Language barriers in health and social care consultations in the community: A comparative study of responses in Ireland and England

MacFarlane, Anne; Singleton, Carrie; Green, Eileen

doi:10.1016/j.healthpol.2009.03.014

Cited by 19 publications

(20 citation statements)

References 11 publications

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“…One study of language barriers in social care and interpretation services indicated the need for sensitivity about confidentiality, trust and anonymity if using community‐based interpretation services, ‘while strong local networks have advantages for well‐being in terms of social capital, there may be disadvantages in terms of a “goldfish bowl” effect’ (MacFarlane et al . : 209). For older LGB people, communication difficulties have been associated with disclosing personal history and identity, especially for LGB people living with dementia and for their carers (Price , ; Cronin et al .…”

Section: Limitations Of Mainstream Supportmentioning

confidence: 98%

Section: Limitations Of Mainstream Supportmentioning

confidence: 99%

“…The included studies showed that language barriers remain a major concern for those who are not fluent in English and that interpretation methods are not always effective (MacFarlane et al . ; Merrell et al . ).…”

Section: Limitations Of Mainstream Supportmentioning

confidence: 99%

“…A second theme, language and communication, is a source of enduring difficulties for people from BME communities and for refugees and asylum seekers when accessing mainstream social care services (Moriarty 2008;MacFarlane et al 2009;Merrell et al 2006). The included studies showed that language barriers remain a major concern for those who are not fluent in English and that interpretation methods are not always effective (MacFarlane et al 2009;Merrell et al 2006).…”

Section: Limitations Of Mainstream Supportmentioning

confidence: 99%

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Micro‐provision of Social Care Support for Marginalized Communities – Filling the Gap or Building Bridges to the Mainstream?

Needham

Carr

2015

Soc Policy Adm

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As English social care services reconstruct themselves in response to the personalization agenda, there is increased interest in the contribution of micro‐providers – very small community‐based organizations, which can work directly with individuals. These micro‐providers are assumed to be able to cater for the ‘seldom heard’ groups which have been marginalized within mainstream social care services. This article reviews recent literature from the UK published in peer‐reviewed journals from 2000 to 2013 on support provision for people with protected characteristics under the Equality Act 2010. It considers the marginalising dynamics in mainstream, statutory social care support provision, and how far local community, specialist or small‐scale services are responding to unmet need for support and advice among marginalized groups. The review found that there is a tradition of compensatory self‐organization, use of informal networks and a mobilization of social capital for all these groups in response to marginalization from mainstream, statutory services. This requires recognition and nurturing in ways that do not stifle its unique nature. Specialist and community‐based micro‐providers can contribute to a wider range of choices for people who feel larger, mainstream services are not suitable or accessible. However, the types of compensatory activity identified in the research need recognition and investment, and its existence does not imply that the mainstream should not address marginalization.

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Section: Limitations Of Mainstream Supportmentioning

confidence: 98%

Section: Limitations Of Mainstream Supportmentioning

confidence: 99%

Section: Limitations Of Mainstream Supportmentioning

confidence: 99%

Section: Limitations Of Mainstream Supportmentioning

confidence: 99%

See 2 more Smart Citations

Micro‐provision of Social Care Support for Marginalized Communities – Filling the Gap or Building Bridges to the Mainstream?

Needham

Carr

2015

Soc Policy Adm

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“…Migrants and health professionals across European primary care settings generally rely on family members and friends as informal interpreters and cultural mediators [11,12] with a range of negative consequences for their health processes and outcomes, including a lack of understanding about the consultation outcome, poorer compliance with medication, and a lower satisfaction with the consultation [3-5,14]. Our study is seeking ways to address this problem and to enhance uptake of the available guidelines and training initiatives in routine practice.…”

