Management of patients with rare adult solid cancers: objectives and evaluation of European reference networks (ERN) EURACAN

Blay, Jean-Yves; Casali, Paolo; Ray-Coquard, Isabelle; Seckl, Michael J.; Gietema, Jourik; de Herder, Wouter W.; Caplin, Martyn; Klümpen, Heinz-Josef; Glehen, Olivier; Wyrwicz, Lucjan; Peeters, Robin; Licitra, Lisa; Girard, Nicolas; Piperno-Neumann, Sophie; Kapiteijn, Ellen; Idbaih, Ahmed; Franceschi, Enrico; Trama, Annalisa; Frezza, Anna-Maria; Hohenberger, Peter; Hindi, Nadia; Martin-Broto, Javier; Schell, Johanna; Rogasik, Muriel; Lejeune, Stephane; Oliver, Kathy; de Lorenzo, Francesco; Weinman, Ariane

doi:10.1016/j.lanepe.2024.100861

The Lancet Regional Health - Europe

2024

DOI: 10.1016/j.lanepe.2024.100861

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Management of patients with rare adult solid cancers: objectives and evaluation of European reference networks (ERN) EURACAN

Jean-Yves Blay,

Paolo Casali,

Isabelle Ray-Coquard

et al.

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Cited by 2 publications

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Diagnostic trajectories of patients with rare cancer in the Netherlands: results from a nationwide cross-sectional survey

Padilla,

de Heus,

Reuvers

et al. 2024

Support Care Cancer

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Diagnostic trajectories of patients with rare cancer in the Netherlands: results from a nationwide cross-sectional survey

Padilla,

de Heus,

Reuvers

et al. 2024

Support Care Cancer

View full text Add to dashboard Cite

Achievements of international rare cancers networks and consortia in the neuro-oncology field

Di Nunno,

Franceschi,

Idbaih

2024

Current Opinion in Oncology

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Purpose of review In this review, we investigated the role of European oncological networks on management and care of patients with central nervous system (CNS) malignancies. Recent findings Within this universe of tumors, malignancies of the central nervous system (CNS) malignancies represent a challenge because of several reasons such as biological complexity, the need of dedicated experienced physicians (surgeons, pathologists, radiologists and neuro-oncologists) and tertiary healthcare providers. Limits to the development of effective and innovative care are represented by the rarity of these tumors and their extreme heterogeneity in terms of clinical presentation, course of the disease, genetic assessments and site of presentation. The oncological networks are societies or associations, which make possible to connect patients, scientists, doctors and researchers together allowing to obtain several improvements. Summary Oncological networks can cooperate to increase accrual rate and speed in clinical trials, share data about CNS malignancy management and improve knowledge toward this class of tumors within patients and health operators promoting equity and high standard of care.

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Management of patients with rare adult solid cancers: objectives and evaluation of European reference networks (ERN) EURACAN

Cited by 2 publications

References 42 publications

Diagnostic trajectories of patients with rare cancer in the Netherlands: results from a nationwide cross-sectional survey

Diagnostic trajectories of patients with rare cancer in the Netherlands: results from a nationwide cross-sectional survey

Achievements of international rare cancers networks and consortia in the neuro-oncology field

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