Information needs and services for autism in China: is there any gap between them?

Lu, Quan; Song, Bixuan; Chen, Jing; Xie, Iris; Shen, Yutian

doi:10.1108/ajim-11-2020-0370

Cited by 4 publications

(1 citation statement)

References 43 publications

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“…Previous studies on ODCs have mostly focused on a single disease community such as cancer [ 14 ], diabetes [ 11 ], autism [ 15 ], and so on. There are few comparative studies on diseases in different communities.…”

Section: Introductionmentioning

confidence: 99%

Do Informational and Emotional Elements Differ between Online Psychological and Physiological Disease Communities in China? A Comparative Study of Depression and Diabetes

Yao

Zhang

et al. 2022

IJERPH

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Disease-specific online health communities provide a convenient and common platform for patients to share experiences, change information, provide and receive social support. This study aimed to compare differences between online psychological and physiological disease communities in topics, sentiment, participation, and emotional contagion patterns using multiple methods as well as to discuss how to satisfy the users’ different informational and emotional needs. We chose the online depression and diabetes communities on the Baidu Tieba platform as the data source. Topic modeling and theme coding were employed to analyze discussion preferences for various topic categories. Sentiment analysis was used to identify the sentiment polarity of each post and comment. The social network was used to represent the users’ interaction and emotional flows to discover the differences in participation and emotional contagion patterns between psychological and physiological disease communities. The results revealed that people affected by depression focused more on their symptoms and social relationships, while people affected by diabetes were more likely to discuss treatment and self-management behavior. In the depression community, there were obvious interveners spreading positive emotions and more core users in the negative emotional contagion network. In the diabetes community, emotional contagion was less prevalent and core users in positive and negative emotional contagion networks were basically the same. The study reveals insights into the differences between online psychological and physiological disease communities, providing a greater understanding of the users’ informational and emotional needs expressed online. These results are helpful for society to provide actual medical assistance and deploy health interventions based on disease types.

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Section: Introductionmentioning

confidence: 99%

Do Informational and Emotional Elements Differ between Online Psychological and Physiological Disease Communities in China? A Comparative Study of Depression and Diabetes

Yao

Zhang

et al. 2022

IJERPH

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Trends in information behavior research, 2016–2022: An Annual Review of Information Science and Technology paper

Huvila,

Gorichanaz

2024

Asso for Info Science & Tech

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Research on how people look for and interact with information has a long history in the information field. The current literature has been repeatedly reviewed in earlier volumes of Annual Review of Information Science and Technology. In this review, we offer an overview of the research published in this area in the years 2016–2022 with a focus on the trends that have emerged in this period. We use the term “information behavior” as an umbrella for the research area interested in how people become informed and engage with information in diverse manners acknowledging that different researchers and subfields prefer other terms and frameworks, including information practices, information experience, and health information seeking, to name a few. We reviewed 1270 articles in the field published in the years 2016–2022 and identified seven emerging trends: The CoVID‐19 Pandemic, Diversity and Inclusion, Embodiment, Misinformation and Trust, Social Q&A Websites, Collaboration, and Information Creation. The reviewed literature and trends are discussed in relation to their significance for information, earlier review of information behavior research, and the long‐debated issue of theory‐driven versus atheoretical research in the field.

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A pilot study of Chinese parents’ perceptions of friendships in autistic children

Fu,

Ma,

et al. 2024

International Journal of Developmental Disabilities

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Information needs and services for autism in China: is there any gap between them?

Cited by 4 publications

References 43 publications

Do Informational and Emotional Elements Differ between Online Psychological and Physiological Disease Communities in China? A Comparative Study of Depression and Diabetes

Do Informational and Emotional Elements Differ between Online Psychological and Physiological Disease Communities in China? A Comparative Study of Depression and Diabetes

Trends in information behavior research, 2016–2022: An Annual Review of Information Science and Technology paper

A pilot study of Chinese parents’ perceptions of friendships in autistic children

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