Nirvana: A Qualitative Study of Posttraumatic Growth in Adolescents and Young Adults with Inflammatory Bowel Disease

Wu, Qiwei; Zhu, Pingting; Liu, Xinyi; Ji, Qiaoying; Qian, Meiyan

doi:10.3390/children9060879

Cited by 6 publications

(8 citation statements)

References 56 publications

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“…Participants seemed to have drawn on their own resources to adjust to their illness, which led to positive evolutions. In fact, similarly to previous findings [30], their adjustment process seemed to allow a post-traumatic growth [36,37]. The diagnosis of CD appeared to create a real rupture in their daily lives through the limitations and changes it imposed.…”

Section: Discussionsupporting

confidence: 79%

“…However, a specificity of our results on young adults was the identity challenges and concerns about physical transformations that our analyses revealed and that were not so prevalent in the adult population. Moreover, if all previous studies reported the negative repercussions and challenges that patients can face and, even though two studies revealed the presence of positive outcomes in IBD [17,30], the interviews that we conducted highlighted the evolutions in the adjustment to CD and more specifically the process by which French young adults evolved positively despite the challenges and how they integrated their illness with their identity.…”

Section: Discussionmentioning

confidence: 83%

“…The main developments reported are linked to a personal and a spiritual growth, a better appreciation of their life and new perspectives. Similarly, Wu et al [30] recently demonstrated post-traumatic growth in adolescents and emerging adults (15-25 years old) with IBD. Their interviews revealed the transition from negative to more positive emotions, a cognitive restructuring, a change in their philosophy and more optimistic perspectives of their future [30].…”

Section: Identity Challenges In Young Adults With Crohn's Diseasementioning

confidence: 75%

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«Digesting Crohn’s Disease»: The Journey of Young Adults since Diagnosis

Touma,

Zanni,

Blanc

et al. 2023

JCM

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Crohn’s disease affects 2.5 million people in Europe (more than 100,000 people in France) and often occurs between the ages of 15 and 30, a period marked by self-construction. However, few studies have focused on the experience of the diagnosis during this sensitive developmental stage. This study aimed to qualitatively explore the experience of Crohn’s disease in young adults since their diagnosis. Fifteen young adults (18–35 years) diagnosed with Crohn’s disease participated in a semi-directive interview. Narrative data were subjected to a thematic analysis, and thirty percent of the interviews were double-coded. The results revealed an evolution of four main themes since diagnosis: (1) course of care, (2) illness perceptions, (3) disease management and (4) self-perception. For most participants, the onset of the disease was difficult, marked by severe symptoms requiring hospitalization, numerous medical examinations and sometimes several consultations before diagnosis. This journey was more difficult when it was associated with negative relations with the medical staff, who were sometimes perceived as unsupportive. Thus, some people described this diagnostic period as an “ordeal”, while others experienced it as a “relief” from their suffering. The announcement of the diagnosis was often a “shock”, an “upheaval” or a “downfall”, followed by phases of denial associated with a desire to maintain a “normal life” and not to be defined by the disease. Despite a difficult start, most participants grew from their experience with CD, with a sense of a personal development that was made possible by self-regulation processes that enabled them to draw on their own experience and resources to adjust to their illness. By highlighting positive possibilities for evolution, this study suggests the importance of supporting the psychological resources of young adults by proposing, at an early stage, psychological support or therapies focused on acceptance and engagement.

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Section: Discussionsupporting

confidence: 79%

Section: Discussionmentioning

confidence: 83%

Section: Identity Challenges In Young Adults With Crohn's Diseasementioning

confidence: 75%

See 1 more Smart Citation

«Digesting Crohn’s Disease»: The Journey of Young Adults since Diagnosis

Touma,

Zanni,

Blanc

et al. 2023

JCM

View full text Add to dashboard Cite

show abstract

“…Together, the above research indicates that some patients with Crohn’s disease experience posttraumatic growth. However, few published studies [ 22 , 29 , 30 ] have focused on the process of posttraumatic growth in these patients. The insight from breast cancer [ 25 ] may not be applicable to the Crohn’s disease population given the difference in gender and age.…”

