Palliative care case management in primary care settings: A nationwide survey

Plas, A.G.M. van der; Deliens, Luc; Watering, Marlies van de; Jansen, Wim J J; Vissers, Kris

doi:10.1016/j.ijnurstu.2013.03.002

Cited by 13 publications

(19 citation statements)

References 28 publications

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“…Although an exact definition of case management is still under discussion, it should consist of anticipation of the care needed, and coordination of the multidisciplinary care process. Moreover it should be easily accessible, and include home visits, end-of-life planning, organization of respite care, and bereavement support [12]. Support by a PPCT can possibly result in fewer hospital admissions [10, 11], increased satisfaction with care [2, 5, 9, 13], better symptom management and quality of life [2, 8–10], and it will allow more patients to die at the preferred place [3, 6, 7].…”

Section: Introductionmentioning

confidence: 99%

A prospective study on the characteristics and subjects of pediatric palliative care case management provided by a hospital based palliative care team

et al. 2017

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BackgroundCase management is a subject of interest within pediatric palliative care. Detailed descriptions of the content of this type of case management are lacking. We aim to describe the contents of care provided, utilization of different disciplines, and times of usage of a pediatric palliative care case management program compared for patients with malignant disease (MD) and non-malignant disease (NMD).MethodsA three-month prospective study, with questionnaires filled in by members of a pediatric palliative care team (PPCT) for each contact with parents.ResultsFour hundred fifty-five contacts took place with parents of 70 patients (27MD, 43NMD). Sixty-two percent of all contacts were with the specialized nurse. The child life specialists, psychologist and social worker were also regularly consulted, the chaplain was not consulted. Ninety-five percent of all contacts took place between 8 am and 6 pm during weekdays, a limited number between 6 pm and 9 pm. Twenty-five percent of all contacts were proactively initiated by the PPCT, 25 % were initiated by parents. In these care characteristics, no differences were seen for MD and NMD patients. Psychosocial topics were addressed most frequently. MD patients consulted the PPCT more often about school and NMD patients about socio-economic issues.ConclusionsAll different disciplines of the PPCT were regularly consulted, except for the chaplain. With an easy accessible team with a highly pro-active approach, availability from 8 am to 9 pm seems sufficient to accommodate patient’s and parent’s needs. More anticipation seems required for socio-economic topics. This insight in pediatric palliative case management can provide guidance in the development of a new PPCT.

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Section: Introductionmentioning

confidence: 99%

A prospective study on the characteristics and subjects of pediatric palliative care case management provided by a hospital based palliative care team

et al. 2017

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“…The clinical role of ABCCN has paid special attention to psychological considerations, healthcare education and coaching for patients and families and has focused on managing symptoms, pain and anxiety. Likewise, the roles of case workers have also been established previously [14, 19, 23, 35, 36], and this consensus document recommends that the ABCCN takes logistical measures to minimise the psychosocial impact on patients and their loved ones, such as moving up appointments, fostering coordination of appointments in a single visit and shortening waiting times.…”

Section: Discussionmentioning

confidence: 99%

Advanced breast cancer clinical nursing curriculum: review and recommendations

et al. 2016

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PurposeThe needs and concerns of patients with advanced breast cancer are changing at every phase of the care intervention. Management and coordination of hospital resources and services are also steadily evolving. The objective of the present expert report is to define a new oncology nursing role specialising in advanced breast cancer, to help guide patients throughout the whole healthcare itinerary.MethodsA group of eight experts in oncology nursing and medical oncology defined the content index of the curriculum document. A systematic review of bibliography was carried out, and the relevant contents were extracted. Based on these contents and the participants’ experience, recommendations were formulated and validated through a Delphi questionnaire and a participative meeting.ResultsThe advanced breast cancer clinical nurse (ABCCN) should develop a clinical, psychosocial role focused on coordinating patients in the healthcare network. The nurse would be in charge of evaluating and supervising the care administered and the healthcare resources used. The ABCCN should be aware and participate in the protocols and available resources, be able to solve conflicts, deal with burn-out signs and have clinical, coaching and team-working abilities. The proposed curriculum provides a specific process for the care of patients, as well as an implementation process.ConclusionsThe ABCCN’s role is crucial to assume the best care and the optimisation of available resources. This review and consensus document provides the required tools for the implementation in hospitals.

