Measurement Properties of the Online EuroQol-5D-Youth Instrument in Children and Adolescents With Type 1 Diabetes Mellitus: Questionnaire Study

Mayoral, Karina; Rajmil, Luís; Murillo, Marta; Garín, Olatz; Pont, Àngels; Alonso, Jordi; Bel, Joan; Pérez, J. Martínez; Corripio, Raquel; Carreras, Gemma; Herrero, Javier; Mengibar, Jose-Maria; Rodriguez-Arjona, Dolors; Ravens‐Sieberer, Ulrike; Raat, Hein; Serra-Sutton, Vicky; Ferrer, Montse

doi:10.2196/14947

Cited by 23 publications

(28 citation statements)

References 49 publications

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“…The EQ-5D-Y is short questionnaire that is responsive to changes and is generally acceptable, especially in acutely ill children. It has been used to evaluate HRQoL in children and adolescents with various diseases [ 13 , 14 ]. The EQ-5D-Y-5L, a five-level version of the EQ-5D-Y, has been demonstrated to be responsive and suitable for certain diseases among the young population in precedent studies [ 15 , 16 ].…”

Section: Methodsmentioning

confidence: 99%

Impact of sleep duration, physical activity, and screen time on health-related quality of life in children and adolescents

Wong

Tung

et al. 2021

Health Qual Life Outcomes

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Background Existing studies on health-related quality of life (HRQoL) mainly covered single growth stages of childhood or adolescence and did not report on the trends in the relationships of HRQoL with sleep duration, physical activity, and screen time. This study aimed to establish the population norm of HRQoL in children and adolescents aged 6–17 years and examine the associations of screen time, sleep duration, and physical activity with HRQoL in this population. Methods We conducted a large-scale cross-sectional population-based survey study of Hong Kong children and adolescents aged 6 to 17 years. A representative sample of students were interviewed to assess their HRQoL using PedsQL and EQ-5D-Y-5L. Multivariable homoscedastic Tobit regression with linear form or restricted cubic spline of predictors was used to analyze the associations between screen time, sleep duration, and HRQoL. Multiple imputation by chained equations was performed to deal with missing data. Results A total of 7555 respondents (mean age 11.5, SD 3.2; 55.1% female) were sampled. Their EQ VAS scores, PedsQL physical summary scores, and psychosocial summary scores were positively correlated with sleep duration and moderate/vigorous activity but was negatively correlated with screen time. Conclusions Children and adolescents who had longer exposure to screen, shorter sleep duration, and lower physical activity levels appeared to have poorer HRQoL as assessed by PedsQL and EQ-5D-Y-5L. Advice and guidance on screen time allocation for children and adolescents should be provided at the levels of school, community, and family.

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Section: Methodsmentioning

confidence: 99%

Impact of sleep duration, physical activity, and screen time on health-related quality of life in children and adolescents

Wong

Tung

et al. 2021

Health Qual Life Outcomes

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“…The test-retest reliability of the standard Y-3L has been assessed and demonstrated in general young populations [16] and paediatric patients with chronic kidney disease [17], but not in those with haematological malignancies. To date, there have been very few studies on the test-retest reliability of the Y-5L [18,19].…”

Section: Introductionmentioning

confidence: 99%

Patient-caregiver agreement and test–retest reliability of the EQ-5D-Y-3L and EQ-5D-Y-5L in paediatric patients with haematological malignancies

et al. 2021

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Background In 2019, the EuroQol Group developed a ‘beta’ 5-level version of EQ-5D-Y (Y-5L) by increasing the number of descriptive levels to five for each health dimension, as compared to the standard 3-level EQ-5D-Y (Y-3L). Objective To assess patient-caregiver agreement and test–retest reliability of the Y-5L and Y-3L in paediatric patients with haematological malignancies. Methods Paediatric inpatients aged 8–17 years were interviewed with the Y-5L and Y-3L questionnaires twice, while their caregivers were interviewed at the same time using the proxy versions of the questionnaires. Patient-caregiver agreement and test–retest reliability were assessed using Gwet’s agreement coefficient (Gwet’s AC1) for EQ-5D dimensions and the intraclass correlation coefficient (ICC) for the EQ VAS. Results Ninety-six patient-caregiver dyads participated in the study. Patient-caregiver agreement on the EQ-5D-Y descriptive system was moderate to good for both the Y-3L and Y-5L, but poor on the EQ VAS. Test–retest reliability of the descriptive system was good to very good for the Y-3L and moderate to good for the Y-5L in children, and fair to good for both versions of EQ-5D-Y in proxies. The EQ VAS showed good test–retest reliability in both children and caregivers. In a subgroup analysis of results in younger patients aged 8–10 years, patient-caregiver agreement and test–retest reliability were also observed to range from moderate to very good. Conclusion Both the Y-3L and Y-5L descriptive systems showed acceptable patient-caregiver agreement and test–retest reliability when used to assess the HRQoL of children and adolescents with haematological malignancies, including in younger patients.

