Increased mortality among Indigenous persons in a multisite cohort of people living with HIV in Canada

Benoit, Anita C.; Younger, Jaime; Beaver, Kerrigan; Jackson, Randy; Loutfy, Mona; Masching, Renée; Nobis, Tony; Nowgesic, Earl; O'Brien-Teengs, Doe; Whitebird, Wanda; Zoccole, Art; Hull, Mark; Jaworsky, Denise; Benson, Elizabeth; Rachlis, Anita; Rourke, Sean B.; Burchell, Ann; Cooper, Curtis; Hogg, Robert S.; Klein, Marina B.; Machouf, Nimâ; Montaner, Julio S. G.; Tsoukas, Chris; Raboud, Janet

doi:10.17269/cjph.108.5708

Cited by 7 publications

(8 citation statements)

References 24 publications

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“…The research teams were (plan to be-regarding the incomplete project) responsive to or led by the community partners' and/or participants' priorities, concerns, and/or suggestions Benoit et al (2017Benoit et al ( , 2019, Carter et al (2017), Castleden et al (2016, Hatala et al (2019), Hovey et al (2017), Knudson et al (2018), Ley (2015), MacDonald et al (2015), Marsh, Cote-Meek, et al (2016), D. E. Martin et al (2017), D. H. Martin et al (2018), Rand (2016), Ryan (2016), Vukic et al (2016), Webkamigad (2017), Wright (2019), Yap and Yu (2016), and Zehbe et al (2012) 19…”

Section: Process-related Elements Of Two-eyed Seeing Studies That Accomplished Their Objectives (Thematic Analysis)mentioning

confidence: 99%

Applications of Two-Eyed Seeing in Primary Research Focused on Indigenous Health: A Scoping Review

Forbes

Ritchie

Walker

et al. 2020

International Journal of Qualitative Methods

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Mi’kmaq Elder Albert Marshall coined “Two-Eyed Seeing” in 2004, an Indigenous concept that emphasizes integrating the strengths of multiple perspectives to address complex challenges in ways that benefit all. In 2011, Two-Eyed Seeing became a policy of the Canadian Institutes of Health Research (CIHR)–Institute of Aboriginal Peoples’ Health, as a part of its 5-year plan, and in 2012, CIHR funding was directed toward supporting efforts that apply the concept of Two-Eyed Seeing to research. However, little is known about how Two-Eyed Seeing has been operationalized in research. To address this ambiguity, a scoping review was conducted to map the key concepts involved when researchers intend to follow Two-Eyed Seeing guiding principles to study Indigenous health topics. Three research questions guided this scoping review: (1) What are the general characteristics (e.g., location of study, health topic studied) of primary research that has attempted to apply Two-Eyed Seeing when studying Indigenous health topics? (2) How did researchers operationalize the concept of Two-Eyed Seeing when they applied it to primary studies regarding Indigenous health topics? and (3) What process-related elements were present in Two-Eyed Seeing studies that accomplished their objectives? The results of this scoping review indicate there is an increasing trend in Two-Eyed Seeing–related peer-reviewed publications since its formal introduction by Mi’kmaq Elder Albert Marshall. The selected Two-Eyed Seeing–related projects were predominately conducted in Canada and published between 2011 and 2019. Projects predominately incorporated a community-based (participatory) research approach and qualitative/Indigenous methods, and six core process–related themes/elements were identified: (i) power was shared, (ii) culturally safe spaces were fostered, (iii) institutional and community ethics were followed, (iv) research projects were transformative, (v) rigor was maintained, and (vi) the structure of Western academia and traditional policy decision-making processes provided challenges for research teams and community partners, respectively.

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Section: Process-related Elements Of Two-eyed Seeing Studies That Accomplished Their Objectives (Thematic Analysis)mentioning

confidence: 99%

Applications of Two-Eyed Seeing in Primary Research Focused on Indigenous Health: A Scoping Review

Forbes

Ritchie

Walker

et al. 2020

International Journal of Qualitative Methods

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“…Building Bridges was a collaborative project between Indigenous and allied stakeholders and the Canadian Observational Cohort (CANOC) Collaboration using Indigenous methodology and community-based research principles to conduct epidemiological health research. This collaborative process resulted in a previously described Indigenous Health Epidemiology Model which was used in our study [21][22][23]. The purpose of the model was to enable cohort research data and findings to be more accessible and meaningful to Indigenous persons and communities.…”

Section: Study Methodologymentioning

confidence: 99%

A Comparison of Virological Suppression and Rebound between Indigenous and Non-Indigenous Persons Initiating Combination Antiretroviral Therapy in a Multisite Cohort of Individuals Living with HIV in Canada

et al. 2016

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“…(1) Indigenous people were less likely to achieve viral suppression compared to white people (aHR 0.58, 95% CI 0.50, 0.68) (2) There was no statistically significant difference between Indigenous and non-Indigenous people experiencing virologic rebound (aHR 1.03, 95% CI 0.84, 1.27) Benoit et al 2017 [31] Are there differences in all-cause mortality between Indigenous and non-Indigenous people living with HIV?…”

Section: Building Bridgesmentioning

confidence: 99%

Indigenizing our Research

Nicholson

Bratu

McClean

et al. 2021

IJPDS

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The use of data intensive health research has allowed for greater understandings of population health. When conducting data intensive health research, engaging and involving the community is essential for conducting meaningful research that is responsive to the public’s needs. Particularly, when engaging Indigenous communities in research, there is a need to understand historical and ongoing impacts of colonialism and recognize the strengths in Indigenous Peoples’ knowledges and experiences while supporting Indigenous leadership and self-determination in research. This article describes the approach our research team/organization used to engage and involve Indigenous people living with HIV in three research projects using large, linked datasets and looking at HIV outcomes of Indigenous populations in Canada. The foundation of these projects was simultaneously: 1) supporting Indigenous people living with HIV to be involved as research team members, 2) developing research questions to answer with available datasets, and 3) integrating Indigenous and Western ways of knowing. We have identified important considerations and suggestions for engaging and involving Indigenous communities and individuals in the generation of research ideas and analysis of linked data using community-based participatory research approaches through our work. These include engaging stakeholders at the start of the project and involving them throughout the research process, honouring Indigenous ways of knowing, the land, and local protocols and traditions, prioritizing Indigenous voices, promoting co-learning and building capacity, and focusing on developing longitudinal relationships. We describe keys to success and learnings that emerged. Importantly, the methodology practiced and presented in this manuscript is not a qualitative study design whereby research subjects are surveyed about their experiences or beliefs. Rather, the study approach described herein is about engaging people with living experience to co-lead as researchers. Our approach supported Indigenous people to share research that addresses their research priorities and responds to issues relevant to Indigenous Peoples and communities.

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Increased mortality among Indigenous persons in a multisite cohort of people living with HIV in Canada

Cited by 7 publications

References 24 publications

Applications of Two-Eyed Seeing in Primary Research Focused on Indigenous Health: A Scoping Review

Applications of Two-Eyed Seeing in Primary Research Focused on Indigenous Health: A Scoping Review

A Comparison of Virological Suppression and Rebound between Indigenous and Non-Indigenous Persons Initiating Combination Antiretroviral Therapy in a Multisite Cohort of Individuals Living with HIV in Canada

Indigenizing our Research

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