Integrating renal nutrition guidelines into daily family life: a qualitative exploration

Abstract

Family members who cooked found the integration of renal nutrition guidelines challenging, with children presenting further challenges. The present study highlights the need to offer practical and psychological support to families who are coping with end-stage renal failure and renal nutritional guidelines.

How do patients and carers make sense of renal dietary advice? A qualitative exploration

“…One of the key findings from this study was that there is a long lasting emotional impact that results from receiving renal diet advice, and an ongoing emotional burden associated with applying this advice. Similar to previous research (White & Grenyer 1999;Low et al 2014;Lo et al 2016;Morris et al 2017), patients felt poorly equipped to deal with the challenges and complexity of dietary changes required. Interestingly, the emotional experience of carers was similar to that of patients.…”

“…; Meuleman et al ; Palmer et al . ; Morris et al ). However, what is novel about the present study findings is that the use of ‘signposting’ could help to overcome these barriers.…”

“…; Morris et al . ), patients felt poorly equipped to deal with the challenges and complexity of dietary changes required. Interestingly, the emotional experience of carers was similar to that of patients.…”

The challenge of nutritional management in people with kidney disease

“…Integrating the renal diet into normal life is particularly challenging in situations outside the home, such as at work or in social situations , but also necessitates changes within the family. This can require education and increased awareness among other family members who prepare and cook food, and wider accommodation to a restricted diet among the whole family if a child has renal disease .…”

Celebrating international dietetic research

“…In 2018, we published 79 articles, which were broadly in the themes of clinical nutrition, dietetic and professional practice, diabetes and the metabolic syndrome, public health nutrition, nutrition support, nutritional monitoring, weight management, pregnancy and paediatrics. Our clinical nutrition portfolio has included a strong series of papers on renal nutrition, ranging from qualitative evaluations of how renal nutrition guidelines can be integrated into normal family life , to data providing evidence that female patients are at greater risk of sarcopenia in haemodialysis than males . For nutritional support and monitoring, we have published papers on the use of blended diets for gastronomy fed children and the successful use of novel smartphone applications for following up patients following bariatric surgery .…”