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“…Chronic Disease (unspeci ed by authors) [35]. Additionally, 3 of the studies [34,35,46] used samples of adolescents living with a various chronic illness, rather than looking at adolescents with a speci c chronic illness, thereby suggesting that the instruments used in these studies were not symptom/disease speci c. All four studies that were conducted in Africa involved ALHIV [47][48][49][50] while studies involving adolescents living with type 1 diabetes are mostly from European and American countries [34,35,[51][52][53][54]. The KIDSCREEN [n=5] and Strengths and Di culties Questionnaire [n=5] were the most frequently used measuring instruments…”

Section: Study Characteristicsmentioning

confidence: 99%

“…Health-related quality of life and Quality of life scales From Table 2, six instruments measure health-related quality of life (HRQoL), namely: Patient-Reported Outcomes Measurement Information System (PROMIS) paediatric pro le -25 [34,40,41]; Child Health Questionnaire [51]; EQ-5D-Y [54]; Monitoring Individual Needs in Diabetes Youth Questionnaire (MY-Q) [52]; Quality of Life Pro le for Chronic Diseases (PLC) [55]; and the Short Form 36 Health Survey (SF-36) [55]. HRQoL is a multi-dimensional concept that includes domains related to physical, mental, emotional, and social functioning.…”

Section: Instruments Measuring Mental Health and Mental Wellbeingmentioning

confidence: 99%

“…Six of the instruments included are aimed at measuring symptoms of mental health or screening for emotional and behavioural problems. These are the Strength and Di culties Questionnaire (SDQ) [43,44,49,54,57]; Child Depression Inventory instruments (CDI & CDI-short form) [47,48]; Center for Epidemiological Studies Depression (CES-D) [51]; and the Revised Children's Manifest Anxiety Scale [47] and the Beck Hopelessness scale [48].…”

Section: Instruments Measuring Symptoms Of Mental Healthmentioning

confidence: 99%

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Measuring Mental Wellness Among Adolescents Living With A Physical Chronic Condition: A Systematic Review of the Mental Health and Mental Wellbeing Instruments

Orth

Wyk

2021

Preprint

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Background: Globally, promoting mental health and wellbeing among adolescents has become a public health priority, especially for adolescents living with a chronic condition (CC) as research suggests they may be more at risk of developing mental health co-morbidities. Valid and reliable instruments are needed to measure and better understand mental health and mental wellbeing among adolescents living with a CC. To this end, we reviewed studies reporting on mental health and well-being instruments used in adolescent populations living with a chronic physical condition/disease globally.Methods: We used a systematic review method guided by PRISMA to identify assess mental health and mental wellbeing instruments used in adolescents living with a CC. In this instance, mental health instruments were defined as those representing negative domains of mental health (i.e. depression and anxiety) while mental wellbeing instruments included positive aspects of mental health (i.e. self-concept and resilience). Results: We identified 22 articles, which include 31 instruments that were used to measure either mental health (n= 8) or mental wellbeing (n= 15) or both (n=8) in adolescents living with a CC. Of these, thirteen studies used a Health-Related Quality of Life (HRQoL) scale to measure mental health and/or mental well-being; and three studies used. The KIDSCREEN questionnaires and the Strengths and Difficulties Questionnaire were identified as being frequently used across the 22 studies. Additionally, 7 out of the 31 instruments were disease specific, with 3 focusing on adolescents with diabetes. All the instruments were developed in high income countries and adapted for use in lower- and middle-income countries (LMICs). Adolescents with Type 1 Diabetes (n=7) and HIV (n=4) were researched in 11 out of 22 studies. Only eight studies were conducted in LMIC, of which four were in Africa. Conclusions: The findings suggest that HRQoL instruments seem to be useful in measuring mental health - and wellbeing in adolescents living with a CC. Relatively few valid measures of mental health and mental wellbeing for adolescents living with a CC exist generally, which confirms the paucity of research on mental health and mental well-being of adolescents who are living with a CC. There is a need for measures to be developed in LMIC where cultural contexts differ greatly and affects well-being in unique ways.Systematic review registration: PROSPERO CRD42020186707

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Measurement Properties of the Online EuroQol-5D-Youth Instrument in Children and Adolescents With Type 1 Diabetes Mellitus: Questionnaire Study

Cited by 23 publications

References 49 publications

Impact of sleep duration, physical activity, and screen time on health-related quality of life in children and adolescents

Impact of sleep duration, physical activity, and screen time on health-related quality of life in children and adolescents

Patient-caregiver agreement and test–retest reliability of the EQ-5D-Y-3L and EQ-5D-Y-5L in paediatric patients with haematological malignancies

Measuring Mental Wellness Among Adolescents Living With A Physical Chronic Condition: A Systematic Review of the Mental Health and Mental Wellbeing Instruments

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