Mobility device use in people with Parkinson's disease: A 3-year follow-up study

Kader, Manzur; Jonasson, Stina B.; Iwarsson, Susanne; Odin, Per; Nilsson, Maria H

doi:10.1111/ane.12942

Cited by 17 publications

(10 citation statements)

References 31 publications

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“…Outpatient participants were recruited from three hospitals in southern Sweden (see Figure 1, which presents a flowchart of the recruitment process). Details of recruitment and follow-up procedures have been described before, i.e., for baseline [26] and the 3year follow-up [27]. At baseline, 653 persons met the inclusion criterion of a PD diagnosis (ICD10-code G20.9), since at least one year.…”

Section: Participants and Recruitmentmentioning

confidence: 99%

Predictive Factors of Concerns about Falling in People with Parkinson’s Disease: A 3-Year Longitudinal Study

Lindh-Rengifo

Jonasson

Mattsson

et al. 2019

Parkinson's Disease

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Introduction. Fear of falling (FOF) is more common in people with Parkinson's disease (PD) than in healthy controls. It can lead to several negative consequences such as restrictions in everyday life. Moreover, FOF is a risk factor for future falls. Aim. is study aimed to identify predictive factors of FOF (conceptualized as concerns about falling) after three years, with and without adjusting for concerns about falling at baseline, in people with PD. Methods. is study included 151 participants (35% women) with PD. At baseline, their mean (SD) age and PD duration were 68 (±9.0) and 9 (±6.1) years, respectively. e Falls Efficacy Scale-International (FES-I) was used as the dependent variable in multivariable linear regression analyses. Results. e mean (SD) FES-I score increased from 28.1 (11.9) to 33.1 (14.0) three years later (p < 0.001). e strongest (according to the standardized regression coefficient, β) predictor of concerns about falling was walking difficulties (β � 0.378), followed by age (0.227), problems maintaining balance while dual tasking (0.172), and needing help in daily activities (0.171). When adjusting for baseline FES-I scores, the strongest predictive factor was problems maintaining balance while dual tasking (β � 0.161), which was followed by age (0.131) and female sex (0.105). Conclusions. is study pinpoints several predictive factors of concerns about falling that are modifiable and which could be addressed in rehabilitation: perceived walking difficulties, having problems maintaining balance while dual tasking, and dependence on others in daily activities. e importance of dual tasking is a novel finding, which future studies need to confirm or refute. One should be aware of the fact that an increased age predicts concerns about falling with and without adjusting for baseline FES-I scores, whereas female sex predicts concerns about falling only when adjusting for baseline FES-I scores.

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Section: Participants and Recruitmentmentioning

confidence: 99%

Predictive Factors of Concerns about Falling in People with Parkinson’s Disease: A 3-Year Longitudinal Study

Lindh-Rengifo

Jonasson

Mattsson

et al. 2019

Parkinson's Disease

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“…All members were bilingual and all healthcare professionals had extensive experience, of at least 5 years, in the care of PD patients. All members were requested to review key publications and scales to determine PD-specific themes that are related to the following domains: 1) motor symptoms; 2) non-motor symptoms (NMS); 3) symptoms of fluctuations; 4) adverse events; 5) care in the advanced stage; and 6) assistive devices as well as happiness level [14,[16][17][18][19][20][21][22][23][24][25][26][27][28]. In addition, one-on-one and group interviews were also conducted with patients and caregivers attending a local PD support group.…”

Section: Survey Development and Steps Of Validationmentioning

confidence: 99%

Impact of disease stage and age at Parkinson’s onset on patients’ primary concerns: Insights for targeted management

