Meta-analysis of deinstitutionalisation adaptive behaviour outcomes: Research and clinical implications

Hamelin, Jeffery P.; Frijters, Jan C.; Griffiths, Dorothy M.; Condillac, Rosemary A.; Owen, Frances

doi:10.3109/13668250.2010.544034

Cited by 16 publications

(13 citation statements)

References 27 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Living in society requires certain skills such as self-care, independent functioning, taking responsibility, self-direction and social skills. Several authors studied the improvement of these skills of disabled people after their relocation, sometimes in relation to a decline of maladaptive behaviour (Hamelin, Frijters, Griffiths, Condillac, & Owen, 2011;Kozma et al, 2009;Kunitoh, 2013;Livingston et al 2011;Young & Ashman, 2004b). Kunitoh (2013) reviewed recent literature in Table 3.…”

Section: Positive Effects Of Deinstitutionalisationmentioning

confidence: 99%

‘Living in the community’ the pros and cons: A systematic literature review of the impact of deinstitutionalisation on people with intellectual and psychiatric disabilities

Bredewold

Hermus

Trappenburg

2018

Journal of Social Work

View full text Add to dashboard Cite

Summary How did deinstitutionalisation affect the lives of people with intellectual disabilities and people with a psychiatric background? This paper contains a systematic literature review on the consequences of deinstitutionalisation for the target groups, their social network and society at large. PubMed and Online Contents were searched from 2004 till February 2016. Inclusion criteria were (1) article describes (a) consequence(s) of deinstitutionalisation, (2) in Western countries and (3) the target group(s) include people with psychiatric or intellectual disabilities. Sixty-one papers were found and analysed to establish positive, negative or mixed results. Findings The positive effects pertain to the quality of life of people with disabilities after deinstitutionalisation. They learned adaptive skills and receive better care. Negative effects relate to more criminal behaviour by the target groups, victimisation of the target groups and physical health issues. Life for the most severely afflicted people with disabilities deteriorated when they moved to smaller group homes in the community. Mixed effects were also found. It is not clear whether deinstitutionalisation leads to real inclusion in the community. It is equally unclear whether it is cheaper than large-scale institutional care. Only a few studies investigate the effects on family members but some show they are overburdened. Applications Social workers catering for people with disabilities should pay attention to risks for their health and safety and keep an eye on family members. Those who are asked to advise on deinstitutionalisation should consider that this may not benefit the most severely afflicted.

show abstract

Section: Positive Effects Of Deinstitutionalisationmentioning

confidence: 99%

‘Living in the community’ the pros and cons: A systematic literature review of the impact of deinstitutionalisation on people with intellectual and psychiatric disabilities

Bredewold

Hermus

Trappenburg

2018

Journal of Social Work

View full text Add to dashboard Cite

show abstract

“…Sustainability of community living is dependent on supportive policy and services being in place; most notably health policy and services. The link between improved outcomes (i.e., more community engagement, family contact, and use of community facilities) and change in living arrangement to the community is evidenced in the literature (Emerson & Hatton, ; Hamelin et al, ; Mansell, ). Such improvements are not guaranteed though (Emerson & Hatton, ) with relatively modest gains identified for some people (Chowdhury & Benson, ).…”

Section: Introductionmentioning

confidence: 99%

“…Three distinct iterations of this movement have been identified by Bigby and Fyffe (): institutional closures in the 1960s; development of community supports in the 1970s and the rights‐based focus of the present day. This trend in the transition from large congregated settings to smaller community based living for people with disabilities (which includes people with physical, sensory, or later onset cognitive difficulties such as acquired brain injury or dementia) and, in particular, for people with ID is occurring across most western societies, albeit at different rates and stages (Bigby, ; Friedlander, ; Hamelin, Frijters, Griffiths, Condillac, & Owen, ). A decline in the number of people living in institutions in countries such as the United States, England, Canada, Australia, and Sweden, for example, has been reported (Chowdhury & Benson, ).…”

