Managing Complex Patient Journeys in Healthcare

Halvorsrud, Ragnhild; Lillegaard, Annette Lund; Røhne, Mette; Jensen, Andreas

doi:10.1007/978-3-030-00749-2_19

Cited by 15 publications

(10 citation statements)

References 13 publications

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“…The patient journey was modeled according to the so-called “customer journey.” This refers to a journey of the customer (or even the patient) across various points of contact to achieve a specific goal. Not every stage is always pleasant for the customer because it can include aspects or even results that are not desired by Lindner 54 and Halvorsrud et al 55 The patient journey is therefore a series of events along the course of a disease. It starts with perception about diagnosis, goes via treatment, and recovery up to aftercare.…”

Section: Patient Journey Of Breast Cancer Patientsmentioning

confidence: 99%

Smart health via mHealth? Potentials of mobile health apps for improving prevention and adherence of breast cancer patients

Scholz

Teetz

2022

DIGITAL HEALTH

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Objective Today there are several health and medical apps (mHealth) in app stores. Germany is the world's first country that introduced apps paid by the regular health insurance service. Even though breast cancer is the most common cancer in women, mHealth for breast cancer has been largely unexplored. Methods A total of 33 apps from two major mobile application marketplaces (Google Play Store/Android; App Store/iOS) have been selected for analysis. Results The app analysis shows that there are currently only 10 mHealth apps in German, which are specifically dedicated to breast cancer patients. The features of these apps fall into two categories: improvement of health literacy and indirect intervention. These apps can be used for all phases of the patient journey starting with the diagnosis. Conclusions mHealth apps have the potential to support the adherence of breast cancer patients. In order to exploit this future potential, the app quality, as well as the information about the available apps, must be urgently improved. Currently, it is very difficult both for laypersons and for doctors/other therapists to identify high-quality apps. Guidance from independent or governmental institutions would be helpful to further the digitalization in health care.

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Section: Patient Journey Of Breast Cancer Patientsmentioning

confidence: 99%

Smart health via mHealth? Potentials of mobile health apps for improving prevention and adherence of breast cancer patients

Scholz

Teetz

2022

DIGITAL HEALTH

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“…Since every examination is independently evaluated, a high intellectual effort is required to provide the intended context. The customization of the EHR system in each department causes the data in one hospital to look different than the data of a similar patient receiving similar treatment in another hospital [5][6][7][8]. The resulting differences in relation, meaning, and purpose make it tremendously difficult to evaluate the data in its intended context and gain valuable information from it [41,42].…”

Section: Restriction Of Current Solutionsmentioning

confidence: 99%

“…Despite the advantages of structured data entry, narrative text remained the preferred way of data acquisition in healthcare. This way of data acquisition and the customization of existing information systems makes the access and usability of medical data tremendously complicated [5][6][7][8].…”

Section: Introductionmentioning

confidence: 99%

Structured Data Acquisition in Oncology

Henkel

Stieltjes

2019

Oncology

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Background: Demographic changes and improvement in therapy have shifted the focus of treatment towards chronic diseases and multiple health conditions. This has caused a tremendous increase in data per patient that needs to be integrated longitudinally and across departmental silos. The general increase in the volume of data per diagnostic examination and the number of diagnostic procedures per diagnostic pathway additionally accentuate this data integration challenge. Summary: Subspecialization in medicine has led to largely autonomously organized departments with independent IT ecosystems. This patchwork of IT infrastructure is not prepared to meet the data integration challenge. The resulting lack of integrated information makes the treatment of chronically ill patients increasingly difficult and error prone. Key Message: A sustainable method for data acquisition is needed to aid multimodal treatment and improve efficiency in healthcare.

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“…How best to inform and counsel parents about the screening result has been debated on an international level 1 . The patient care pathway is the patient's journey through the healthcare system 5 . This is a complex process often involving several wards and units 5 .…”

Section: Introductionmentioning

confidence: 99%

“…The patient care pathway is the patient's journey through the healthcare system 5 . This is a complex process often involving several wards and units 5 . It is important that healthcare professionals follow the same patient care pathway so that the child and parents experience the process as professionally as possible and without any mistakes relating to the process or any information given 6 .…”

Section: Introductionmentioning

confidence: 99%

Being affiliated to a cystic fibrosis centre is important for parents' everyday life

2022

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The widespread implementation of newborn screening represents a paradigm shift in the diagnostic pathway for families having a child diagnosed with cystic fibrosis. 1 Early diagnosis is associated with a significantly improved nutritional status, increased lung function, delayed chronic lung infections and increased survival. 2 Newborn screening is therefore currently in place throughout the developed world. 3 For parents, the diagnosis of cystic fibrosis is often completely unexpected. Being told that your child has cystic fibrosis is generally a very traumatic experience, especially if the child appears healthy, causing parents to disbelieve the diagnosis. 4 Diagnosing cystic fibrosis under the newborn screening programme calls for a strong focus on the patient care pathway. How best to inform and counsel parents about the screening result has been debated on an international level. 1 The patient care pathway is the patient's journey through the healthcare system. 5 This is a complex process often

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Managing Complex Patient Journeys in Healthcare

Cited by 15 publications

References 13 publications

Smart health via mHealth? Potentials of mobile health apps for improving prevention and adherence of breast cancer patients

Smart health via mHealth? Potentials of mobile health apps for improving prevention and adherence of breast cancer patients

Structured Data Acquisition in Oncology

Being affiliated to a cystic fibrosis centre is important for parents' everyday life

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