“Listen to your body”

Fredriksen, Eva Haukeland; Moland, Karen Marie; Sundby, Johanne

doi:10.1016/j.pec.2008.02.002

Cited by 38 publications

(11 citation statements)

References 8 publications

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“…The findings explore to what extent one should endure; the women participating in the forums advise each other to rest and be careful so as not to make the situation worse. Using wheel chairs or crutches was seen as the worst case scenario and women fear that their condition would not improve after childbirth [22]. Although it is likely that not all the women participating in the Internet forums suffer from PGP, the findings correspond to the experiences of our informants with a diagnosis of PGP.…”

Section: Discussionsupporting

confidence: 59%

“…To our knowledge, there are no previous qualitative publications that investigate the impact of PGP on daily life experienced by pregnant women. A qualitative Norwegian study of women’s contributions to Internet-based discussion forums show that the condition of PGP is perceived as unpredictable and disabling [22]. The findings explore to what extent one should endure; the women participating in the forums advise each other to rest and be careful so as not to make the situation worse.…”

Section: Discussionmentioning

confidence: 99%

“…Additionally, some participants express that their condition is normalized by the health care professionals [20]. The pregnant women’s experiences are sparsely investigated using qualitative methodology; existing studies are using written material regarding experiences of treatment programme [21] and discussions in internet forums [22]. As previously shown, PGP has significant implications [2]; however, few studies have explored the experiences of women affected by PGP.…”

Section: Introductionmentioning

confidence: 99%

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“Struggling with daily life and enduring pain”: a qualitative study of the experiences of pregnant women living with pelvic girdle pain

Persson

Winkvist

Dahlgren

et al. 2013

BMC Pregnancy Childbirth

119

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BackgroundFew studies have investigated the experiences of living with pelvic girdle pain (PGP) and its impact on pregnant women’s lives. To address this gap in knowledge, this study investigates the experiences of women living with PGP during pregnancy.MethodsA purposive sample, of nine pregnant women with diagnosed PGP, were interviewed about their experiences. Interviews were recorded, transcribed to text and analysed using a Grounded Theory approach.ResultsThe core category that evolved from the analysis of experiences of living with PGP in pregnancy was “struggling with daily life and enduring pain”. Three properties addressing the actions caused by PGP were identified: i) grasping the incomprehensible; ii) balancing support and dependence and iii) managing the losses. These experiences expressed by the informants constitute a basis for the consequences of PGP: iv) enduring pain; v) being a burden; vi) calculating the risks and the experiences of the informants as vii) abdicating as a mother. Finally, the informants’ experiences of the consequences regarding the current pregnancy and any potential future pregnancies is presented in viii) paying the price and reconsidering the future. A conceptual model of the actions and consequences experienced by the pregnant informants living with PGP is presented.ConclusionsPGP during pregnancy greatly affects the informant’s experiences of her pregnancy, her roles in relationships, and her social context. For informants with young children, PGP negatively affects the role of being a mother, a situation that further strains the experience. As the constant pain disturbs most aspects of the lives of the informants, improvements in the treatment of PGP is of importance as to increase the quality of life. This pregnancy-related condition is prevalent and must be considered a major public health concern during pregnancy.

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Section: Discussionsupporting

confidence: 59%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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“Struggling with daily life and enduring pain”: a qualitative study of the experiences of pregnant women living with pelvic girdle pain

Persson

Winkvist

Dahlgren

et al. 2013

BMC Pregnancy Childbirth

119

View full text Add to dashboard Cite

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“…The current study has identified how people with chronic disease use personal understanding to make sense of a complex array of information and then use trial and error and risk-taking behaviours before integrating information into the personalised knowledge that underpins how they actually look after their bodies. This finding is not surprising, given that similar research has identified the importance of listening to one's body in this way among pregnant women experiencing pregnancy-related pain (Fredriksen et al 2008).…”

Section: Discussionmentioning

confidence: 63%

‘Listening to my body’ to ‘Look after my body’: a theory of information use for self‐management of chronic obstructive pulmonary disease

Ehrlich¹,

John²,

Kendall³

2010

J of Nursing and Healthcare

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ehrlich c, st john w & kendall e (2010) Journal of Nursing and Healthcare of Chronic Illness2, 262–270 ‘Listening to my body’ to ‘Look after my body’: a theory of information use for self‐management of chronic obstructive pulmonary disease Aim. To report how people with chronic obstructive pulmonary disease (COPD) gather, interpret and apply health affecting information. Background. Some people with COPD manage more effectively than others, presumably because they have better coping skills, life skills and self‐management strategies. A considerable amount of healthcare time and money is invested in delivering information and self‐management training to people with COPD, based on an assumption that education effectively and efficiently promotes positive self‐management behaviour. This assumption is not based on sound knowledge about how individuals acquire and use information to guide their self‐management behaviours. Method. A grounded theory design was used to gather and analyse interview data collected from people with COPD in 2007. An iterative theory‐building approach was used to develop a model that represents how participants used information in their daily self‐management. Conclusions. Everyday self‐management decisions for people with COPD are more than simple treatment choices or compliance with medical regimens. Rather they result from intricate and purposeful interactions between cycles of ‘Listening to my body’ and ‘Looking after my body’ within the context of their daily lives. Relevance to clinical practice. Understanding individual information use patterns will assist health professionals to tailor effective and supportive healthcare information. Health professionals need to consider not only the healthcare needs of an individual, but also the social context within which that person acquires and uses information.

