Our Year With the Glass: Expectations, Letdowns and Ethical Dilemmas of Technology Trials With Vulnerable People

Vines, John; McNaney, Róisín; Holden, Amey; Poliakov, Ivan; Wright, Peter; Olivier, Patrick

doi:10.1093/iwc/iww017

Cited by 40 publications

(26 citation statements)

References 46 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This positivity was a component of their success using the system, yet there is no reason to doubt that other sister-survivors in the past also started out positively. Equally critical is that the sister-survivors had limited experiences of actually using computers, a situation that can lead to rapid disillusion and self-deprecation [79].…”

Section: Challenges Using Computersmentioning

confidence: 99%

Crafting, Communality, and Computing: Building on Existing Strengths To Support a Vulnerable Population

Gautam

Tatar

Harrison

2020

Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems

View full text Add to dashboard Cite

In Nepal, sex-trafficking survivors and the organizations that support them have limited resources to assist the survivors in their on-going journey towards reintegration. We take an asset-based approach wherein we identify and build on the strengths possessed by such groups. In this work, we present reflections from introducing a voice-annotated web application to a group of survivors. The web application tapped into and built upon two elements of pre-existing strengths possessed by the survivors -the social bond between them and knowledge of crafting as taught to them by the organization. Our findings provide insight into the array of factors influencing how the survivors act in relation to one another as they created novel use practices and adapted the technology. Experience with the application seemed to open knowledge of computing as a potential source of strength. Finally, we articulate three design desiderata that could help promote communal spaces: make activity perceptible to the group, create appropriable steps, and build in fun choices.

show abstract

Section: Challenges Using Computersmentioning

confidence: 99%

Crafting, Communality, and Computing: Building on Existing Strengths To Support a Vulnerable Population

Gautam

Tatar

Harrison

2020

Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems

View full text Add to dashboard Cite

show abstract

“…• Published articles from attendees and organizers [20][23] [28] • A special issue in Interacting with Computers [15]. This grew out of the CSCW workshop on participatory design and ethics [2].…”

Section: Outcomes From Previous Workhopsmentioning

confidence: 99%

“…benefits an intervention may have on their lives [20] or because they receive free goods as in-kind compensation for participation [13]. Furthermore, disclosure is significantly limited when systems under evaluation come to be used by nonparticipants, a common situation when evaluating technologies "in the wild".…”

Section: Outcomes From Previous Workhopsmentioning

confidence: 99%

“…For instance, we have worked with: socially isolated older adults [25][27], people with chronic and complex conditions [20], people with low levels of literacy [14], refugee communities [16], and women experiencing significant mental health issues [18], among others. Projects conducted with participant groups such as these can raise new and complex ethical concerns for HCI researchers.…”

Section: Introductionmentioning

confidence: 99%

“…In HCI, however, we have the added complexity of often designing with our participants or introducing new technologies into their lives. This can create a need to carefully manage vulnerable participants' misunderstandings or inflated expectations about technology, as well as ensuring participants are well supported when the technology does not work as expected [20][25] [27]. The Ethical Encounters in HCI workshops (see side box summaries) are motivated by our experiences conducting research in these sensitive settings.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Ethical Encounters in HCI

Waycott

Munteanu

Davis

et al. 2017

Proceedings of the 2017 CHI Conference Extended Abstracts on Human Factors in Computing Systems

Self Cite

View full text Add to dashboard Cite

This workshop builds on the success of prior workshops that brought together HCI researchers to share stories about ethical challenges faced when conducting research in sensitive settings. There is growing recognition that reflective and empathetic approaches are needed to conduct ethical research in settings involving people who might be considered vulnerable or marginalized. At our previous workshops, researchers discussed personal experiences and described the complex challenges they have faced in research as diverse as designing information systems for families of children in palliative care [6] to analyzing social media posts about mental health [1]. In this follow-up workshop we aim to extend opportunities for knowledge-sharing, build on the lessons learned, and generate a range of resources to help HCI researchers manage complex ethical issues when working in sensitive settings.

show abstract

P5 eHealth: An Agenda for the Health Technologies of the Future

Pravettoni¹,

Triberti²

2020

View full text Add to dashboard Cite

Our Year With the Glass: Expectations, Letdowns and Ethical Dilemmas of Technology Trials With Vulnerable People

Cited by 40 publications

References 46 publications

Crafting, Communality, and Computing: Building on Existing Strengths To Support a Vulnerable Population

Crafting, Communality, and Computing: Building on Existing Strengths To Support a Vulnerable Population

Ethical Encounters in HCI

P5 eHealth: An Agenda for the Health Technologies of the Future

Contact Info

Product

Resources

About