Initial development of the Symptom Screening in Pediatrics Tool (SSPedi)

Tomlinson, Deborah; Dupuis, L. Lee; Gibson, Paul; Johnston, Donna L.; Portwine, Carol; Baggott, Christina; Zupanec, Sue; Watson, J. B. G.; Spiegler, Brenda J.; Kuczynski, Susan; Macartney, Gail; Sung, Lillian

doi:10.1007/s00520-013-1945-x

Cited by 55 publications

(57 citation statements)

References 26 publications

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“…The monitoring system based on the rule-set was tested in a randomized control trial, which showed the preliminary effectiveness of rule-set-based e-systems [63]. Nominal group technique has also recently been used to develop consensus on the needed elements of an electronic symptom assessment questionnaire for children with cancer [64]. The authors of this study were able to develop a preliminary version of a new assessment tool and attributed a part of the success to the use of nominal group technique.…”

Section: Discussionmentioning

confidence: 99%

A Smartphone-Based Pain Management App for Adolescents With Cancer: Establishing System Requirements and a Pain Care Algorithm Based on Literature Review, Interviews, and Consensus

Jibb¹,

Stevens²,

Nathan³

et al. 2014

JMIR Res Protoc

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BackgroundPain that occurs both within and outside of the hospital setting is a common and distressing problem for adolescents with cancer. The use of smartphone technology may facilitate rapid, in-the-moment pain support for this population. To ensure the best possible pain management advice is given, evidence-based and expert-vetted care algorithms and system design features, which are designed using user-centered methods, are required.ObjectiveTo develop the decision algorithm and system requirements that will inform the pain management advice provided by a real-time smartphone-based pain management app for adolescents with cancer.MethodsA systematic approach to algorithm development and system design was utilized. Initially, a comprehensive literature review was undertaken to understand the current body of knowledge pertaining to pediatric cancer pain management. A user-centered approach to development was used as the results of the review were disseminated to 15 international experts (clinicians, scientists, and a consumer) in pediatric pain, pediatric oncology and mHealth design, who participated in a 2-day consensus conference. This conference used nominal group technique to develop consensus on important pain inputs, pain management advice, and system design requirements. Using data generated at the conference, a prototype algorithm was developed. Iterative qualitative testing was conducted with adolescents with cancer, as well as pediatric oncology and pain health care providers to vet and refine the developed algorithm and system requirements for the real-time smartphone app.ResultsThe systematic literature review established the current state of research related to nonpharmacological pediatric cancer pain management. The 2-day consensus conference established which clinically important pain inputs by adolescents would require action (pain management advice) from the app, the appropriate advice the app should provide to adolescents in pain, and the functional requirements of the app. These results were used to build a detailed prototype algorithm capable of providing adolescents with pain management support based on their individual pain. Analysis of qualitative interviews with 9 multidisciplinary health care professionals and 10 adolescents resulted in 4 themes that helped to adapt the algorithm and requirements to the needs of adolescents. Specifically, themes were overall endorsement of the system, the need for a clinical expert, the need to individualize the system, and changes to the algorithm to improve potential clinical effectiveness.ConclusionsThis study used a phased and user-centered approach to develop a pain management algorithm for adolescents with cancer and the system requirements of an associated app. The smartphone software is currently being created and subsequent work will focus on the usability, feasibility, and effectiveness testing of the app for adolescents with cancer pain.

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Section: Discussionmentioning

confidence: 99%

A Smartphone-Based Pain Management App for Adolescents With Cancer: Establishing System Requirements and a Pain Care Algorithm Based on Literature Review, Interviews, and Consensus

Jibb¹,

Stevens²,

Nathan³

et al. 2014

JMIR Res Protoc

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“…129,130 Once/week SSPedi SSPedi is a pediatric cancer-specific symptom screening and assessment scale measuring physical and psychological symptoms (eg, feeling angry, sad or worried, tired, mouth sores, headache, constipation or diarrhea, problems thinking or remembering, body changes, or appetite loss, among others) in 15 questions. [131][132][133] with a proxy version. 134 The SSPedi is also used in a pediatric HSCT population.…”

Section: Dailymentioning

confidence: 99%

Acupressure to Reduce Treatment-Related Symptoms for Children With Cancer and Recipients of Hematopoietic Stem Cell Transplant: Protocol for a Randomized Controlled Trial

Lown

Banerjee

Vittinghoff

et al. 2019

Glob Adv Health Med

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Background: We describe the study design and protocol of a pragmatic randomized controlled trial (RCT) Acupressure for Children in Treatment for a Childhood Cancer (ACT-CC). Objective: To describe the feasibility and effectiveness of an acupressure intervention to decrease treatment-related symptoms in children in treatment for cancer or recipients of a chemotherapy-based hematopoietic stem cell transplant (HSCT). Design: Two-armed RCTs with enrollment of 5 to 30 study days. Setting: Two pediatric teaching hospitals. Patients: Eighty-five children receiving cancer treatment or a chemotherapy-based HSCT each with 1 parent or caregiver. Intervention: Patients are randomized 1:1 to receive either usual care plus daily professional acupressure and caregiver delivered acupressure versus usual care alone for symptom management. Participants receive up to 20 professional treatments. Main Outcome: A composite nausea/vomiting measure for the child.

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“…Active symptom screening is important to institute treatment and prophylactic approaches in a timely fashion, thus improving quality of life. We previously noted the lack of adequate symptom screening tools available for paediatric patients with cancer 6 7. Consequently, we began the process of developing a new symptom screening tool,7 leading to the development of paper-based Symptom Screening in Pediatrics Tool (SSPedi) for use in paediatric cancer.…”

Section: Introductionmentioning

confidence: 99%

“…We previously noted the lack of adequate symptom screening tools available for paediatric patients with cancer 6 7. Consequently, we began the process of developing a new symptom screening tool,7 leading to the development of paper-based Symptom Screening in Pediatrics Tool (SSPedi) for use in paediatric cancer. SSPedi asks about the degree to which 15 symptoms bothered the child yesterday or today on a 5-point Likert scale ranging from ‘not at all bothered’ to ‘extremely bothered’.…”

Section: Introductionmentioning

confidence: 99%

Evaluation of the electronic self-report Symptom Screening in Pediatrics Tool (SSPedi)

OʼSullivan

Dupuis

Gibson

et al. 2016

BMJ Support Palliat Care

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Initial development of the Symptom Screening in Pediatrics Tool (SSPedi)

Abstract: This study identified the lack of an appropriate symptom screening tool for use by pediatric cancer patients. A preliminary version of SSPedi was developed. Subsequent work will ensure that it is understandable by children and evaluate its psychometric properties.

Cited by 55 publications

References 26 publications

A Smartphone-Based Pain Management App for Adolescents With Cancer: Establishing System Requirements and a Pain Care Algorithm Based on Literature Review, Interviews, and Consensus

A Smartphone-Based Pain Management App for Adolescents With Cancer: Establishing System Requirements and a Pain Care Algorithm Based on Literature Review, Interviews, and Consensus

Acupressure to Reduce Treatment-Related Symptoms for Children With Cancer and Recipients of Hematopoietic Stem Cell Transplant: Protocol for a Randomized Controlled Trial

Evaluation of the electronic self-report Symptom Screening in Pediatrics Tool (SSPedi)

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