Parent and Provider Perspectives on a Developmental Screening and Therapy Referral Program for Children 0-3 Years With Sickle Cell Disease

Abstract

Date Presented 04/01/2022 Around half of children with sickle cell disease (SCD) have a developmental delay by the age of 3, but developmental screening and intervention are not part of standard care. Through interviews with caregivers and early intervention providers, we identified three key themes to support successful programing: acceptability, recognition of systemic disparities, and buy-in. Findings will support the implementation of a screening program to enhance the health and well-being of children with SCD. Primary Author and Speaker: Catherine R. Hoyt Contributing Authors: Jeni Erickson, Lingzi Luo, Ashley Housten, Allison King