Internalized and Anticipated Stigmatization in Patients With Gout

Kleinstäuber, Maria; Wolf, Leonie; Jones, A.; Dalbeth, Nicola; Petrie, Keith J.

doi:10.1002/acr2.11095

Cited by 14 publications

(10 citation statements)

References 14 publications

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“… 32 A cross-sectional study revealed that 26.0% of the patients experienced internalized stigma. 33 Thus, healthcare providers should consider the mental health of patients and provide strategies to help them overcome negative emotions.…”

Section: Discussionmentioning

confidence: 99%

Potential Development of a Mobile Application for Gout Self-Management: What Support Do Patients Need?

Yin¹,

Wang²,

Fan³

et al. 2021

PPA

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Purpose With the increasing prevalence and chronic course of gout, the use of mobile health (mHealth) applications (APPs) for gout self-management is attracting considerable research attention as an effective approach to improving health outcomes. However, there is limited knowledge regarding the self-management support that a mHealth APP for gout should provide to patients according to their needs. The aim of this study was to interview patients with gout and identify their needs with respect to gout self-management support. Patients and Methods We conducted qualitative research using a purposive sampling method from January 2019 to August 2019. Individual face-to-face semi-structured interviews were conducted with patients recruited from West China Hospital in Sichuan, China. The qualitative data were transcribed verbatim and analyzed by thematic analysis. Results Ten male patients with gout were included in the final analysis. Instrumental, psychological, and relational support emerged as themes describing the needs of patients for gout self-management support. The instrumental support included health education, hospital registration, setting reminders, and shopping. Psychological support referred to helping patients mitigate various negative emotions. Relational support included interactions with healthcare providers and fellow patients. Conclusion The present findings indicate that healthcare providers or companies should develop mHealth APPs for gout self-management based on the needs of patients.

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Section: Discussionmentioning

confidence: 99%

Potential Development of a Mobile Application for Gout Self-Management: What Support Do Patients Need?

Yin¹,

Wang²,

Fan³

et al. 2021

PPA

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Section: How Can We Manage Gout Better?mentioning

confidence: 99%

“…76 The persistent contemporary cultural narratives about the role of dietary and alcohol excess as the cause of disease lead to excessive focus on dietary solutions as the primary approach to manage gout and can create stigma and embarrassment about the condition. 152,153 Health systems and health care professionals play an important role in enabling adherence and improving gout care. Low-cost pharmacy interventions have shown modest improvements.…”

Section: Renal Diseasementioning

confidence: 99%

A glance into the future of gout

Sivera

Andrés

Dalbeth

2022

Therapeutic Advances in Musculoskeletal

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Gout is characterized by monosodium urate (MSU) crystal deposits in and within joints. These deposits result from persistent hyperuricaemia and most typically lead to recurrent acute inflammatory episodes (gout flares). Even though some aspects of gout are well characterized, uncertainties remain; this upcoming decade should provide further insights into many of these uncertainties. Synovial fluid analysis allows for the identification of MSU crystals and unequivocal diagnosis. Non-invasive methods for diagnosis are being explored, such as Raman spectroscopy and imaging modalities. Both ultrasound and dual-energy computed tomography (DECT) allow the detection of MSU crystals; this not only provides a mean of diagnosis, but also has furthered gout knowledge defining the presence of a preclinical deposition in asymptomatic hyperuricaemia. Scientific consensus establishes the beginning of gout as the beginning of symptoms (usually the first flare), but the concept is currently under review. For effective long-term gout management, the main goal is to promote crystal dissolution treatment by reducing serum urate below 6 mg/dL (or 5 mg/dL if faster crystal dissolution is required). Current urate-lowering therapies’ (ULTs) options are limited, with allopurinol and febuxostat being widely available, and probenecid, benzbromarone, and pegloticase available in some regions. New xanthine oxidase inhibitors and, especially, uricosurics inhibiting urate transporter URAT1 are under development; it is probable that the new decade will see a welcomed increase in the gout therapeutic armamentarium. Cardiovascular and renal comorbidities are common in gout patients. Studies determining whether optimal treatment of gout will positively impact these comorbidities are currently lacking, but will hopefully be forthcoming. Overall, the single change that will most impact gout management is greater uptake of international rheumatology society recommendations. Innovative strategies, such as nurse-led interventions based on these recommendations have recently demonstrated treatment success for people with gout.

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“…Consistent with depictions of the illness in historical art and literature [ 5 ], gout is widely viewed in contemporary society as a humorous, self-inflicted condition caused by dietary excess [ 6 ]. These views can contribute to stigma and embarrassment about gout [ 7 ], and influence patients’ lay beliefs or illness perceptions [ 8 ]. Inaccurate beliefs about gout can also lead to ineffective management strategies, and contribute to worse outcomes [ 8 , 9 ].…”

Section: Introductionmentioning

confidence: 99%

“An apple pie a day does not keep the doctor away”: Fictional depictions of gout in contemporary film and television

2021

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Background Fictional portrayals of illness and medical management in film and television can reflect and perpetuate cultural stereotypes about illness. The aim of this study was to analyse fictional depictions of gout in contemporary film and television. Methods We conducted a search for English language depictions of gout in film and television since 1990 using the Internet Movie Database (IMDb), other internet media databases, and member suggestions from the Gout, Hyperuricemia and Crystal-Associated Disease Network (G-CAN). Film and television episodes with gout content were analysed for depictions of characters with gout, causal factors, and management strategies (n=44). Results Gout was used to denote royalty or nobility in historical settings, and as a plot device to explain the absence of characters from key events. The most commonly depicted causes of gout were overindulgence of food and alcohol (61%), and portrayals of biological causes were infrequent (12%). Common management strategies were change in diet (36%) and short-term pain relief (32%), with only one mention of urate-lowering therapy (5%). The majority of films and television episodes depicted gout as humorous (59%) and embarrassing (50%). Conclusions In contemporary film and television, gout is portrayed as a humorous and embarrassing condition, caused by dietary indulgence. These depictions may reinforce inaccurate beliefs about the causes of gout and its management.

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Internalized and Anticipated Stigmatization in Patients With Gout

Cited by 14 publications

References 14 publications

Potential Development of a Mobile Application for Gout Self-Management: What Support Do Patients Need?

Potential Development of a Mobile Application for Gout Self-Management: What Support Do Patients Need?

A glance into the future of gout

“An apple pie a day does not keep the doctor away”: Fictional depictions of gout in contemporary film and television

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