Interdisciplinary Perinatal Palliative Care Coordination, Birth Planning, and Support of the Team

Jones, Emilie Lamberg; Leuthner, Steven R.

doi:10.1007/978-3-030-34751-2_15

Cited by 4 publications

(4 citation statements)

References 37 publications

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“…The birth plan was a helpful tool that structured actions at a time of stress associated with childbirth. This is corroborated by other studies, in which birth planning helps to fulfil the parental role, develop parental competencies, and is an important tool to establish a trusting relationship with the interdisciplinary medical team [30][31][32][33].…”

Section: Discussionsupporting

confidence: 72%

This birth is difficult but beautiful — parents’ experience of giving birth to a baby with a lethal foetal diagnosis

Tataj-Puzyna,

Szlendak,

Szabat

et al. 2023

Palliat Med Pract

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Section: Discussionsupporting

confidence: 72%

This birth is difficult but beautiful — parents’ experience of giving birth to a baby with a lethal foetal diagnosis

Tataj-Puzyna,

Szlendak,

Szabat

et al. 2023

Palliat Med Pract

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“…This group of parents was therefore able to develop trust‐based relationships with other parents and specialists, articulating goals and the steps to their realization. Studies confirm this: the birth preparation is limited to filling out a document, but is a process unfolding in time (Lamberg Jones & Leuthner, 2020).…”

Section: Discussionmentioning

confidence: 96%

Parental experiences of prenatal education when preparing for labor and birth of infant with a lethal diagnosis

Tataj‐Puzyna,

Baranowska,

Szlendak

et al. 2023

Nursing Open

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AimThe aim of this study was to describe the unique experiences of parents facing a Life Limiting Fetal Conditions (LLFC) diagnosis, who chose to continue with their pregnancy, as they prepare for childbirth through individual and group prenatal education.DesignA qualitative study.MethodsWe employed the phenomenological approach and the Colaizzi strategy to analyse semi‐structured interviews. Thirteen persons were interviewed. The participants were couples (n = 6) and women (n = 7) who received LLFC and were preparing for birth.ResultsWe described three main paths of prenatal education chosen by parents with LLFC: 'Searching for normality' concerned people participating in conventional prenatal classes (AC) who tried to avoid confronting the situation they faced; ‘Searching for communitas’ concerned the participation in special AC selected for the opportunity of sharing experiences; ‘Searching for an individual way’ concerned people who resorted to individual preparation for childbirth, often as a result of delayed planning. Parents should have a choice of various paths of birth preparation, that best meet their preferences.

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“…Examples of such changes include caesarean rather than vaginal delivery, breastfeeding, resuscitation and admission to the neonatal intensive care unit. Although parents may understand the necessity of such changes, 56 the emotional consequences of these can be complex and overwhelming.…”

Section: Discussionmentioning

confidence: 99%

‘You have a little human being kicking inside you and an unbearable pain of knowing there will be a void at the end’: A meta-ethnography exploring the experience of parents whose baby is diagnosed antenatally with a life limiting or life-threatening condition

Tatterton

Fisher

2023

Palliat Med

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Background: Parents of babies diagnosed with life limiting conditions in the perinatal period face numerous challenges. Considerations include the remainder of the pregnancy, delivery of the baby and decisions around care in the neonatal period. Aim: To increase understanding of how parents experience the diagnosis of a life-limiting or life-threatening condition, during pregnancy and following the birth of their baby, by answering the question: ‘what is known about the perinatal experiences of parents of babies with a life-limiting or life-threatening diagnosis?’ Design: A meta-ethnography was conducted to synthesise findings from existing qualitative evidence. Data sources: British Nursing Database, CINAHL, Medline, PsycINFO and Embase databases were searched in January 2023. Findings: Relationships between parents and their families and friends, and with professionals influence the needs and experiences of parents, which oscillate between positive and negative experiences, throughout parents’ perinatal palliative care journey. Parents highlighted the need for control and a sense of normality relating to their parenting experience. Validation was central to the experience of parents at all stages of parenthood. Relationships between the parent and the baby were unwavering, underpinned with unconditional love. Conclusion: Professionals, family members and friendship groups influence the experience, validating parents and their baby’s identity and supporting parents in having a sense of control and normality by demonstrating empathy, and providing time and clear communication.

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Interdisciplinary Perinatal Palliative Care Coordination, Birth Planning, and Support of the Team

Cited by 4 publications

References 37 publications

This birth is difficult but beautiful — parents’ experience of giving birth to a baby with a lethal foetal diagnosis

This birth is difficult but beautiful — parents’ experience of giving birth to a baby with a lethal foetal diagnosis

Parental experiences of prenatal education when preparing for labor and birth of infant with a lethal diagnosis

‘You have a little human being kicking inside you and an unbearable pain of knowing there will be a void at the end’: A meta-ethnography exploring the experience of parents whose baby is diagnosed antenatally with a life limiting or life-threatening condition

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