Objective: The aim of the current exploratory study was to investigate the impact for care home staff of working with people with dementia at the end of life and to explore how they cope with this aspect of their work. With UK policy encouraging death in the place of residence, rather than hospital, more people with dementia are dying in care homes.Method: A qualitative approach was employed; 20 care home staff working in five English care homes were interviewed. Thematic Analysis was used to analyse the data.Results: Care home staff found the external demands on them and difficulties associated with interacting with people with dementia sometimes challenging, stressful and anxietyprovoking, particularly as residents approached end of life. Emotional aspects of caring for dying residents were sometimes heightened by close attachments with residents and their families. Staff were able to recognise these unmet needs and identified a need for further training and emotional support to manage these stressors.Conclusions: This study revealed rich and complex understanding of the practice dimensions of caring for people with dementia at the end of life and the impact these have on staff. There is a need to develop effective psychosocial interventions that focus on emotional support for care home staff. There will be challenges in providing this in employment settings that are generally low paid, low status, have high turnover and are reliant on temporary or migrant staff, where training is not rewarded, mandatory or culturally valued.
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IntroductionCare homes are increasingly caring for frail older people at the end of their lives, and older people with cognitive impairment or dementia are more likely to die in care homes than in other settings (Moriarty, Rutter, Ross & Holmes, 2012; National End-of-life Care Intelligence Network, 2013). In recent years in England, there are increasing ambitions to avoid premature and unnecessary moves to hospital in the last weeks of life (Murtagh et al. 2012).Current government policy encourages people to 'die in place' (Department of Health, 2013; Leadership Alliance for the Care of Dying People, 2014); consistent with wishes of many families (Bayer, 2006). Research has focused on ways in which care home staff make end-oflife care decisions (e.g. Goodman et al., 2010; Moriarty, Rutter, Ross & Holmes, 2012).However, there is a need to understand the impacts on care home staff of caring for dying residents who have dementia in order to better support these workers.In England, care home staff are among the lowest paid employees (Resolution Foundation, 2015). Staff working in care homes are often under pressure in their work and experience both psychological and physical strain, including injuries and depression (Walsh, 2006;Zimmerman et al., 2005). There is high staff turnover in some care homes (Franklin, 2014) and staff working with people with dementia are less likely to be trained than other care workers (Hussein and Manthorpe 2011).Furthermore, staff working with...