Section: Introductionmentioning

confidence: 99%

REsearch into implementation STrategies to support patients of different ORigins and language background in a variety of European primary care settings (RESTORE): study protocol

et al. 2012

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BackgroundThe implementation of guidelines and training initiatives to support communication in cross-cultural primary care consultations is ad hoc across a range of international settings with negative consequences particularly for migrants. This situation reflects a well-documented translational gap between evidence and practice and is part of the wider problem of implementing guidelines and the broader range of professional educational and quality interventions in routine practice. In this paper, we describe our use of a contemporary social theory, Normalization Process Theory and participatory research methodology—Participatory Learning and Action—to investigate and support implementation of such guidelines and training initiatives in routine practice.MethodsThis is a qualitative case study, using multiple primary care sites across Europe. Purposive and maximum variation sampling approaches will be used to identify and recruit stakeholders—migrant service users, general practitioners, primary care nurses, practice managers and administrative staff, interpreters, cultural mediators, service planners, and policy makers. We are conducting a mapping exercise to identify relevant guidelines and training initiatives. We will then initiate a PLA-brokered dialogue with stakeholders around Normalization Process Theory’s four constructs—coherence, cognitive participation, collective action, and reflexive monitoring. Through this, we will enable stakeholders in each setting to select a single guideline or training initiative for implementation in their local setting. We will prospectively investigate and support the implementation journeys for the five selected interventions. Data will be generated using a Participatory Learning and Action approach to interviews and focus groups. Data analysis will follow the principles of thematic analysis, will occur in iterative cycles throughout the project and will involve participatory co-analysis with key stakeholders to enhance the authenticity and veracity of findings.DiscussionThis research employs a unique combination of Normalization Process Theory and Participatory Learning and Action, which will provide a novel approach to the analysis of implementation journeys. The findings will advance knowledge in the field of implementation science because we are using and testing theoretical and methodological approaches so that we can critically appraise their scope to mediate barriers and improve the implementation processes.

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The experiences of minority language users in health and social care research: A systematic review

Spencer,

Cooledge,

Hoare

2024

Health Planning & Management

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BackgroundThe planning and management of health policy is directly linked to evidence‐based research. To obtain the most rigorous results in research it is important to have a representative sample. However, ethnic minorities are often not accounted for in research. Migration, equality, and diversity issues are important priorities which need to be considered by researchers. The aim of this systematic review (SR) is to explore the literature examining the experiences of minority language users in Health and Social Care Research (HSCR).MethodA SR of the literature was conducted. SPIDER framework and Cochrane principles were utilised to conduct the review. Five databases were searched, yielding 5311 papers initially. A SR protocol was developed and published in PROSPERO: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42020225114analysis.ResultsFollowing the title and abstract review by two reviewers, 74 papers were included, and a narrative account was provided. Six themes were identified: 1. Disparities in healthcare; 2. Maternal health; 3. Mental health; 4. Methodology in health research; 5. Migrant and minority healthcare; 6. Racial and ethnic gaps in healthcare. Results showed that language barriers (including language proficiency) and cultural barriers still exist in terms of recruitment, possibly effecting the validity of the results. Several papers acknowledged language barriers but did not act to reduce them.ConclusionDespite research highlighting cultures over the past 40 years, there is a need for this to be acknowledged and embedded in the research process. We propose that future research should include details of languages spoken so readers can understand the sample composition to be able to interpret the results in the best way, recognising the significance of culture and language. If language is not considered as a significant aspect of research, the findings of the research cannot be rigorous and therefore the validity is compromised.

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Language barriers in health and social care consultations in the community: A comparative study of responses in Ireland and England

Cited by 19 publications

References 11 publications

Micro‐provision of Social Care Support for Marginalized Communities – Filling the Gap or Building Bridges to the Mainstream?

Micro‐provision of Social Care Support for Marginalized Communities – Filling the Gap or Building Bridges to the Mainstream?

REsearch into implementation STrategies to support patients of different ORigins and language background in a variety of European primary care settings (RESTORE): study protocol

The experiences of minority language users in health and social care research: A systematic review

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