New technologies and Amyotrophic Lateral Sclerosis – Which step forward rushed by the COVID-19 pandemic?

Pinto, Susana; Quintarelli, Stefano; Silani, Vincenzo

doi:10.1016/j.jns.2020.117081

Cited by 42 publications

(44 citation statements)

References 89 publications

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“…Pinto et al [ 86 ] summarised the emergent technologies under the COVID-19 background. Robotics is identified valuable in various areas including environment control, neurological evaluation, and neuro-rehabilitation.…”

Section: Robots In Covid-19mentioning

confidence: 99%

A literature survey of the robotic technologies during the COVID-19 pandemic

Wang

2021

Journal of Manufacturing Systems

194

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Since the late 2019, the COVID-19 pandemic has been spread all around the world. The pandemic is a critical challenge to the health and safety of the general public, the medical staff and the medical systems worldwide. It has been globally proposed to utilise robots during the pandemic, to improve the treatment of patients and leverage the load of the medical system. However, there is still a lack of detailed and systematic review of the robotic research for the pandemic, from the technologies’ perspective. Thus a thorough literature survey is conducted in this research and more than 280 publications have been reviewed, with the focus on robotics during the pandemic. The main contribution of this literature survey is to answer two research questions, i.e. 1) what the main research contributions are to combat the pandemic from the robotic technologies’ perspective, and 2) what the promising supporting technologies are needed during and after the pandemic to help and guide future robotics research. The current achievements of robotic technologies are reviewed and discussed in different categories, followed by the identification of the representative work’s technology readiness level. The future research trends and essential technologies are then highlighted, including artificial intelligence, 5 G, big data, wireless sensor network, and human-robot collaboration.

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Section: Robots In Covid-19mentioning

confidence: 99%

A literature survey of the robotic technologies during the COVID-19 pandemic

Wang

2021

Journal of Manufacturing Systems

194

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“…A third challenge is the fact that the implementation takes place amidst the COVID-19 pandemic that the world is currently facing. As a result of the pandemic, there are now new barriers for patients with ALS to receive in-clinic multidisciplinary care, in addition to the difficulties patients already face to travel to and attend in-clinic visits for example due to mobility limitations or because of the distance to the ALS center [ 3 , 32 ]. The COVID-19 pandemic has increased the sense of urgency to develop and implement e-health innovations, so patients with ALS can be monitored remotely and are able to receive the care they need even when they are not able to visit the multidisciplinary care team in person [ 32 ].…”

Section: Discussionmentioning

confidence: 99%

“…As a result of the pandemic, there are now new barriers for patients with ALS to receive in-clinic multidisciplinary care, in addition to the difficulties patients already face to travel to and attend in-clinic visits for example due to mobility limitations or because of the distance to the ALS center [ 3 , 32 ]. The COVID-19 pandemic has increased the sense of urgency to develop and implement e-health innovations, so patients with ALS can be monitored remotely and are able to receive the care they need even when they are not able to visit the multidisciplinary care team in person [ 32 ]. However, the COVID-19 pandemic has presented us with some practical challenges for the implementation of ALS Home-monitoring and Coaching, one of these being unable to conduct the focus groups with all participants being present in the same room.…”

Section: Discussionmentioning

confidence: 99%

Implementation and evaluation of an e-health innovation for personalized care for patients with amyotrophic lateral sclerosis (ALS): protocol for a participatory action research study

Dontje

Reenen²,

Visser-Meily

et al. 2021

Implement Sci Commun

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Background In the absence of a cure for amyotrophic lateral sclerosis (ALS), a progressive neurodegenerative disease, treatment consists of symptomatic management by a multidisciplinary healthcare team and is mainly aimed at optimizing patients’ quality of life. Because the course of the disease is often erratic and varies between patients, it is imperative for patients with ALS to be closely monitored. E-health innovations that can monitor disease progression remotely have great potential to tailor the care to the needs of individual patients with ALS. Therefore, the e-health innovation “ALS Home-monitoring and Coaching” was developed employing a user-centered design process and implemented at the University Medical Center Utrecht, the Netherlands in 2017. Because ALS Home-monitoring and Coaching was shown to be feasible and well received by patients and healthcare professionals at University Medical Centre Utrecht, we aim to implement this e-health innovation nationwide, starting with 10 ALS care teams in different rehabilitation settings spread across the Netherlands. Methods This research focuses on the implementation process and the user experiences with ALS Home-monitoring and Coaching of both patients and healthcare professionals. We will use a participatory action research approach, with the stakeholders involved in all stages of the implementation process. The implementation process model of Grol and Wensing was used to structure and support planning, execution and evaluation of the implementation strategy. The expected barriers and facilitators will be explored and identified in focus group settings using the Theoretical Domains Framework. After that, each team will develop their own action plan with strategies for how to resolve each barrier. The teams will include 5-10 ALS patients with whom they will test their implementation plan and provide care with ALS Home-monitoring and Coaching for approximately 3 months. Afterwards, the implementation and the user experiences will be evaluated with digital surveys based on the evaluation framework of Proctor (e.g., acceptability, adoption, appropriateness). Discussion Using implementation theories, this study will provide inside in factors influencing implementation outcomes and strategies that can be used to overcome barriers. This will enhance our understanding of how to successfully implement e-health innovations in multidisciplinary care in rehabilitation settings. Trial registration Trial NL8542 registered at Netherlands Trial Register (trialregister.nl) on 15th April 2020.

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“…Then, patients will be more engaged in communication, and with a purposeful behavior ( 110 , 111 ). In this regard, the use of new technologies for fostering engagement in patients with neurodegenerative disorders has been demonstrated ( 65 , 112 , 113 ).…”

Section: New Communication Technologies: Virtual Reality As a Communimentioning

confidence: 99%

Virtual Reality as a Technological-Aided Solution to Support Communication in Persons With Neurodegenerative Diseases and Acquired Brain Injury During COVID-19 Pandemic

Stasolla

Matamala-Gomez

Bernini³

et al. 2021

Front. Public Health

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The COVID-19 poses an ongoing threat to lives around the world and challenges the existing public health and medical service delivery. The lockdown or quarantine measures adopted to prevent the spread of COVID-19 has caused the interruption in ongoing care and access to medical care including to patients with existing neurological conditions. Besides the passivity, isolation, and withdrawal, patients with neurodegenerative diseases experience difficulties in communication due to a limited access to leisure opportunities and interaction with friends and relatives. The communication difficulties may exacerbate the burden on the caregivers. Therefore, assistive-technologies may be a useful strategy in mitigating challenges associated with remote communication. The current paper presents an overview of the use of assistive technologies using virtual reality and virtual body ownership in providing communication opportunities to isolated patients, during COVID-19, with neurological diseases and moderate-to-severe communication difficulties. We postulate that the assistive technologies-based intervention may improve social interactions in patients with neurodegenerative diseases and acquired brain injury-thereby reducing isolation and improving their quality of life and mental well-being.

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New technologies and Amyotrophic Lateral Sclerosis – Which step forward rushed by the COVID-19 pandemic?

Cited by 42 publications

References 89 publications

A literature survey of the robotic technologies during the COVID-19 pandemic

A literature survey of the robotic technologies during the COVID-19 pandemic

Implementation and evaluation of an e-health innovation for personalized care for patients with amyotrophic lateral sclerosis (ALS): protocol for a participatory action research study

Virtual Reality as a Technological-Aided Solution to Support Communication in Persons With Neurodegenerative Diseases and Acquired Brain Injury During COVID-19 Pandemic

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