Latin American consensus on the quality indicators for comprehensive care clinics for patients with inflammatory bowel disease: PANCCO-GETECCU

Yamamoto‐Furusho, Jesús K.; Andrade, Débora Dornelas Belchior Costa; Barahona, Jorge; Bautista, S.; Bosques-Padilla, Francisco; Paula, Juan De; Galiano, M.T.; Iade, Beatriz; Baños, Fabián Juliao; Otoya, Guillermo; Steinwurz, Flávio; Torres, Esther A.; Veitía, G; Acosta, Manuel Barreiro‐de

doi:10.1016/j.rgmxen.2021.05.013

Cited by 3 publications

(8 citation statements)

References 17 publications

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“…Regarding diagnostic assessment tools, 39 centers (92.9%) have endoscopic SUPPLEMENTARY TABLE 1. Structural quality indicators in IBD (2,(6)(7)(8) . 1.…”

Section: Resultsmentioning

confidence: 99%

“…The study was carried out in three phases. Firstly, a group of six IBD experts, members of the reference centers committee, representing the five Brazilian regions (one from the North, one from Northeast, one from Midwest, two from Southeast and one from South), developed 24 questions aiming to characterize the CCU in Brazil based on current literature (SUPPLEMENTARY TABLE 1) (2,(6)(7)(8) .…”

Section: Methodsmentioning

confidence: 99%

“…In the second phase, all GEDIIB members were invited to respond the complete survey in which 11 questions (questions: 7; 11-14; 17; 20-24) were considered the most relevant by the committee and in line with the PANCCO (Pan American Crohn's and Colitis Organization) and GETECCU (Spanish Working Group on Crohn's Disease and Ulcerative Colitis) quality criteria (SUPPLEMENTARY TABLE 2) (7) .…”

Section: Methodsmentioning

confidence: 99%

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Structural Evaluation of Inflammatory Bowel Disease Comprehensive Care Units in Brazil

QUARESMA,

GUEDES,

BARROS

et al. 2024

Arq. Gastroenterol.

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Background: The most efficient way to prevent complications from inflammatory bowel disease (IBD) is to provide patients with optimized care. Nonetheless, in Brazil, there is no validated methodology for evaluating health services recognized as comprehensive care units (CCU), making it difficult to assess the quality of care provided. Objective: To understand the current scenario, map the distribution of centers and identify strengths and weaknesses, considering local and regional characteristics. Methods: The study was carried out in three phases. Initially, the Brazilian Organization for Crohn’s disease and colitis (GEDIIB) developed 22 questions to characterize CCU in Brazil. In the second phase, all GEDIIB members were invited to respond to the survey with the 11 questions considered most relevant. In the last phase, an interim analysis of the results was performed, using the IBM SPSS Statistics v 29.0.1.0 software. Descriptive statistics were used to characterize the center’s profile. The chi-square test was used to compare categorical variables. Results: There were 53 responses from public centers (11 excluded). Most centers were concentrated in the Southeastern (n=22/52.4%) and only 1 (2.4%) in the Northern region of Brazil. Thirty-nine centers (92.9%) perform endoscopic procedures, but only 9 (21.4%) have access to enteroscopy and/or small bowel capsule endoscopy. Thirty-three centers (78.6%) offer infusion therapy locally, 26 (61.9%) maintain IBD patient records, 13 (31.0%) reported having an IBD nurse, 34 (81.0%) have specific evidence-based protocols and only 7 (16.7%) have a patient satisfaction methodology. In the private scenario there were 56 responses (10 excluded). There is also a concentration in the Southeastern and Southern regions. Thirty-nine centers (84.8%) have access to endoscopic procedures and 19 perform enteroscopy and/or small bowel capsule endoscopy, more than what is observed in the public environment. Infusion therapy is available in 24 centers (52.2%). Thirty-nine centers (84.8%) maintain a specific IBD patient database, 17 (37%) have an IBD nurse, 36 (78.3%) have specific evidence-based protocols, and 22 (47. 8%) apply a patient satisfaction methodology. Conclusion: IBD CCU in Brazil were mainly located in the Southeastern and Southern regions of the country. Most centers have dedicated multidisciplinary teams and IBD specialists. There is still a current need to improve the proportion of IBD nurses in IBD care in Brazil.

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“…Regarding diagnostic assessment tools, 39 centers (92.9%) have endoscopic SUPPLEMENTARY TABLE 1. Structural quality indicators in IBD (2,(6)(7)(8) . 1.…”

Section: Resultsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

Structural Evaluation of Inflammatory Bowel Disease Comprehensive Care Units in Brazil

QUARESMA,

GUEDES,

BARROS

et al. 2024

Arq. Gastroenterol.

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“…Additionally, it is worth mentioning the creation and publication of guidelines adapted to managing IBD patients from LATAM. [82][83][84][85]…”

Section: Access To Biological Therapies In Mexico Central America And...mentioning

confidence: 99%

IBD barriers across the continents: a continent-specific analysis: Latin America

Queiroz

Martins

Quaresma

et al. 2023

Therap Adv Gastroenterol

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Latin America (LATAM) is a large region comprising 47 countries and territories. Each one carries a different cultural and historical background, diverse political systems, and a particular approach to healthcare management. There is a lack of high-quality data on the epidemiology of inflammatory bowel diseases (IBD) in this region, including broad and detailed information about the penetration of biological and advanced therapies as treatment strategies. From an IBD perspective, patients experience, in general, fragmentations and inequities in the healthcare systems, with different and usually delayed access to qualified health services. This review explores the barriers to accessing IBD care throughout LATAM. The authors compiled data from multiple sources, such as studies focusing on epidemiology, biological penetration, and surgical rates. In addition, overall access to IBD treatments was assessed through a questionnaire distributed to physicians in LATAM via email and direct messaging to capture local perspectives.

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“…En este sentido, se está desarrollando el proyecto desde la Asociación Colombiana de Gastroenterología, para apoyar y certificar a centros de excelencia en la atención de pacientes con EII, con el apoyo de Pan American Crohn's and Colitis Organisation (PANCCO) y del Grupo Español de Trabajo en Enfermedad de Crohn y Colitis Ulcerosa (GETECCU), con el objetivo de brindar una adecuada calidad en la atención, para mejorar los resultados en favor de los pacientes (5) .…”

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Impacto de la educación continua en la mayor difusión del conocimiento sobre la enfermedad inflamatoria intestinal

Parada¹

2022

Rev. colomb. Gastroenterol.

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Latin American consensus on the quality indicators for comprehensive care clinics for patients with inflammatory bowel disease: PANCCO-GETECCU

Cited by 3 publications

References 17 publications

Structural Evaluation of Inflammatory Bowel Disease Comprehensive Care Units in Brazil

Structural Evaluation of Inflammatory Bowel Disease Comprehensive Care Units in Brazil

IBD barriers across the continents: a continent-specific analysis: Latin America

Impacto de la educación continua en la mayor difusión del conocimiento sobre la enfermedad inflamatoria intestinal

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