Section: Introductionmentioning

confidence: 99%

Reconstructing self from the illness: a constructivist grounded theory study of posttraumatic growth in patients with Crohn’s disease

Wang,

Zhang,

Zhou

2023

BMC Gastroenterol

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Background Some patients with Crohn’s disease report posttraumatic growth, which can promote reductions in anxiety and depression, and improve the patient’s quality of life. However, the process of posttraumatic growth remains unclear. The objectives of this study were to explore the social-psychological process of posttraumatic growth in patients with Crohn’s disease in the context of Chinese culture and construct an interpretive understanding based on the perspectives of patients. Methods This research adopted Charmaz’s constructivist grounded theory. Nineteen participants with Crohn’s disease were selected by purposive and theoretical sampling from three hospitals in Hangzhou, Zhejiang Province, as well as from the China Crohn’s & Colitis Foundation. In-depth interviews were conducted. Data analysis was based on initial, focused and theoretical coding strategies, and methods such as constant comparison and memo writing were adopted. The Consolidated Criteria for Reporting Qualitative Research, a 32-item checklist for interviews and focus groups, was utilised. Results An interpretive understanding of posttraumatic growth in patients with Crohn’s disease was constructed. The core category was “reconstructing self from the illness”, which included the following four categories: “suffering from the illness”, “accepting the illness”, “dancing with the illness” and “enriching life beyond the illness”. However, not every patient reached the last phase. Before patients enter the next stage, they might begin a new cycle by experiencing new suffering or discovering new unacceptable facts about the illness. Conclusions This interpretive understanding reveals a growth process centred on “reconstructing self from the illness”. These findings provide knowledge on the process of posttraumatic growth in patients with Crohn’s disease within the wider sociocultural context.

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“…These ndings provide knowledge on the process of posttraumatic growth in patients with Crohn's disease within the wider sociocultural context. However, few published studies [19,24,25] have focused on the process of posttraumatic growth in these patients. Therefore, the objective of this…”

mentioning

confidence: 99%

Reconstructing self from the illness: a constructivist grounded theory study of posttraumatic growth in patients with Crohn’s disease

Wang

Zhang

Zhou

2023

Preprint

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Background Some patients with Crohn’s disease report posttraumatic growth, which can promote reductions in anxiety and depression, and improve the patients’ quality of life. However, the process of posttraumatic growth remains unclear. The objectives of this study were to explore the social-psychological process of posttraumatic growth in patients with Crohn’s disease in the context of Chinese culture and construct an interpretive understanding based on the perspectives of patients.Methods This research adopted Charmaz's constructivist grounded theory. Nineteen participants with Crohn’s disease were selected by purposive and theoretical sampling from three hospitals in Hangzhou, Zhejiang Province, as well as from the China Crohn’s & Colitis Foundation. In-depth interviews were conducted. Data analysis was based on initial, focused and theoretical coding strategies, and methods such as constant comparison and memo writing were adopted. COREQ reporting guidelines were utilised.Results An interpretive understanding of posttraumatic growth in patients with Crohn’s disease was constructed. The core category was "reconstructing self from the illness", which included the following four categories: "suffering from the illness", "accepting the illness", "dancing with the illness" and "enriching life beyond the illness". However, not every patient reached the last phase. Before patients enter the next stage, they might begin a new cycle by experiencing new suffering or discovering new unacceptable facts about the illness.Conclusions This interpretive understanding reveals a growth process centred on "reconstructing self from the illness". These findings provide knowledge on the process of posttraumatic growth in patients with Crohn’s disease within the wider sociocultural context.

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Nirvana: A Qualitative Study of Posttraumatic Growth in Adolescents and Young Adults with Inflammatory Bowel Disease

Cited by 6 publications

References 56 publications

«Digesting Crohn’s Disease»: The Journey of Young Adults since Diagnosis

«Digesting Crohn’s Disease»: The Journey of Young Adults since Diagnosis

Reconstructing self from the illness: a constructivist grounded theory study of posttraumatic growth in patients with Crohn’s disease

Reconstructing self from the illness: a constructivist grounded theory study of posttraumatic growth in patients with Crohn’s disease

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