Incorporating Bereaved Parents as Faculty Facilitators and Educators in Teaching Principles of Palliative and End-of-Life Care

Abstract

Integration of bereaved parents into palliative and EOL care education is an innovative and effective model that benefits both interdisciplinary clinicians and bereaved parents.

The state of the science for communication training in pediatric oncology: A systematic review

“…Most (six of eight) of the articles presented interventions in which CST was the primary focus. [23][24][25][26][27][28] Two articles investigated controlled interventions, 23,24 while the remainder described interventions conducted with a single cohort of learners (i.e., without a control group). All CST interventions provided didactic materials, ranging from modules with lecture slides and videos to pocket cards and other reference materials.…”

“…Most CST interventions (six of eight) included case-based role-play or standardized patient encounters with structured opportunities for feedback. [23][24][25][26][27][28] More than half of the articles (five of eight) described participation of bereaved parents in didactics, role-play, provision of feedback, or panel discussions. 25,26,[29][30][31]…”

“…All manuscripts reported some degree of benefit associated with the intervention; four articles reported sustained benefit [25][26][27][28] and two articles suggested equivocal benefits over time. 29,30 Specific benefits accrued after CST are detailed in Table 3.…”

“…were designed specifically for pediatric oncology physicians, 24,27,29,30 while the remaining four articles described interventions conducted with cohorts that included this group. In addition to describing CST for pediatric subspecialty trainees, one included manuscript also summarized findings from pediatric palliative care didactics provided to interdisciplinary pediatric oncology clinicians (e.g., nurses, advanced practice providers, chaplains, social workers, and child-life 26 ; however, CST was not a clear component of these didactics, so these participants were not included within this synthesis.…”

My child’s legacy: a mixed methods study of bereaved parents and providers’ opinions about collaboration with NICU teams in quality improvement initiatives

“…10 13 14 Yet, their perspectives and opinions are recognised as important and are increasingly sought. [15][16][17][18][19] Since 2011, we have teamed up with more than 30 resource parents-some of which are bereaved parents-as part of many different initiatives. 10 12 20 We wished to expand our programme and recruit more bereaved parents, but wanted to ensure that we would do so in a responsible fashion.…”