Intersections in HCI, Design and Dementia

Brankaert, Rens; Kenning, Gail; Welsh, Daniel; Foley, Sarah; Hodge, James; Unbehaun, David

doi:10.1145/3301019.3319997

Cited by 13 publications

(5 citation statements)

References 10 publications

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“…Using a positive technology lens, we found that digital technologies such as video-calling software and social media hold great potential to boost social connectedness, well-being and self-actualisation among people with dementia. In line with our critical dementia approach, we recognise that such technologies helped many participants to maintain a sense of self as a contributor to society, whether through digital volunteering or through skills acquisition (cf Brankaert et al, 2019). Our findings suggest that the people with dementia who participated in this study cannot be viewed as passive actors who experienced the pandemic stoically.…”

Section: Discussionmentioning

confidence: 79%

“…Rather than taking a purely cognitive view of the mind and viewing computers as simply tools for work, HCI now embraces the emotional, embodied and cultural aspects of interactions with technologies in everyday life (Lazar et al, 2017). A critical dementia view therefore moves away from solely viewing dementia in terms of loss and disability, but instead recognises the needs of the person and explores how to support their potentiality, abilities, identities and sense of self (Brankaert et al, 2019). We adopt this stance in our work, in which we recognise the situatedness of technology use and value the emotional experiences of people with dementia.…”

Section: Introductionmentioning

confidence: 99%

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The use of digital technologies by people with mild-to-moderate dementia during the COVID-19 pandemic: A positive technology perspective

Talbot

Briggs

2022

Dementia

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A growing body of research has shown that people with dementia are using digital technologies to enhance lived experience. The COVID-19 pandemic has brought new digital opportunities and challenges and so provides a unique opportunity to understand how people with dementia have adapted to this new digital landscape. Semi-structured interviews were conducted with 19 people with dementia and analysed thematically. We generated five themes, showing how participants used digital means to combat the stresses of the pandemic by facilitating social connection, self-actualisation, enhanced well-being and by assisting with activities of daily life. These technologies helped to reduce isolation, provide access to support groups, create opportunities for cognitive stimulation and self-development, and engendered a sense of identity at a time of perceived loss. Despite these benefits, participants also reported challenges regarding cognitive fatigue and usability issues. We recommend that training on how to use digital technologies is co-produced with people with dementia and designers engage with the voices of people with dementia throughout the design process. In turn, this could promote the social connectedness, well-being and self-worth of people with dementia.

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Section: Discussionmentioning

confidence: 79%

Section: Introductionmentioning

confidence: 99%

The use of digital technologies by people with mild-to-moderate dementia during the COVID-19 pandemic: A positive technology perspective

Talbot

Briggs

2022

Dementia

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“…Participatory and co-design projects have innovated many of the methodological approaches to design necessary in order to support people living with dementia to engage meaningfully in co-design processes [44,62]. This includes planning for slower, longer-term projects [34] , working within ecologies of care [14,15,46,95,96], and navigating gate-keeping within institutions [48] .…”

Section: Ethics In Context: Dementia Care and Hcimentioning

confidence: 99%

Relational, Flexible, Everyday: Learning from Ethics in Dementia Research

Hodge

Foley

Brankaert

et al. 2020

Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems

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Engaging in participatory research in HCI raises numerous ethical complexities such as consent, researcher relationships, and participant compensation. Doing HCI work in the area of dementia amplifies these issues, and researchers in this area are modelling ethical stances to ensure researcher-participant relationships focus on meaningful engagement and care. This paper presents an insight into the kinds of ethical foci required when doing design research with people living with dementia and their carers. We interviewed 22 HCI researchers with experience working in dementia care contexts. Our qualitative analysis outlines subsequent lessons-learned, such as recognition of the participants, self -care, research impact, and subjectivity in ethical review boards. Furthermore, we found the complexity of navigating both "everyday" and more formal, institutional ethics in dementia research has implications beyond the context of working with people with dementia and outline key considerations for ethical practices in socially orientated HCI research.

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“…In our project, we found this type of design activity to be most useful and adaptative for care staff who were interested in continuing this type of creative work with residents but didn't have technical design skills. Many design projects in HCI discuss the need for longevity and legacy of short-term projects [2,4,7,13], and encouraging communities of practice to adopt and adapt design methods can ensure that HCI and design play a more central role in person-centred approaches in social care, nursing and community development. Embedding this transfer of skills into research plans can ensure that design research engages in further dialogue with the disciplines and environments in which we work.…”

Section: Giving Design Awaymentioning

confidence: 99%

Student Engagement in Sensitive Design Contexts

Foley

Pantidi

McCarthy

2020

Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems

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There is a growing body of HCI work that seeks to understand and enhance the lived experience of people with dementia. The majority of this work involves researchers working alongside people with dementia and their carers, focused on the design project outcomes. In order to enrich the social context of this work, we explore broadening participation to include student volunteers. To encourage mutually engaging experiences in this design context, careful consideration of how to support both students and people with dementia is needed. In this paper, we present two casestudies of co-design projects between students and people with dementia. Our findings detail the use of design methods to reconfigure the role of the residents in care contexts and the students learning process. We discuss the project learning outcomes as well as practical and ethical considerations to support the use of design methods to support mutual engagement in sensitive contexts.

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Intersections in HCI, Design and Dementia

Cited by 13 publications

References 10 publications

The use of digital technologies by people with mild-to-moderate dementia during the COVID-19 pandemic: A positive technology perspective

The use of digital technologies by people with mild-to-moderate dementia during the COVID-19 pandemic: A positive technology perspective

Relational, Flexible, Everyday: Learning from Ethics in Dementia Research

Student Engagement in Sensitive Design Contexts

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