Living at a residency away from home during radiotherapy as narrated by 52 patients with breast cancer: a cage of safety and discomfort

Lilliehorn, Sara; Salander, Pär

doi:10.1080/09638288.2016.1261412

Cited by 7 publications

(23 citation statements)

References 19 publications

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“…Out of these: One systematic review [6], and one Randomized Clinical Trial [5] were found. Other studies which have been included in this review offer a range of methodological approaches including one six-year retrospective analysis [21], one descriptive cost analysis study [22] one quantitative questionnaire [23] and two qualitative studies [12,24]. Table 1 shows the studies included in this review.…”

Section: Resultsmentioning

confidence: 99%

“…A patient hotel is described by Docrates as a building which operates as accommodation and includes healthcare provision and should be connected to a hospital stay or episode of care [11]. In some cases, a patient hotel operates as on-site accommodation for pre and post-operative patients, who live a distance from the hospital and for whom the burden of travel may compromise health [12]. In this situation guests generally receive care from a relative or friend and can access emergency treatment if a health crisis occurs, but no direct care is offered by the hotel establishment and the resources of the hospital are not impacted [6].…”

Section: ]mentioning

confidence: 99%

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A systematic literature review of the patient hotel model

Chesterton

Stephens

Clark

et al. 2019

Disability and Rehabilitation

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Background: The patient hotel model was developed in Northern Europe as a response to increased demand for health and wellbeing services. According to current literature the patient hotel model is a concept of care provision which combines non-acute hospital care with hospitality to afford patients/ guests increased satisfaction and security whilst benefitting from evidenced based care. Objective(s): This paper evaluates the concept of the patient hotel model. It presents the findings of a systematic review of existing literature evaluating the benefits such a model can bring to healthcare services and reports on the efficacy in terms of cost to health service providers, and health outcomes to patients/guests. The authors' aimed to complete a meta-analysis of the data, but were unable to, due to the diversity in the descriptions, service provisions, and client group. Design: The Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) statement was used to conduct and report this systematic review. In order to focus the research question, the PICO (Population; Intervention; Comparison and Outcome) framework was used to develop a strategy in literature searching, to ensure systematic rigor. Data sources/review methods: Cochrane Database of Systematic Reviews, OVID MEDLINE, CINAHL, Embase, ScienceDirect, Web of Science, and Scopus databases were used to search for randomized controlled trials, quasi experimental studies, quantitative and qualitative studies conducted between January 1st 2008 and August 9th, 2018, published in a peer reviewed journal in English or which provided an abstract in English. Citation searches and hand searches were also conducted. Results: 8,693 papers were retrieved and from abstract screening 68 full-text articles were assessed for eligibility by applying an inclusion and exclusion criteria. Seven articles were retained for quality assessment. Methodological rigor was appraised using accepted criteria for the evaluation of research. On appraisal, one systematic review, one Randomized Clinical Trial, two qualitative studies, one quantitative survey, one retrospective analysis of services, and one comparative analysis paper were included for data synthesis. The functionality of the patient hotel model differed across the six countries that reported on them in the included studies, from oncology care, medical care, post-acute rehabilitation and perioperative care. The studies included in this review broadly focused on the themes of patient experience and/or cost, with the intention of informing future service provision. Studies relating to cost efficacy looked at the potential financial savings which could be realized through adopting the patient hotel model. The appraised studies found positive benefits of adopting the patient hotel model, both in terms of cost and patient satisfaction. One study explored the role of nurses in a patient hotel. Conclusions: The lack of consistent definition, diversity in the descriptions, service provisions, and client groups meant that ...

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Section: Resultsmentioning

confidence: 99%

Section: ]mentioning

confidence: 99%

A systematic literature review of the patient hotel model

Chesterton

Stephens

Clark

et al. 2019

Disability and Rehabilitation

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“…This has been reported earlier in a study of patients who lived at a residency during treatments such as radiotherapy. 15 Our participants expressed that meeting others in the same situation created opportunities for them to mirror themselves and gave them new perspectives regarding themselves. To stay in a context with other people in the same situation can be perceived as valuable and helpful for the rehabilitation process.…”

Section: Discussionmentioning

confidence: 99%

“…This has been observed in several studies of participants with chronic pain. 10,15,[19][20][21][22] A turning point for most of the participants in our study was the opportunity for reflection and to mirror themselves. Participants became aware of their own strengths and aware that they could influence their own situation and that they were responsible for changing their situation.…”

Section: Discussionmentioning

confidence: 99%

Finding self-worth—Experiences during a multimodal rehabilitation program when living at a residency away from home