et al. 2020

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Background The concerns of people with Parkinson’s disease (PD) about their disease are often different from the objective clinical picture and subject to various influencing factors, including disease progression. Currently our understanding of these concerns is limited, particularly in Asian countries. Methods A 50-item survey on Parkinson’s Disease Patients’ Concerns (PDPC Survey) was developed by a multidisciplinary care team. The subjective greatest concerns (most commonly concerning symptoms) of patients at a specialist centre in Bangkok, Thailand, were explored and categorised according to disease stage and age at onset of PD. Results Data for 222 patients showed concerns varied widely. Motor symptoms giving the greatest concern were problems with walking and/or balance (40.5% of patients), while the most commonly concerning non-motor symptom (NMS) was constipation (41.0%). Patterns were observed amongst different patient subgroups. Early PD patients (H&Y stage 1) were more concerned about NMS than motor symptoms, while the reverse was true for advanced PD patients. Young-onset PD patients showed significantly greater concerns than typical-onset patients about motor symptoms relating to social functioning, working and stigmatisation, such as speech (p = 0.003). Conclusions This study, in an Asian patient cohort, provides an assessment of a wide range of PD patients’ concerns, encompassing not only motor symptoms and NMS, but also treatment-related adverse events, care in the advanced stage, and the need for assistive devices. Identifying the concerns of individual PD patients and implementing a patient-centred approach to care is critical to their wellbeing and optimal outcomes. The PDPC survey can help healthcare teams build a more accurate picture of patients’ experiences to inform clinical management.

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“…Participants were recruited from three hospitals in southern Sweden. Previous publications present flowcharts of the recruitment process for baseline assessments [16] and a 3-year follow-up [17]. A total of 653 persons fulfilled the inclusion criteria of having a PD diagnosis (G20.9) since at least one year.…”

Section: Methodsmentioning

confidence: 99%

Prediction of Life Satisfaction in People with Parkinson’s Disease

Jonasson

Rantakokko

Franzén

et al. 2020

Parkinson's Disease

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Introduction. People with Parkinson’s disease (PD) have lower life satisfaction (LS) than healthy peers. No study has yet identified predictors of LS in people with PD. Such information would be valuable for health care and future interventions that aim to maintain or increase LS. Aim. To examine how LS evolved in people with PD over a 3-year period, as well as to identify predictive factors of LS. Methods. We used data from baseline assessments and a 3-year follow-up of 163 people with PD (baseline, mean age 68 years; median PD duration 8 years, 35% women). LS was assessed with item 1 of the Life Satisfaction Questionnaire (LiSat-11). Dichotomized LS data from the 3-year follow-up were used as the dependent variable in multivariable logistic regression analyses. In the first step, independent variables included baseline information on sex, education, general self-efficacy, motor symptoms, perceived walking difficulties, fall-related activity avoidance, and difficulties with/need help in activities of daily living. At the second step, depressive symptoms were added as an independent variable. Results. The proportion of those who reported being satisfied with their lives reduced from 63.2% at baseline to 49.7% 3 years later (p=0.003). When depressive symptoms were not included in the analysis, general self-efficacy (odds ratio, OR = 1.081; 95% CI = 1.019–1.147) and perceived walking difficulties (OR = 0.962; 95% CI = 0.929–0.997) were significant (p<0.05) predictors of LS 3 years later. With depressive symptoms included, the influence of walking difficulties diminished, and depressive symptoms (OR = 0.730; 95% CI = 0.607–0.877) and general self-efficacy (OR = 1.074; 95% CI = 1.010–1.142) were the only significant predictors of LS 3 years later. Conclusions. LS is reduced over a 3-year period. The study suggests that perceived walking difficulties, general self-efficacy, and depressive symptoms are important predictors of LS in people with PD.

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Mobility device use in people with Parkinson's disease: A 3-year follow-up study

Abstract: The use and perceived unmet need of MDs in people with PD increase over time. There is a need for addressing MDs at clinical follow-ups of people with PD, with continuous attention in primary health care and municipality contexts.

Cited by 17 publications

References 31 publications

Predictive Factors of Concerns about Falling in People with Parkinson’s Disease: A 3-Year Longitudinal Study

Predictive Factors of Concerns about Falling in People with Parkinson’s Disease: A 3-Year Longitudinal Study

Impact of disease stage and age at Parkinson’s onset on patients’ primary concerns: Insights for targeted management

Prediction of Life Satisfaction in People with Parkinson’s Disease

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