Interoperability Architecture of the ADLIFE Patient Empowerment Platform

Ertürkmen, Gökçe Banu Laleci; Yuksel, Mustafa; Baskaya, Mert; Sarigul, Bunyamin; Teoman, Alper; Yılmaz, Gökhan; Manuel, Esteban de

doi:10.3233/shti210316

Cited by 3 publications

(2 citation statements)

References 3 publications

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“…In the following sections we will be focusing on presenting the details of the implementation of PROMs, symptom reporting questionnaires, shared decision-making processes and decision aids in the ADLIFE architecture. The overall details of ADLIFE PEP platform are presented in [37].…”

Section: Technical Implementation Of Proms and Decision Aids In Adlif...mentioning

confidence: 99%

Design, Implementation and Usability analysis of Patient Empowerment in ADLIFE project via Patient Reported Outcome Measures and Shared Decision Making

Ertürkmen

Juul

Redondo

et al. 2023

Preprint

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Introduction: This paper outlines the design, implementation, and usability study results of the patient empowerment process for chronic disease management, using Patient Reported Outcome Measurements and Shared Decision-Making Processes. Background The ADLIFE project aims to develop innovative, digital health solutions to support personalized, integrated care for patients with severe long-term conditions such as Chronic Obstructive Pulmonary Disease, and/or Chronic Heart Failure. Successful long-term management of patients with chronic conditions requires active patient self-management and a proactive involvement of patients in their healthcare and treatment. This calls for a patient-provider partnership within an integrated system of collaborative care, supporting self-management, shared-decision making, collection of patient reported outcome measures, education, and follow-up. Methods ADLIFE follows an outcome-based and patient-centered approach where PROMs represent an especially valuable tool to evaluate the outcomes of the care delivered. We have selected 11 standardized PROMs for evaluating the most recent patients’ clinical context, enabling the decision-making process, and personalised care planning. ADLIFE project implements the "SHARE approach’ for enabling shared decision-making via two digital platforms for healthcare professionals and patient. We have successfully integrated PROMs and shared decision-making processes to our digital toolbox, based on an international interoperability standard, namely HL7 FHIR. A usability study was conducted with 3 clinical sites with 20 users in total to gather feedback and to subsequently prioritize updates to the ADLIFE toolbox. Results User satisfaction is measured in the QUIS7 questionnaire on a 9-point scale in the following aspects: overall reaction, screen, terminology and tool feedback, learning, multimedia, training material and system capabilities. With all the average scores above 6 in all categories, most respondents have a positive reaction to the ADLIFE PEP platform and find it easy to use. We have identified shortcomings and have prioritized updates to the platform before clinical pilot studies are initiated. Conclusions Having finalized design, implementation, and pre-deployment usability studies, and updated the tool based on further feedback, our patient empowerment mechanisms enabled via PROMs and shared decision-making processes are ready to be piloted in clinal settings. Clinical studies will be conducted based at six healthcare settings across Spain, UK, Germany, Denmark, and Israel.

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Section: Technical Implementation Of Proms and Decision Aids In Adlif...mentioning

confidence: 99%

Design, Implementation and Usability analysis of Patient Empowerment in ADLIFE project via Patient Reported Outcome Measures and Shared Decision Making

Ertürkmen

Juul

Redondo

et al. 2023

Preprint

Self Cite

View full text Add to dashboard Cite

show abstract

“…Profiling can also include descriptions of choreographies, business rules and constraints, as in Integrating the Healthcare Enterprise (IHE) Profiles [10]. Although profiling is frequently used in applications in healthcare domain [11], it has also been adapted in different domains such as emergency management, disaster management and maritime surveillance [12,13].…”

Section: Introductionmentioning

confidence: 99%

Implementation of HL7 FHIR-Based Interoperability Profiles to Manage Care Plans for Multimorbid Patients with Mild Dementia

Gençtürk

Akpinar

Ertürkmen

2023

Caring Is Sharing – Exploiting the Value in Data for Health and Innovation

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Management of multimorbidity in patients with mild dementia and mild cognitive impairment introduces additional challenges. The CAREPATH project provides an integrated care platform to assist both healthcare professionals and patients and their informal caregivers in the day-to-day management of care plans for this patient population. This paper introduces an HL7 FHIR-based interoperability approach for exchanging care plan action and goals with the patients and collecting feedback and adherence information from patients. In this way, seamless information exchange between healthcare professionals, patients and their informal care givers is achieved to support patients in their self-care management journey and increase their adherence to their care plans despite the burdens of mild dementia.

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Design, implementation and usability analysis of patient empowerment in ADLIFE project via patient reported outcome measures and shared decision making

Erturkmen,

Juul,

Redondo

et al. 2024

BMC Med Inform Decis Mak

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Introduction This paper outlines the design, implementation, and usability study results of the patient empowerment process for chronic disease management, using Patient Reported Outcome Measurements and Shared Decision-Making Processes. Background The ADLIFE project aims to develop innovative, digital health solutions to support personalized, integrated care for patients with severe long-term conditions such as Chronic Obstructive Pulmonary Disease, and/or Chronic Heart Failure. Successful long-term management of patients with chronic conditions requires active patient self-management and a proactive involvement of patients in their healthcare and treatment. This calls for a patient-provider partnership within an integrated system of collaborative care, supporting self-management, shared-decision making, collection of patient reported outcome measures, education, and follow-up. Methods ADLIFE follows an outcome-based and patient-centered approach where PROMs represent an especially valuable tool to evaluate the outcomes of the care delivered. We have selected 11 standardized PROMs for evaluating the most recent patients’ clinical context, enabling the decision-making process, and personalized care planning. The ADLIFE project implements the "SHARE approach’ for enabling shared decision-making via two digital platforms for healthcare professionals and patients. We have successfully integrated PROMs and shared decision-making processes into our digital toolbox, based on an international interoperability standard, namely HL7 FHIR. A usability study was conducted with 3 clinical sites with 20 users in total to gather feedback and to subsequently prioritize updates to the ADLIFE toolbox. Results User satisfaction is measured in the QUIS7 questionnaire on a 9-point scale in the following aspects: overall reaction, screen, terminology and tool feedback, learning, multimedia, training material and system capabilities. With all the average scores above 6 in all categories, most respondents have a positive reaction to the ADLIFE PEP platform and find it easy to use. We have identified shortcomings and have prioritized updates to the platform before clinical pilot studies are initiated. Conclusions Having finalized design, implementation, and pre-deployment usability studies, and updated the tool based on further feedback, our patient empowerment mechanisms enabled via PROMs and shared decision-making processes are ready to be piloted in clinal settings. Clinical studies will be conducted based at six healthcare settings across Spain, UK, Germany, Denmark, and Israel.

show abstract

Interoperability Architecture of the ADLIFE Patient Empowerment Platform

Cited by 3 publications

References 3 publications

Design, Implementation and Usability analysis of Patient Empowerment in ADLIFE project via Patient Reported Outcome Measures and Shared Decision Making

Design, Implementation and Usability analysis of Patient Empowerment in ADLIFE project via Patient Reported Outcome Measures and Shared Decision Making

Implementation of HL7 FHIR-Based Interoperability Profiles to Manage Care Plans for Multimorbid Patients with Mild Dementia

Design, implementation and usability analysis of patient empowerment in ADLIFE project via patient reported outcome measures and shared decision making

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