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“…People often look online to 'follow up' on the advice given by health professionals or to seek validation for their own interpretations or feelings. [37][38][39] Responses may spur them to seek a second opinion or further clarification from their health-care team. 40 At a macro level, by finding out how stigmatized conditions affect others or through restricted access to care and support, people can become more aware of inequalities and injustices which might foster changes in social attitudes or a more equitable provision of care.…”

Section: Experiencing Health Servicesmentioning

confidence: 99%

Examining the role of patients’ experiences as a resource for choice and decision-making in health care: a creative, interdisciplinary mixed-method study in digital health

Ziébland

Powell

Briggs

et al. 2016

Programme Grants Appl Res

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BackgroundTraditional health information has been based on facts and figures and not on patient experience (PEx). Websites featuring people’s accounts of their experiences of health and illness are popular as a source of information, support and much else. However, there are concerns that experiential information on the internet might have adverse effects on health.AimsTo find out whether, when and how the NHS should incorporate PEx into online health information and elucidate the mechanisms through which PEx might influence health, develop a tool to measure the effects of online PEx, explore how PEx is used, and investigate the feasibility and acceptability of a randomised controlled trial of online PEx.MethodsMixed methods, including a conceptual literature review, qualitative secondary data analysis, the development of a new questionnaire, online ethnography, observational and experimental studies in an internet café environment, and finally feasibility trials to compare new websites based on PEx with those based on facts and figures.ResultsThe review concluded that online PEx could affect health outcomes through seven domains (information, support, affecting relationships, providing ideas on how to use health services, influencing behaviour change, learning to tell the story and visualising illness). We developed the e-Health Impact Questionnaire, which demonstrates good psychometric properties and is suitable for use across different health groups and various styles of online information. Online ethnographic studies found three types of PEx on multiple sclerosis (MS) platforms: accounts of ‘living with MS’, self-expression and creativity, and experiences of health care and treatment. Observational and laboratory-based methods included studies of how people find and use PEx to inform health choices. We developed a three-stage model (gating, the engagement loop and outcomes) which guided the development of six prototype multimedia websites featuring either experiential information (intervention) or factual information (comparator) for three exemplar health issues. We evaluated the feasibility and acceptability of a trial of the prototype PEx websites, comparing self-report and process measures with a comparator. In the three conditions we randomised 87 (smoking cessation), 148 (asthma), and 42 (caring for someone with MS) participants. At final (2-week) follow-up, retention rates were 75%, 82% and 86%, for smoking cessation, asthma and MS carers, respectively. Usage of the allocated websites was low. The median number of logins to the websites over the 2-week period was two, two and four; the median number of page views was 10, 15 and 27.5, respectively, with a median total duration on site of 9 minutes, 17 minutes and 31.5 minutes respectively. There were no reported adverse events or harms. The qualitative interviews with 30 trial participants found that the trial methods were acceptable and not burdensome and that preferences for combinations of different types of information were both idiosyncratic and dependent on timing and need.LimitationsThis programme used a pragmatic, mixed-methods approach, in which we adapted some standard approaches (e.g. realist review). The conceptual review provided a framework for the whole programme but did not draw on a single overarching theoretically informed approach. Instead, we used relevant theory and methods from the work package leads, who represented a range of disciplines.ConclusionsOnline PEx is not seen as an alternative to facts, or to care from a health professional, but is used in addition to other sources of information, support and expression. This programme of work indicates how the sharing of online PEx may benefit people, and how this can be measured. A randomised controlled trial is feasible but an allocated ‘exposure’ to a ‘dose of information’ is far from from how online experiences are shared in everyday life. Future work evaluating online health interventions which incorporate personal experiences should aim to reflect ‘natural’ use of the internet and might include online ethnography and offline interviews. Studies might explore how and why people use online sources of experience-based health information, and the effects on subsequent behaviour and health and social outcomes in different conditions. Future intervention research evaluating online health interventions should examine and explain issues of engagement and use, and seek to identify how to increase engagement.Trial registrationCurrent Controlled Trials ISRCTN29549695.FundingThis project was funded by the Programme Grants for Applied Research programme and will be published in full inProgramme Grants for Applied Research; Vol. 4, No. 17. See the NIHR Journals Library website for further project information.

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“Listen to your body”

Cited by 38 publications

References 8 publications

“Struggling with daily life and enduring pain”: a qualitative study of the experiences of pregnant women living with pelvic girdle pain

“Struggling with daily life and enduring pain”: a qualitative study of the experiences of pregnant women living with pelvic girdle pain

‘Listening to my body’ to ‘Look after my body’: a theory of information use for self‐management of chronic obstructive pulmonary disease

Examining the role of patients’ experiences as a resource for choice and decision-making in health care: a creative, interdisciplinary mixed-method study in digital health

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