De Respirounclassified

Family Care: A Critical Review

Benjumea

2009

Invest. Educ. Enferm.

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Family care is an increasingly common phenomenon that is situated in the private domain and characterized as a feminine domain. Because of this, it is a pending issue in the public policy of some countries. Objetive: the paper explores the family care literature to highlight significant gaps in three issues: the nature of care, the burden of care and t responses to alleviate this burden. The aim is to make visible an area of interest in Public Health and Nursing. Results: it is argued that family care has intangible features and therefore it is amenable to research using qualitative methods. It is also argued that the burden of care must be considered as an issue of inequity in health. Conclusions: the area of family care requires today more research and diverse approaches as without a wide understanding of family care there cannot be effective intervention; in addition, collective health, understood as a study area, would benefit from the subjective and social constructions of qualitative research studies.

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Impacto del hecho de cuidar en la salud de los cuidadores familiares

Abstract: Most carers are middle-aged women performing multiple care tasks. This work causes their quality of life to deteriorate.

Cited by 42 publications

References 1 publication

Longitudinal associations between caregiver burden and patient and spouse distress in couples coping with lung cancer

Longitudinal associations between caregiver burden and patient and spouse distress in couples coping with lung cancer

Cuidadores de idosos e tensão excessiva associada ao cuidado: evidências do Estudo SABE

Family Care: A Critical Review

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