Living and dying with dignity in Chinese society: perspectives of older palliative care patients in Hong Kong

Ho, Andy Hau Yan; Chan, Cecilia Lai Wan; Leung, Ping-Chung; Chochinov, Harvey Max; Neimeyer, Robert A.; Pang, S.F.; Tse, Doris M.W.

doi:10.1093/ageing/aft003

Cited by 88 publications

(138 citation statements)

References 17 publications

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“…While some points were different in the Chinese context, however, physical limitations with a loss of independence and functional limitations with negative implications on quality of life were similar to the Western context 12 .…”

Section: Lossesmentioning

confidence: 91%

“…However, despite these adversities, the participants reported dealing with a disease without a cure: living in the moment, maintaining normalcy and seeking spiritual comfort 12 .…”

Section: Copingmentioning

confidence: 99%

“…In terms of the recognition of their finitude, the elderly interviewed reported the need to maintain normality while facing a disease without a cure, the importance of living in the moment without worrying about the future, and the search for spiritual comfort through forgiveness, renouncing grudges and broadening their perspectives of life 12 .…”

Section: Copingmentioning

confidence: 99%

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Coping strategies used by the elderly regarding aging and death: an integrative review

Ribeiro

Borges

Araújo

et al. 2017

Rev. bras. geriatr. gerontol.

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Objective: to identify and synthesize studies that approach the coping strategies used by the elderly to deal with aging and death. Method: an integrative review was performed in seven databases with the following descriptors: psychological adaptation, the elderly, death and aging. Results: 73 articles were identified. After applying the inclusion and exclusion criteria, six articles that identified multiple losses experienced by the elderly and included coping strategies were selected and analyzed. The main losses were: loss of health; physical capacity and functionality; loss in quality of emotional relationships; death of loved ones; reduced social integration; fewer material goods; financial loss; lower cognitive resources; lower perceived mastery; loss of feeling useful; reduction in subjective well-being and quality of life. We also identified the following coping strategies used to deal with losses related to aging and finitude: anticipated grieving; wish to die; isolation; submission; negotiation; acceptance; accommodation; support seeking; living in the moment; seeking spiritual comfort. Conclusion: the elderly experience aging and finitude with coping strategies that can generate both unfavorable and favorable health outcomes. In this context, some coped through anticipated mourning and the desire to die, while others looked for spiritual comfort, social support and acceptance.

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Section: Lossesmentioning

confidence: 91%

“…However, despite these adversities, the participants reported dealing with a disease without a cure: living in the moment, maintaining normalcy and seeking spiritual comfort 12 .…”

Section: Copingmentioning

confidence: 99%

See 1 more Smart Citation

Coping strategies used by the elderly regarding aging and death: an integrative review

Ribeiro

Borges

Araújo

et al. 2017

Rev. bras. geriatr. gerontol.

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“…A number of randomized controlled studies have highlighted the effectiveness of the IBMS model on improving the wellbeing of participants (Chan et al, 2006;Hsiao et al, 2011;Liu et al, 2008;Yang et al, 2009). The team has also started to test the efficacy of traditional Chinese movement exercises, such as Qigong on persons with chronic fatigue syndrome and Taichi on persons with schizophrenia, and evidence of holistic improvement through psychosocial measures and physiological outcome markers was found Ho et al, 2013). Given the increasing evidence, there is an urgent need for social work research and practice on how traditional healing wisdom from Asia, Africa, South America, and the Pacific Islands can be integrated and utilized by health social workers.…”

Section: Opportunities In Education and Knowledge Developmentmentioning

confidence: 99%

Health Social Work

Chan¹,

Yan²

2015

International Encyclopedia of the Social &Amp; Behavioral Sciences

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Health social work has been historically associated with environmental, sociopolitical, and economic context of the society. With the industrialization, urbanization, and global warming, health social workers are combating poverty, environmental degradation, natural disasters, and health inequity. Health social work in this article is defined as a subcategory of social work profession that includes medical social work and public health social work. Health social workers serve to humanize the health and social care system, emphasizing the importance of the holistic psycho-social-spiritual needs of individuals and groups when they experience distresses of illness, trauma, death, or disabilities across the life span. Health social workers practice in hospitals, communities, health departments, nongovernmental organizations, and international bodies. Advocacy, self-help, psychosocial education, and community organization are commonly adopted strategies of patient empowerment for health social workers. International organizations are active in promoting reform in the global environment so as to make the world a better place.

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“…The main perceptions of patients are reconsideration and acceptance of the uniqueness of their lives, finding meaning, defining future projects, reconciliation with their past experiences [22], and the satisfaction of leaving a personal legacy [23]. Change also occurs within the family in terms of perception, satisfaction [23–25], communication, and cohesion [26, 27]. …”

Section: Introductionmentioning

confidence: 99%

Revie ⊕: the influence of a life review intervention including a positive, patient-centered approach towards enhancing the personal dignity of patients with advanced cancer—a study protocol for a feasibility study using a mixed method investigation

Rodrigues

Pautex

Shaha

2016

Pilot Feasibility Stud

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BackgroundIt is generally recognized that existential concerns must be addressed to promote the dignity of patients with advanced cancer. A number of interventions have been developed in this regard, such as dignity therapy and other life review interventions (LRI). However, so far, none have focused on a positive approach or evaluated its effects on dignity and personal growth. This study aims to explore the feasibility of Revie ⊕, a life review intervention comprising a positive, patient-centered approach, and to determine potential changes of patients’ sense of dignity, posttraumatic growth, and satisfaction with life.MethodsA mixed method study will be performed, which includes specialized nurses and 40 patients with advanced cancer in an ambulatory and in-patient setting of a Swiss university hospital. Quantitative methods involve a single group, pre- and post-intervention, and outcome measurements include the Patient Dignity Inventory, the Posttraumatic Growth Inventory, and the Satisfaction with Life Scale. Feasibility data relating to process, resource, and scientific elements of the trial will also be collected. A semi-directed interview will be used to collect qualitative data about the process and the participants’ experiences of the intervention. In this way, enhanced quantitative-qualitative evidence can be drawn from outcome measures as well as individual, contextualized personal views, to help inform researchers about the plausibility of this complex intervention before testing its effectiveness in a subsequent full trial.DiscussionPatient dignity is a goal of quality end-of-life care. To our knowledge, this is the first trial to evaluate the role of a life review intervention that is focused on personal growth and on changes relating to the experience of having cancer.This study will evaluate the feasibility of a novel intervention, Revie ⊕, which we hope will contribute to promote the dignity, personal growth, and overall life satisfaction of patients with advanced cancer.Trial registrationISRCTN, ISRCTN12497093 Electronic supplementary materialThe online version of this article (doi:10.1186/s40814-016-0101-z) contains supplementary material, which is available to authorized users.

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Living and dying with dignity in Chinese society: perspectives of older palliative care patients in Hong Kong

Cited by 88 publications

References 17 publications

Coping strategies used by the elderly regarding aging and death: an integrative review

Coping strategies used by the elderly regarding aging and death: an integrative review

Health Social Work

Revie ⊕: the influence of a life review intervention including a positive, patient-centered approach towards enhancing the personal dignity of patients with advanced cancer—a study protocol for a feasibility study using a mixed method investigation

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