My Quantified Self, my FitBit and I

Karanasiou, Argyro; Kang, Sharanjit

doi:10.14361/dcs-2016-0109

Cited by 8 publications

(1 citation statement)

References 2 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…the case of personalised medicine in the US [91]. Although there are multiple cases of users showing autonomy and "wilfully sharing data", there is limited protection to open data initiatives [92].…”

Section: Legal and Policy Issuesmentioning

confidence: 99%

Collecting, exploring and sharing personal data: Why, how and where

Estrada-Galiñanes

Wac

2020

View full text Add to dashboard Cite

New, multi-channel personal data sources (like heart rate, sleep patterns, travel patterns, or social activities) are enabled by ever increased availability of miniaturised technologies embedded within smartphones and wearables. These data sources enable personal self-management of lifestyle choices (e.g., exercise, move to a bike-friendly area) and, on a large scale, scientific discoveries to improve health and quality of life. However, there are no simple and reliable ways for individuals to securely collect, explore and share these sources. Additionally, much data is also wasted, especially when the technology provider ceases to exist, leaving the users without any opportunity to retrieve own datasets from "dead" devices or systems. Our research reveals evidence of what we term human data bleeding and offers guidance on how to address current issues by reasoning upon five core aspects, namely technological, financial, legal, institutional and cultural factors. To this end, we present preliminary specifications of an open platform for personal data storage and quality of life research. The Open Health Archive (OHA) is a platform that would support individual, community and societal needs by facilitating collecting, exploring and sharing personal health and QoL data.

show abstract

Section: Legal and Policy Issuesmentioning

confidence: 99%