Moving from fear to realization: Family engagement in tuberculosis prevention in children living in tuberculosis Sundanese households in Indonesia

Abstract

Objective Children living in tuberculosis households need protection. However, families need to be engaged to prevent tuberculosis transmission to children. This study aimed to analyze the details of “moving from fear to realization,” which is one category of a substantive theory of family engagement in tuberculosis prevention in children. Methods Fourteen family caregivers participated as key informants after their families met the criteria. The participants were recruited at a lung clinic in West Java, Indonesia and followed up at their homes. The data were gathered using in-depth interviews and analyzed following the coding procedures of the Straussian grounded theory. Findings “Moving from fear to realization” was the main category that emerged from the experiences of the Sundanese families to begin engaging in tuberculosis prevention in children living in tuberculosis households. It was composed of four sub-categories, namely, fear of tuberculosis, seeking information, following God's will, and awareness of tuberculosis transmission risks. Conclusions This study showed how a family moves from fear to the realization of tuberculosis transmission risks. Its findings are useful for nurses to provide optimum care in order to prevent tuberculosis transmission to children with household contact by providing both education and counseling for families.

Stigma, depression, quality of life, and the need for psychosocial support among people with tuberculosis in Indonesia: A multi-site cross-sectional study

“…This result conforms with the participants’ anticipation of behaviours from their community including keeping their distance from, and isolating, people with TB. Such TB-Stigma perceptions may stem from fear of being “blamed as the source of disease" in their neighbourhood [ 25 ], perceived as being disgusting or dirty [ 47 , 50 ], losing social status [ 21 ], receiving verbal abuse or being the subject of gossip, [ 50 ] or associated decreased employment opportunities and job loss [ 12 , 47 ], much of which stems from misunderstanding and/or erroneous health beliefs concerning TB [ 6 , 7 , 51 ].…”

“…Despite these stark figures and the recognition of the vital role that addressing TB-Stigma will play in eliminating TB, there is limited evidence concerning TB-Stigma and its impact in Indonesia [23]. Of the handful of qualitative studies exploring stigma among Indonesian people with TB [24][25][26], there has been negligible concomitant assessment of associated symptoms of depression, mental illness, and QoL; and little consideration of potential interventions to mitigate these psychosocial consequences of TB.…”

Socio-Demographics Factors Influencing Parental Knowledge About Childhood TB

“…Hal ini didukung oleh studi yang menyebutkan bahwa, tingkat pengetahuan seseorang mengenai TB berhubungan dengan upaya pencegahan TB dan strategi DOTS (Rahman et al, 2017;Tukatman et al, 2021). Kurangnya pengetahuan mengenai TB terutama bagi orangtua sebagai figur yang bertanggungjawab penuh atas anaknya diketahui menjadi penyebab utama penundaan diagnosis dan pengobatan TB anak (Hidayat et al, 2017;Rakhmawati et al, 2019;Saputra et al, 2020). Hal ini didukung oleh hasil studi yang menyebutkan bahwa proporsi pasien TB yang mencari pelayanan kesehatan di Indonesia masih tergolong rendah akibat kurangnya pengetahuan mengenai TB (Lolong et al, 2021).…”

Treatment of Infection as a Core Strategy to Prevent Rifampicin-Resistant/Multidrug-Resistant Tuberculosis

“…When someone is newly diagnosed with RR/MDR-TB, working with them to compassionately disclose this diagnosis to other household members is key. If done in a supportive manner—as is the case with HIV and other infectious diseases [ 14 ]—and by avoiding blaming concepts and terms (see Text Box 1 ), then the entire household can be engaged in the next stages of care for all members [ 15 ]. This shift from the traditional concept of contact tracing to one of post-exposure management may also help spur reluctant health care services into more active modes of support [ 16 ].…”