More than my RA: A randomized trial investigating body image improvement among women with rheumatoid arthritis using a functionality-focused intervention program.

Alleva, Jessica M.; Diedrichs, Phillippa C.; Halliwell, Emma; Peters, Madelon L.; Dures, Emma; Stuijfzand, Bobby G.; Rumsey, Nichola

doi:10.1037/ccp0000317

Cited by 87 publications

(48 citation statements)

References 32 publications

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“…Interestingly, some parents discussed the need to develop their child’s self-esteem in other areas than appearance as a mechanism for protecting them against the impact of having a condition that affects appearance. Recent studies suggest that interventions focussed on developing focus on body functionality can have positive effects in reducing distress associated with visible difference (Alleva et al, 2018). Children in the current study also reported that friends played an important role in helping them to feel accepted and this fits with studies with other populations (Feragen et al, 2010) and suggests that there are significant benefits to be gained when services can foster peer support.…”

Section: Discussionmentioning

confidence: 99%

The parent and child experience of childhood vitiligo: An interpretative phenomenological analysis

Moss

Johnston

Thompson

2020

Clin Child Psychol Psychiatry

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Vitiligo is a chronic and visible skin condition involving depigmentation with half of those with the condition developing it before the age of 20. This study sought to gain an experiential understanding of the impact of vitiligo on children and their parents. Interpretative phenomenological analysis was used, and semi-structured interviews were conducted with four child–parent dyads (eight participants). Analysis of the participants’ accounts revealed four overarching themes (Continuing Burden, The Significance of Visible Difference, Uncertainty and Unpredictability, and Coping), with 12 subthemes. There were some subtle differences between the parents and children. Both parents and child participants described the condition as posing a continuing burden with most participants reporting experiencing unwanted attention and being concerned about future relationship impact. Some parents described experiencing a sense of resignation to the condition, whereas all the children described a greater sense of acceptance. Nevertheless, acceptance seemed fragile, and parents were concerned that their children needed assistance in developing self-confidence. The findings represent the first in-depth analysis of childhood vitiligo.

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Section: Discussionmentioning

confidence: 99%

The parent and child experience of childhood vitiligo: An interpretative phenomenological analysis

Moss

Johnston

Thompson

2020

Clin Child Psychol Psychiatry

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“…The studies took place in six countries: seven in the USA (Albertson et al, 2015;Annesi, 2005;Bush, Rossy, Mintz, & Schopp, 2014;Pinto, Clark, Maruyama, & Feder, 2003;Rodgers et al, 2018;Toole & Craighead, 2016;Wolfe & Patterson, 2017), three in the UK (Alleva, Diedrichs, Halliwell, Martijn, et al, 2018;Alleva, Diedrichs, Halliwell, Peters, et al, 2018;Jankowski et al, 2017), two in Portugal (Duarte, Pinto-Gouveia, & Stubbs, 2017;Pinto-Gouveia et al, 2017), and one study in Australia (Mellor, Connaughton, McCabe, & Tatangelo, 2017), Iran (Ahmadi, Abbaspoor, Behroozy, & Malehi, 2017), and the Netherlands (Alleva, Martijn, et al, 2015). There was significant variation in sample size between the studies, ranging from 20 to 274 participants (M = 105.7).…”

Section: Study Characteristicsmentioning

confidence: 99%

“…Thus, most of the sample were classified as adults. Nonetheless, most studies (n = 12) used women-only samples (Ahmadi et al, 2017;Albertson et al, 2015;Alleva, Diedrichs, Halliwell, Martijn, et al, 2018;Alleva, Diedrichs, Halliwell, Peters, et al, 2018;Alleva, Martijn, et al, 2015;Annesi, 2005;Bush et al, 2014;Duarte et al, 2017;Pinto-Gouveia et al, 2017;Pinto et al, 2003;Toole & Craighead, 2016;Wolfe & Patterson, 2017).…”

Section: Sample Characteristicsmentioning

confidence: 99%

“…Seven studies used participants from the general population, while eight used populations with specific medical conditions or pre-disposing factors, including women with infertility (Ahmadi et al, 2017), rheumatoid arthritis (Alleva, Diedrichs, Halliwell, Peters, et al, 2018), binge eating disorder (BED) (Duarte et al, 2017;Pinto-Gouveia et al, 2017), a previous diagnosis of breast cancer (Pinto et al, 2003), and body dissatisfaction (Alleva, Martijn, et al, 2015;Toole & Craighead, 2016). Therefore, the populations included were heterogeneous and not directly comparable.…”

Section: Sample Characteristicsmentioning

confidence: 99%

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The effectiveness of interventions aiming to promote positive body image in adults: A systematic review

et al. 2019

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Highlights  Positive body image interventions improve aspects of health and well-being.  Fifteen studies, evaluating 13 interventions, were eligible for inclusion.  The two interventions for men, rated as weak, did not improve positive body image.  Strong and moderate quality interventions improved positive body image in women.  Future interventions should target multiple components of positive body image.

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“…In addition, patients with RA, especially those with aggressive disease, often experience changes in their physical appearance and function [58]. For example, women with higher degree of morning stiffness have been shown to be more concerned over their body image and have reported more sexual dissatisfaction [59].…”

Section: The Psychosocial Impact Of Non-inflammatory Pain In Women Wimentioning

confidence: 99%

Types of pain and their psychosocial impact in women with rheumatoid arthritis

Chancay

Guendsechadze

Blanco

2019

womens midlife health

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Rheumatoid arthritis (RA) is a systemic inflammatory autoimmune disease predominantly affecting middle-aged women. Very commonly, pain is a manifestation of active disease and because untreated RA can result in joint deformities, the current evaluation of pain has largely focused on inflammation. In addition, treatment has centered on the premise of reducing disease activity with the hopes of halting worsening damage, preventing future deformities, and ultimately providing pain relief for the patient. Yet research shows that all patients with RA, but women in particular, often suffer from increased mechanical pain and fibromyalgia, as well as anxiety, depression, sleep disturbances, sexual dysfunction, and disability, which add to the burden of the illness. Determining and addressing alternative pain triggers as well as understanding the psychosocial burden of RA is key in treating patients, especially in those who may not improve with traditional pharmacotherapy.

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More than my RA: A randomized trial investigating body image improvement among women with rheumatoid arthritis using a functionality-focused intervention program.

Abstract: Focusing on body functionality can improve body image and reduce depression in women with rheumatoid arthritis. The intervention technique is easy and affordable to deliver and could be a fruitful addition to extant treatments for rheumatoid arthritis. (PsycINFO Database Record

Cited by 87 publications

References 32 publications

The parent and child experience of childhood vitiligo: An interpretative phenomenological analysis

The parent and child experience of childhood vitiligo: An interpretative phenomenological analysis

The effectiveness of interventions aiming to promote positive body image in adults: A systematic review

Types of pain and their psychosocial impact in women with rheumatoid arthritis

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