Section: Introductionmentioning

confidence: 99%

Core Human Rights Concepts in Irish Health and Housing Policy Documents: In Search of Equity for People With ID

O’Donovan

Mannan

McVeigh

et al. 2018

Policy Practice Intel Disabi

View full text Add to dashboard Cite

If specific groups and their needs are excluded from policy, this exclusion may extend to service delivery and add to the inequities that already exist in health and housing access for vulnerable groups. The extent to which Irish housing/de‐institutionalization and health policies include core human rights concepts has not been examined previously. This article examines the extent to which the core human rights concepts for people with ID are represented in health and housing policies. EquiFrame was the analytical tool for examining six health and housing policies. EquiFrame analyzes policy content on commitment to core concepts of human rights and inclusion of vulnerable groups. Health and housing policies in Ireland, despite outlining a commitment to reducing health inequities, were not found to have a commitment to the core human rights concepts in relation to the specific needs of people with disabilities and people with an intellectual disability. Equity means inclusion of all people and includes recognition, acknowledgement, and monitoring of the specific needs and challenges faced by particular vulnerable population groups, and that these needs are being addressed through policy administered by federal oversight agencies. An implication of the findings is that the EquiFrame tool previously used in the health sector is also useful in considering housing policy. Furthermore, equity concerns need to be examined closely for people with ID because including all vulnerable groups in one aggregated category has been shown to conceal the specific needs and challenges that need to be addressed for specific vulnerable groups.

show abstract

“…From the middle of twentieth century onwards, ideas, values, and beliefs changed the state's view of people with comprehensive disabilities. A deinstitutionalization process began in the Western world and there was a shift from state hospital-based care to community-based care, which was grounded on ideas such as decentralization, integration, normalization, and a more rehabilitative approach with individual freedom and autonomy as its foundation (Bochel and Taylor-Gooby 1988;de Girolamo and Cozza 2000;Tideman 2000;Bengtsson-Tops 2001;Kim, Larson, and Larkin 2001;Ericsson 2002;Bigby and Fyfe 2004;Sylvestre et al 2007;Hamlin and Oakes 2008;Pedersen and Kolstad 2009;Anthony 2010;Chowdhury and Benson 2011;Hamelin et al 2011;den Brok and Sterkenburg 2014;Markström 2014).…”

Section: Introductionmentioning

confidence: 99%

Support to individuals with comprehensive disabilities: Ideas in the Swedish Disability Act

Ehliasson¹,

Ericsson²,

Tops

2015

Scandinavian Journal of Disability Research

View full text Add to dashboard Cite

The purpose of this study was to determine and describe the ideas, that is, a mental construction of perceived reality and values, which are expressed in the Swedish Disability Act and its Government Bill. By means of text analysis, four concepts of reality and values have been identified: (1) Citizenship and justice, (2) The collective and integration, (3) The individual and autonomy, and (4) Decentralization and power shifts. The study also shows that social rights and social citizenship have been strengthened via legislation for individuals with comprehensive disabilities. It is also demonstrated that there is considerable room in the legislation for conflicts between the two concepts and values of collective/integration and the individual/autonomy. It can also be observed that there is a considerable risk that citizens are not treated in a similar manner as regards the interpretation and application of the Disability Act, which may lead to lack of legal security.

show abstract

Meta-analysis of deinstitutionalisation adaptive behaviour outcomes: Research and clinical implications

Abstract: These results are discussed in relation to the implications they have for community services for persons with intellectual disability. The difficulties in accurately comparing studies with dissimilar procedures and contexts are also outlined.

Cited by 16 publications

References 27 publications

‘Living in the community’ the pros and cons: A systematic literature review of the impact of deinstitutionalisation on people with intellectual and psychiatric disabilities

‘Living in the community’ the pros and cons: A systematic literature review of the impact of deinstitutionalisation on people with intellectual and psychiatric disabilities

Core Human Rights Concepts in Irish Health and Housing Policy Documents: In Search of Equity for People With ID

Support to individuals with comprehensive disabilities: Ideas in the Swedish Disability Act

Contact Info

Product

Resources

About