Information about Support Services for Families of Young Children with Hearing Loss: A Review of Some Useful Outcomes and Challenges

Eleweke, C. Jonah; Gilbert, Sharon L.; Bays, Debbie; Austin, Ellen

doi:10.1179/146431508790559715

Cited by 18 publications

(7 citation statements)

References 54 publications

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“…A 3D model would best represent the interaction and merging of the conceptual framework and the environment to support it. has an important role in helping parents provide assistance to their children (Åsberg, Vogel, & Bowers, 2007;Bradham, Houston, Guignard, & Hoffman, 2011;Brown & Remine, 2008;Dalzell, Nelson, Haigh, Williams, & Monti, 2007;Eleweke, Gilbert, & Bays, 2008;Fitzpatrick, Graham, Durieux-Smith, Angus, & Coyle, 2007;Fitzpatrick, 2010;Hardonk et al, 2013;Jackson, Wegner, & Turnbull, 2010;Larson, Munoz, DesGeorges, Nelson, & Kennedy, 2012;Lederberg & Golbach, 2002;Muñoz, Blaiser, & Barwick, 2013;Poon & Zaidman-Zait, 2014;Sipal & Sayin, 2012). When a child is diagnosed with a hearing loss, the majority of these children will be born to parents with typical hearing who were not expecting the diagnosis (Bagatto, Scollie, Hyde, & Seewald, 2010;Mitchell & Karchmer, 2004 The international consensus document provided the impetus for this research study.…”

Section: Future Directionsmentioning

confidence: 99%

Parent-to-Parent Support for Parents With Children Who Are Deaf or Hard of Hearing: A Conceptual Framework

2014

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The goals of this project were to: (1) identify the constructs and components of a conceptual framework of parent-to-parent support for parents of children who are deaf or hard of hearing (D/HH); and (2) invite a panel of international experts to provide personal judgment on the conceptual framework.In a dual-stage scoping review methodology, the first project identified, extracted, and organized data into libraries of thematic and descriptive content. A conceptual framework of parent-to-parent support for parents of children who are D/HH was developed and presented in a comprehensive, bidirectional informational graphic.A modified eDelphi study satisfied the consultation and second stage of the scoping review. Hand-picked experts (from seven countries) with experience in provision, research or experience in the area of parent-to-parent support participated in the revision of the original conceptual framework. KeywordsScoping review, eDelphi, parent-to-parent support, children with hearing loss, deaf or hard of hearing, conceptual framework iii Co-authorship Statement

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Section: Future Directionsmentioning

confidence: 99%

Parent-to-Parent Support for Parents With Children Who Are Deaf or Hard of Hearing: A Conceptual Framework

2014

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“…Following the steps of BCW, the current study identified that the provision of individualised information and support to families of children with HL needs to be improved in order to provide a family-centred service during the transition to EI. Similar to the current study, literature has previously identified that parents of children with HL require adequate and individualised information (Eleweke, Gilbert, Bays, & Austin, 2008; and encourage professionals to be sensitive to families' individual needs (Brown, Abu Bakar, Rickards, & Griffin, 2006). Therefore, in the current study, the administration of a needs assessment was identified as an opportunity to meet the needs of families to receive individualised information and support.…”

Section: Discussionsupporting

confidence: 54%

“…Davis, A., Davis, K., & Mencher, G. (2009). Eleweke, C. J., Gilbert, S., Bays, D., & Austin, E. (2008). Information about support services for families of young children with hearing loss: A review of some useful outcomes and challenges.…”

Section: Rationale Aims and An Overview Of The Methodology Of The Tmentioning

confidence: 99%

“…Hearing loss is the most prevalent sensory impairment worldwide (Davis, Davis, & Mencher, 2009) with almost 34 million children being affected by hearing loss (World Health Organization, 2018). Prelingual permanent hearing loss can have a range of potential adverse impacts on both the child and his or her family (Eleweke, Gilbert, Bays, & Austin, 2008). These negative impacts may include: communication difficulties , delayed language acquisition (Schick, De Villiers, De Villiers, & Hoffmeister, 2007), delayed social and emotional development Vogel-Walcutt, Schatschneider, & Bowers, 2011), poorer literacy skills (Tomblin, Oleson, Ambrose, Walker, & Moeller, 2018), slower academic progress (Qi & Mitchell, 2012), and caregiver burden .…”

Section: Impacts Of Hearing Loss On Children and Their Familiesmentioning

confidence: 99%

“…In addition, families typically need to make these important decisions in a timely manner, often while they are under an extreme amount of stress (Feher-Prout, 1996;. A wealth of information and support is therefore required to support families in the decision-making process during the period from diagnosis of hearing loss to enrolment in early intervention (Eleweke, Gilbert, Bays, & Austin, 2008).…”

Section: Introductionmentioning

confidence: 99%

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Supporting families of children with hearing loss transitioning to early intervention

Nickbakht¹

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Family-centred care (FCC) has long been acknowledged as best practice for meeting the needs of families of children with hearing loss (HL) and improving early intervention (EI) outcomes. Although the literature has reported some gaps in service provision to families of children with HL, and the period from the time of diagnosis to enrolment in EI has been identified as a significant decision-making period, there is a lack of in-depth knowledge regarding families' needs during this period. In addition, no study has addressed the current gaps in FCC for children with HL with or without additional disabilities transitioning to EI. Therefore, the overarching aim of this thesis was to develop a family-centred intervention to support families of children with HL transitioning to EI, using an implementation science approach. The specific aims of this thesis were: (1) to explore families' needs in the transition to EI after diagnosis of HL from both families' and professionals' perspectives; (2) to investigate families' and professionals' perspectives on the provision of FCC in the transition to EI; and (3) to develop a family-centred intervention for children with HL-with or without additional disabilities-transitioning to EI. Chapter 2 describes the overarching framework applied throughout this thesis, the Behaviour Change Wheel (BCW). The BCW is a step-by-step guide for planning interventions that involves three tasks, including (a) understanding the behaviour that needs to be changed (Chapters 3 and 4), (b) identifying intervention options (Chapter 5), and (c) identifying implementation options and content of the intervention (Chapter 6). Chapter 3 explored families' needs in the transition to EI using a qualitative approach incorporating semi-structured interviews with families and professionals. Four major themes were identified from the interviews: (1) families require information that meet their specific xi Financial support This research was supported by an Australian Government Research Training Program Scholarship. The authors acknowledge the financial support of the HEARing CRC, established under the Australian Government's Cooperative Research Centres (CRC) Program. The CRC Program supports industry-led collaborations between industry, researchers and the community.

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Demographics affecting parental expectations from early deaf intervention

Ingber¹,

Dromi²

2009

Deafness Educ. Int.

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Information about Support Services for Families of Young Children with Hearing Loss: A Review of Some Useful Outcomes and Challenges

Abstract: This paper is concerned with reviewing some useful effects of information about

Cited by 18 publications

References 54 publications

Parent-to-Parent Support for Parents With Children Who Are Deaf or Hard of Hearing: A Conceptual Framework

Parent-to-Parent Support for Parents With Children Who Are Deaf or Hard of Hearing: A Conceptual Framework

Supporting families of children with hearing loss transitioning to early intervention

Demographics affecting parental expectations from early deaf intervention

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