Multiple sclerosis national registry system in Iran: Validity and reliability of a minimum data set

Shahin, Sarvenaz; Eskandarieh, Sharareh; Moghadasi, Abdorreza Naser; Razazian, Nazanin; Baghbanian, Seyed Mohammad; Ashtari, Fereshteh; Bayati, Asghar; Manouchehrinia, Ali; Beiki, Omid; Mohebi, Farnam; Dezfuli, Mahdieh Mokhber; Sahraian, Mohammad Ali

doi:10.1016/j.msard.2019.06.009

Cited by 29 publications

(19 citation statements)

References 15 publications

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“…The nationwide MS registry of Iran (NMSRI) was established in 2018. The validity and reliability of the MS questionnaire had been previously confirmed ( Shahin et al, 2019 ). The study was carried out between July 2020 and March 2021.…”

Section: Methodsmentioning

confidence: 80%

Characteristics of COVID-19 in patients with multiple sclerosis

Ghadiri

Sahraian

Shayegannejad

et al. 2022

Multiple Sclerosis and Related Disorders

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Section: Methodsmentioning

confidence: 80%

Characteristics of COVID-19 in patients with multiple sclerosis

Ghadiri

Sahraian

Shayegannejad

et al. 2022

Multiple Sclerosis and Related Disorders

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“…The link to the final google form was made available in Telegram groups of Iranian MS patients for one week, from 11 September 2021 to 18 September 2021. To ensure validity, patients were asked to enter their unique National MS Registry code( Shahin et al, 2019 ) in the form. The given data about MS (type, treatment, duration, and DMT) and COVID-19 (severity, admission information) were rechecked in the registry.…”

Section: Methodsmentioning

confidence: 99%

The study of COVID-19 infection following vaccination in patients with multiple sclerosis

Ghadiri

Sahraian

Azimi

et al. 2022

Multiple Sclerosis and Related Disorders

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“…This population-based study was conducted in Tehran province of Iran based on the annual report data provided by the Iranian MS Society (IMSS) registry system from 1st April 1999 to 31st December 2018. The registration program as well as its validity and reliability has been described in the previous study [13]. Briefly, the Iranian MS Society, established in 1999, is the single registry center in Tehran and comprehensively registers baseline characteristics including patient identification, family history of MS, diagnosis, disease course, disability status, and medications.…”

Section: Methodsmentioning

confidence: 99%

Evidence of an increased prevalence of multiple sclerosis: a population-based study of Tehran registry during 1999–2018

2020

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Background: The epidemiological characteristics of multiple sclerosis (MS) have been investigated in various studies, which have revealed that the prevalence of MS varies across countries. The present study was conducted to investigate the longitudinal prevalence of MS in Tehran, Iran. Methods: The present population-based study was conducted in Tehran, the capital of Iran from 1999 to 2018 based on the annual report data provided by the Iranian MS Society (IMSS) registry system. The age-standardized and crude prevalence were estimated using population data presented by the Statistical Centre of Iran. Results: A total of 21,580 MS cases were registered and included in the analysis. Among the participant patients, 24.99% (5393) and 75.01% (16,187) of cases were male and female, respectively. The mean age of MS onset was 28.8 years (S.D: 8.7). The age-standardized prevalence (ASP) of MS increased from 73.7 (95%CI: 72.1-75.2) per 100,000 people in 2006 to 137.6 (95% CI: 135.7-139.5) per 100,000 people in 2018. The ASP of MS in 2018 was estimated to be 67.9 (95%CI: 66.0-69.8) and 207.3 (95%CI: 204.0-210.7) per 100,000 people among males and females, respectively. The age-standardized female-to-male ratio of MS ranged from 3.7 (in 2010) to 2.06 (in 2017). Conclusion: The findings of this study suggested that the prevalence of MS in Tehran province is relatively high, and the occurrence of the disease is more common in the age groups under 40 years as compared with olderaged groups. In line with reports provided for various regions of the world, the prevalence of MS was higher among women. Similarly, the findings of this study revealed that the female-to-male ratio was 2.14 in 2018.

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Multiple sclerosis national registry system in Iran: Validity and reliability of a minimum data set

Cited by 29 publications

References 15 publications

Characteristics of COVID-19 in patients with multiple sclerosis

Characteristics of COVID-19 in patients with multiple sclerosis

The study of COVID-19 infection following vaccination in patients with multiple sclerosis

Evidence of an increased prevalence of multiple sclerosis: a population-based study of Tehran registry during 1999–2018

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