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“…Literatura navaja, da je paliativna oskrba povezana s številnimi zapletenimi situacijami, ko je potrebno lajšati bolečine, zaradi nastalih zapletov premeščati bolnike z ene lokacije na drugo in hkrati tolažiti družino (Pautex, et al, 2013;Van der Plas, et al, 2013). Svetovna zdravstvena organizacija (World Health Organization, 2004) je paliativno oskrbo definirala kot pristop za izboljšanje kakovosti življenja bolnika in njegove družine, ki se spopada z neozdravljivo boleznijo, in sicer v obliki preprečevanja in lajšanja trpljenja na podlagi zgodnjega prepoznavanja in ocenjevanja bolečine, načrtovanja terapije za obravnavo bolečine in drugih fizičnih, psihosocialnih in spiritualnih težav.…”

Section: Uvodunclassified

“…Pomembno je, da se paliativna oskrba osredotoča na posledice neozdravljive bolezni in ne na specifično zdravljenje osnovne bolezni. Organizirana paliativna oskrba je velik problem tudi v tujini, saj so le redki bolniki deležni ustrezne oskrbe, ostali pa so zdravljeni v okviru primarnega nivoja zdravstvene dejavnosti s strani zdravnika družinske medicine in patronažne medicinske sestre (van der Plas, et al, 2013;Hess, et al, 2014).…”

Section: Razpravaunclassified

Samozaupanje medicinskih sester in zdravnikov pri praktičnem izvajanju paliativne oskrbe

Kamnik¹,

Pajnkihar²,

Habjanič³

2014

Obzor Zdrav Neg

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Uvod: Zdravstveni delavci so v paliativni oskrbi soočeni s številnimi zapletenimi in neprijetnimi situacijami, ko je potrebno bolnikom lajšati bolečine, jim na različne načine pomagati in hkrati tolažiti družino. Namen raziskave je bil ugotoviti, kako zdravstveni delavci ocenjujejo svoje znanje in stopnjo samozaupanja pri izvajanju paliativne oskrbe. Metode: Izvedena je bila neeksperimentalna kvantitativna raziskava, v katero so bili vključeni zdravstveni delavci primarnega in sekundarnega nivoja zdravstvene dejavnosti Koroške regije (n = 100). Vzorčenje je bilo namensko nenaključno. S strukturiranim vprašalnikom pridobljeni podatki so bili statistično analizirani s programom SPSS ver. 20.0. Sklopa vprašanj, ki sta se nanašala na izvajanje paliativne oskrbe, sta pokazala dobro mersko zanesljivost instrumenta (Cronbach alfa 0,781 in 0,914). Rezultati: Medicinske sestre in zdravniki so znanje in izkušnje v paliativni oskrbi v največji meri pridobivali v klinični praksi (50 %), svoje znanje so pretežno ocenili le kot zadovoljivo (53 %). Lasten odziv na zdravstvene težave oziroma na svetovanje in komunikacijo z bolnikom so medicinske sestre in zdravniki ocenili s povprečno oceno 2,7 do 3,2, kar pomeni, da pretežno zmorejo situacije pri praktičnem izvajanju paliativne oskrbe rešiti samostojno. Medicinske sestre in zdravniki na primarnem nivoju zdravstvene dejavnosti so navedli večjo stopnjo samozaupanja glede svetovanja o možnostih izbire kraja paliativne oskrbe. Diskusija in zaključek: Ugotovitve kažejo, da medicinske sestre in zdravniki vprašanj bolnikov o procesu umiranja in njihovih želja niso ocenili kot posebej neprijetnih. Bodoče raziskave bi lahko nadaljevale v tej smeri in ugotavljale, katere situacije zdravstvenemu osebju predstavljajo največje breme in kako se z njimi soočiti.

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Palliative care case management in primary care settings: A nationwide survey

Cited by 13 publications

References 28 publications

A prospective study on the characteristics and subjects of pediatric palliative care case management provided by a hospital based palliative care team

A prospective study on the characteristics and subjects of pediatric palliative care case management provided by a hospital based palliative care team

Advanced breast cancer clinical nursing curriculum: review and recommendations

Samozaupanje medicinskih sester in zdravnikov pri praktičnem izvajanju paliativne oskrbe

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