Needs for Assistance and Emotional Aspects of Caregiving Reported by Aids Patient Caregivers in a Day-Care Unit in Brazil

Abstract

The advent of AIDS in families, following the chronic evolution of the illness, has produced crisis situations unknown until now. With the objective of knowing this new reality better, 20 caregivers of AIDS patients were interviewed in southeastern Brazil. The collected data were analyzed using a qualitative method. The results showed dif culties regarding caregiving, such as a lack of orientation, materials, transport, and people to share the role of caregiver, as well as emotional dif culties, such as fears from infection, revulsion, pity, and impotence in the face of death. The role of families is essential in patient assistance, due to the inability of the health system to attend to all AIDS patients. Nevertheless, these families have to receive support mainly from nurses, in order to be helped in executing an aid plan to the ill person at home. Nurses and health care

Effect of Financial Costs on Caregiving Burden of Family Caregivers of Older Adults

“…Previous research has consistently documented caregiving burden and the effects of the burden on family caregivers for older adults, including the psychological, social, and health consequences (Beeson, 2003;Chadiha, Rafferty, & Pickard, 2003;Nijboer, Tempelaar, Triemstra, van den Bos, & Sanderman, 2001;Parrish, Satariano, Freisthler, Feinberg, & Adams, 2005;Pickett-Schenk et al, 2006;Van Wijgaarden, Schene, & Koeter, 2004;Wallsten, 2000;Yajima et al, 2007). Caregivers experienced social strain if they felt frustrated and perceived a lack of caregiving assistance from other family members (Dautzenberg, Diederiks, Philipsen, & Tan, 1999;de Figueiredo & Turato, 2001). Caregiving affects family life because it reduces the caregiver's time with their family and friends (Coleman, Piles, & Poggenpoel, 1995;Parrish & Adams, 2003).…”

Defying all odds: coping with the challenges of volunteer caregiving for patients with AIDS in South Africa

“…2006, Orner 2006). For example, in a study of family caregivers in Brazil it was found that caregivers experience emotional difficulties such as fear of infection, revulsion, pity, grief and guilt from being helpless in the face of death (De Figueiredo & Turato 2001). Another study in South Africa showed that caregiving had a negative impact on the physical and mental health of family caregivers (Orner 2006).…”

A discussion of HIV/AIDS family interventions: implications for family‐focused nursing practice

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