Measurement Properties of the Arabic Lebanon Version of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales for Young Child (5 - 7 years), and Child Aged 8 - 12 Years: Quality of Life of in Urban and Rural Children in Lebanon

Abstract

Background:Health-related quality of life (HRQOL) is recognized as an important health outcome measurement for pediatric patients. HRQOL in children is needed to gain a better understanding of the impact of public policies, interventions, therapies, and the prediction of health and social care need. In view of the lack of reliable HRQOL instruments for children in Arabic, the present study aims to translate the PedsQL TM 4.0 self-report and proxy-report for young child (aged 5 -7 years), and child (aged 8 -12 years), evaluate psychometric properties of the Arabic Lebanon version; and to evaluate HRQOL of children in rural and urban areas in Lebanon. Methods: PedsQL TM 4.0 was translated and adapted into Arabic using the standard approach provided by Varni J. W. The Arabic version was administered to a representative sample of 368 children aged 5 -12 years and their parents. The psychometric properties were then evaluated. Results: The rate of missing data for self-report and proxy-report was very low (0.51% and 0.46% of items). All child self-report, and parent proxy-report subscales exceeded the minimum reliability standard of 0.70 for alpha coefficient, except emotional subscale of young child self-report and proxy-report, and, the social subscale of child self-report (alphas ranging from 0.60 to 0.66). Factor analysis yielded patterns of factor correlation comparable to the original version. The emotional functioning of children is low, where most children feel afraid, sad, and angry. Children resident in rural areas had higher social scores than those in urban areas. The HRQOL of girls is higher than boys; Children undergoing treatment for cancer rated their HRQOL as poorer in all dimensions. Conclusions: The results support the validity of the PedsQL TM 4.0 self-report and proxy-report Arabic version. Habitat has a minor influence on HRQOL of children. Further psychometric evaluation in a larger sample of children, in other departments of Lebanon is recommended to provide firmer conclusions.

The effect of educational intervention on the quality of life of acute lymphocytic leukemia who undergoing chemotherapy

“…Poor quality of life in children with younger age. 16 This is in line with Sitaresmi et al that the quality of life of children in the age group 2-4 years is lower than the age group 5-16 years were significantly. 13 Furthermore, in general children were male gender.…”

“…This is consistent with Mounier et al that treatment-related quality of life significantly. 16 Further Sitaresmi et al also reported that the quality of life in the nonintensive phase better than intensive phase. 13 After the educational intervention on the elderly about acute lymphocytic leukemia, chemotherapy and efforts to overcome the side effects of chemotherapy, nutritional support system and obtained an increase in the average quality of life of children acute lymphocytic leukemia.…”

Faktor-Faktor Berhubungan dengan Kualitas Hidup Anak Leukemia Limfositik Akut yang Menjalani Kemoterapi

“…Penelitian kualitas hidup pada anakanak yang mengalami kanker dan leukemia di Lebanon (Sabbah, Akoum, Droubi, & Mercier, 2012), Turki (Tanir & Kuguoglu, 2011), China (Ji et al, 2011), Jepang (Tsuji et al, 2011), Mexico (Castillo-Martinez et al, 2009), RS Dr. Sardjito Yogyakarta, Indonesia (Sitaresmi, Mostert, Gundy, Sutaryo, & Veerman, 2008) menggunakan PedsQLTM 4.0 Generic Core Scale dan PedsQLTM 3.0 Cancer Module dan melaporkan bahwa instrumen tersebut bermanfaat untuk mengukur dan mendeteksi perubahan pada anak-anak yang mengalami kanker dan leukemia baik selama terapi maupun yang bertahan hidup.…”

“…Subskala psikososial memperoleh rata-rata skor lebih tinggi dibandingkan subskala fisik. Hasil ini sejalan dengan penelitian Sabbah et al (2012), Sung et al (2010), Sitaresmi et al (2008), dan Varni et al (2002). Skor emosi pada penelitian ini hampir sama dengan penelitian Varni et al (2002).…”

“…Hal ini kemungkinan karena anak leukemia limfositik akut umumnya telah menjalani kemoterapi lebih dari 1 bulan bahkan anak dengan fase kemoterapi maintenance sudah lebih dari 1 tahun sehingga mereka sudah beradaptasi dengan kondisinya dan tidak mengalami kesulitan berhubungan dengan orang lain atau teman sebaya. Hasil penelitian Sitaresmi et al (2008), Sabbah et al (2012), dan Arslan, Basbakkal, & Kantar (2013) juga menunjukkan skor sosial memeroleh skor tertinggi.…”