Interventions to support a palliative care approach in patients with chronic obstructive pulmonary disease: An integrative review

Disler, Rebecca; Currow, David C.; Phillips, Jane; Smith, Tracy; Johnson, Miriam J.; Davidson, Patricia M.

doi:10.1016/j.ijnurstu.2012.02.004

Cited by 35 publications

(44 citation statements)

References 132 publications

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“…In addition to the pharmacological treatment of dyspnea, patient education, relaxation, breathing techniques and exercises are helpful [38,39]. Dyspnea may result in decreased physical activity and thus an inactive lifestyle, resulting in loss of muscle mass and deconditioning, which may further worsen dyspnea [40].…”

Section: Dyspneamentioning

confidence: 99%

“…Benzodiazepine treatment in COPD may be associated with a slightly increased mortality [47,49,50] and its effect on the perception of dyspnea is not fully elucidated [11,38,43]. Benzodiazepines reduce anxiety and can be tried when anxiety is a major component [11,50].…”

Section: Benzodiazepinesmentioning

confidence: 99%

“…However, LTOT may result in immobilization and dry out the mucous membranes, which may outweigh the benefits in some patients. In normoxic patients, it is questionable whether oxygen relieves dyspnea and it is therefore only prescribed as palliation after careful individual assessment [38]. …”

Section: Long-term Oxygen Treatment (Ltot)mentioning

confidence: 99%

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Danish respiratory society position paper: palliative care in patients with chronic progressive non-malignant lung diseases

Marsaa

Gundestrup

Lange

et al. 2018

European Clinical Respiratory Journal

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Background: Chronic non-malignant lung diseases such as chronic obstructive pulmonary disease (COPD) and interstitial lung diseases (ILD) result in reduced quality of life (QoL), a high symptom burden and reduced survival. Patients with chronic non-malignant lung disease often have limited access to palliative care. The symptom burden and the QoL of these patients resembles patients with cancer and the general palliative approach is similar. However, the disease trajectory is often slow and unpredictable, and the palliative effort must be built on accessibility, continuity and professional competences. The Danish Health Authority as well as the WHO recommends that there is access to palliative care for all patients with life-threatening diseases regardless of diagnosis. In 2011, the Danish Health Authority requested that the national medical societies would to formulate guidelines for palliation. Methods: In 2015, a group of members of the Danish Respiratory Society (DRS) was appointed for this purpose. It was composed of experienced ILD and COPD researchers as well as clinicians from different parts of Denmark. A literature review was made, a draft was prepared, and all recommendations were agreed upon unanimously. Results: The Danish version of the position paper was finally submitted for review and accepted by all members of DRS. Conclusion: In this position paper we provide recommendations on the terminology of chronic and terminal lung failure, rehabilitation and palliative care, advanced care planning, informal caregivers and bereavement, symptom management, the imminently dying patient, and organization of palliative care for patients with chronic non-malignant lung diseases.

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Section: Dyspneamentioning

confidence: 99%

Section: Benzodiazepinesmentioning

confidence: 99%

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Danish respiratory society position paper: palliative care in patients with chronic progressive non-malignant lung diseases

Marsaa

Gundestrup

Lange

et al. 2018

European Clinical Respiratory Journal

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show abstract

“…There is growing evidence, however, that appropriate care should combine elements of both active disease management and a palliative approach, as neither model alone can meet the needs of people with advanced chronic disease. [7,43,44] Each model has distinct characteristics which are important for the care of people with advanced chronic disease. CDM is a systems focused care model, incorporating regular review, coordinated healthcare interventions and patient self management.…”

Section: Ageingmentioning

confidence: 99%

Australian health policy and end of life care for people with chronic disease: An analysis

Burgess¹,

Braunack-Mayer²,

Crawford³

et al. 2014

Health Policy

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“…(7) The basis of best practice care for chronic diseases such as COPD is systematic management (8,9) incorporating co-ordinated, multidisciplinary care (10) and the integration of care between the acute and primary care sectors where multiple providers may be involved. (11) However, there are few current models of care that reflect the key elements of best practice COPD care as summarised by Disler et al (12) and which integrate systematic chronic disease management with a palliative approach.…”

Section: What Are the Implications For Practitioners?mentioning

confidence: 99%

Best-practice care for people with advanced chronic obstructive pulmonary disease: the potential role of a chronic obstructive pulmonary disease care co-ordinator

Burgess

Young

Crawford

et al. 2013

Aust. Health Review

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Green Open AccessAll journals published by CSIRO Publishing allow authors to deposit the Accepted version of their manuscript into an institutional repository or put it on a personal website, with no embargo.The Accepted version is the author-created, peer-reviewed, accepted manuscript. The Publisher's edited or typeset versions cannot be used. The institutional repository should be that of the institution employing the author at the time the work was conducted or PubMed Central. We ask that authors link to the published version on the CSIRO Publishing website, wherever possible. The importance of care co-ordination as a quality care indicator in chronic disease is growing, and the care co-ordinator role as a facilitator of quality care is increasingly being recognised in the UK and US. There is currently little information in the Australian context about how a COPD care co-ordinator role could be implemented, where it could be situated and the level of skill required. What does this paper add?This paper explores the specific issues in developing a COPD care co-ordinator role and provides a detailed model of care for the introduction of care coordinators into the Australian setting. What are the implications for practitioners?The proposed COPD care co-ordinator role has the potential to improve quality, continuing care for people with advanced COPD. It could facilitate the linkage of multidisciplinary teams across acute, primary and community care settings and promote timely and effective communication. The role would provide a clear point of contact for all practitioners and the opportunity for nurses to develop an advanced practice role in COPD care co-ordination, combining a palliative care approach with a chronic disease management framework.

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Interventions to support a palliative care approach in patients with chronic obstructive pulmonary disease: An integrative review

Cited by 35 publications

References 132 publications

Danish respiratory society position paper: palliative care in patients with chronic progressive non-malignant lung diseases

Danish respiratory society position paper: palliative care in patients with chronic progressive non-malignant lung diseases

Australian health policy and end of life care for people with chronic disease: An analysis

Best-practice care for people with advanced chronic obstructive pulmonary disease: the potential role of a chronic obstructive pulmonary disease care co-ordinator

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