Life After Stroke and the Key Role of Coordinated Rehabilitation From the Perspective of the Stroke Survivor Families

Abstract

Introduction. Stroke significantly affects the lives of survivors, requiring adaptation to lost capabilities while impacting physical, mental, and emotional well-being. Stroke is a leading cause of acquired disability in adults and a significant contributor to mortality, particularly among older individuals and in low-income countries. A stroke is described as a neurological deficit caused by acute damage to the central nervous system. Aim. The study's main aim was to explore the use of coordinated stroke rehabilitation before, during, and after hospital discharge. It examined components of coordinated rehabilitation, focusing on the needs of the client's family. This study was conducted as part of the GAJU 066/2022/S project and approved by the ethics committee under 6/2022. Materials and methods. This study used a qualitative research approach and semi-structured interviews with family members caring for stroke patients. The data collected was then analyzed using various coding strategies with the assistance of ATLAS.ti software. This rigorous methodology ensured the reliability and validity of the study's findings. Results. The effects of strokes are profound, not only on patients but also on their families and caregivers. Adapting to life after a stroke necessitates significant changes in family dynamics, values, and norms. The importance of effective communication and support from healthcare staff during patient hospitalization cannot be overstated. Respondents highlighted the role of quality care and communication in ensuring a positive hospital stay. However, they also pointed out certain deficiencies, such as delayed stroke diagnosis and inadequate information about post-discharge care and rehabilitation. The study underscored the importance of at-home rehabilitation in familiar environments for functional improvement. Conclusions. Life after a stroke presents a substantial challenge for patients and their families, requiring physical, psychosocial, and emotional adaptation. Coordinated rehabilitation facilitates post-stroke adjustments for patients and families and increases overall quality of life. Improved coordination and communication among healthcare providers, development of multidisciplinary rehabilitation teams, and effective post-discharge monitoring and support systems are essential for comprehensive care tailored to the needs of the patient and their families. Stroke patient family members advocate for enhanced support and services for better rehabilitation and for coping with post-stroke challenges.