Spinord

Kassberg

Stålnacke

et al. 2020

Canadian Journal of Pain

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Background: Patients with chronic pain who live in rural areas often need to travel long distances to participate in multimodal rehabilitation programs. To reduce traveling during the programs, patients sometimes live at a residency close to the clinic and thus far from home. Aims: The aim of this study was to explore how patients with chronic pain experience participation in an multimodal rehabilitation program while living at a residency. Method: Twelve patients from two specialist clinics in northern Sweden were interviewed about their experiences of participating in a multimodal rehabilitation program. The data were analyzed qualitatively using a grounded theory method with an emergent design. Results: The analyses resulted in a model with the core category "finding my self-worth" consisting of four categories: "space for myself," "mirroring myself," "I am of value," and "dealing with returning to everyday life." The model illustrates the process whereby participants are given space for themselves and an opportunity to mirror themselves in interaction with other participants. That provided insight about their self-worth that was valuable for return to everyday life at home and work. Conclusion: Living at a residency during multimodal rehabilitation provided added value when patients were relived from the obligations of everyday life at home and given time for reflection and interaction with others in similar situations. This contributed to awareness of their own value and the necessity of taking care of themselves. This new insight led to increased motivation to act differently at home. RÉSUMÉ Contexte: Les patients souffrant de douleur chronique qui vivent en milieu rural doivent souvent parcourir de longues distances pour participer à des programmes de réhabilitation multimodale. Pour réduire les déplacements pendant les programmes, les patients vivent parfois dans une résidence à proximité de la clinique et donc loin de chez eux. Objectifs: Le but de cette étude était de se pencher sur la façon dont les patients souffrant de douleur chronique vivent leur participation à un programme de réadaptation multimodale lorsqu'ils vivent en résidence. Méthode: Douze patients provenant de deux cliniques spécialisées du Nord de la Suède ont été interviewés sur leur participation à un programme de réadaptation multimodale. Les données ont été analysées de manière qualitative en utilisant la méthode de la théorie ancrée et un devis émergent. Résultats: Les analyses ont donné lieu à un modèle dont la catégorie principale, « trouver ma valeur personnelle », consiste en quatre catégories : « un espace pour moi », « mon reflet », « j'ai de la valeur » et « le retour à la vie de tous les jours ». Ce modèle illustre le processus par lequel les participants disposent d'un espace pour eux-mêmes et ont l'occasion de voir leur propre reflet, en interaction avec les autres participants. Cela leur a permis de mieux percevoir leur propre valeur personnelle, ce qui a été d'une grande utilité pour leur retour à la vie quotidienne à la...

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“…Some health systems, for example systematically provide cancer patients with residency while they are undergoing treatment, which could help to reduce the burden on carers (Lilliehorn and Salander, 2016). Although this presents cost implications for health services, there may be benefits.…”

Section: Implications For Practicementioning

confidence: 99%

In a bad place: Carers of patients with head and neck cancer experiences of travelling for cancer treatment

Balfe

Keohane

Brien

et al. 2017

European Journal of Oncology Nursing

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General rightsThis document is made available in accordance with publisher policies. Please cite only the published version using the reference above. Full terms of use are available: http://www.bristol.ac.uk/pure/about/ebr-terms In a bad place: head and neck cancer carers' experiences of travelling for cancer treatment Purpose: To explore the effect that treatment-related commuting has on head and neck cancer carers.Methods: Semi-structured interviews, thematically analysed, with 31 carers.Results: Treatment-related commuting had a considerable impact on head and neck carers, both in practical terms (economic costs, disruption) and also in psychological terms. Many head and neck carers described becoming distressed by their commute. Some carers from large urban cities appeared to have hidden commuting burdens. Some carers respond to commuting stress by 'zoning out' or becoming 'like zombies'.Conclusions: Treatment-related travel for head and neck cancer can have significant practical and psychological impacts. Health professionals should be aware of the impacts that commuting can have on head and neck caregivers. Health services may be able to take practical steps, such as providing subsidized parking, to address head and neck carergivers' difficulties.

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Living at a residency away from home during radiotherapy as narrated by 52 patients with breast cancer: a cage of safety and discomfort

Cited by 7 publications

References 19 publications

A systematic literature review of the patient hotel model

A systematic literature review of the patient hotel model

Finding self-worth—Experiences during a multimodal rehabilitation program when living at a residency away from home

In a bad place: Carers of patients with head and neck cancer experiences of travelling for cancer treatment

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