2015
DOI: 10.1016/j.pedn.2014.09.011
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Parent Experiences Raising Young People with Type 1 Diabetes and Celiac Disease

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Cited by 25 publications
(40 citation statements)
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“…The fear of developing other diseases, especially cancer, is also present due to the intake of gluten before the participant was aware he or she suff ered from celiac disease. A recent study corroborates the results found for this category in relation to the diffi culties parents have in managing the complications of both diseases (14) .…”
Section: Diffi Culty Receiving Another Diagnosis Of a Chronic Diseasesupporting
confidence: 85%
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“…The fear of developing other diseases, especially cancer, is also present due to the intake of gluten before the participant was aware he or she suff ered from celiac disease. A recent study corroborates the results found for this category in relation to the diffi culties parents have in managing the complications of both diseases (14) .…”
Section: Diffi Culty Receiving Another Diagnosis Of a Chronic Diseasesupporting
confidence: 85%
“…The only study we found on the experience of parents with children who suff ered from both diseases corroborates the fi ndings of this study in that it reports that the experience of adolescents with CD was more diffi cult due to the gluten-free diet. The parents perceived that their children felt more isolated and suff ered from bullying and jokes due to their diet after the CD diagnosis (14) .…”
Section: It Was Really Tough At Fi Rst I Used To Say That It Was Alrmentioning
confidence: 99%
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“…However, the clinical significance of decreases in pain ratings combined with significant decreases in child and caregiver distress with respect to immunization highlights the utility of the intervention protocol. • A descriptive, qualitative study was conducted to explore parent experiences (N = 30 parents from 26 families) raising children or adolescents with dual diagnosis of type 1 diabetes (T1D) and celiac disease (CD) (Erickson et al, 2015). Thematic analysis revealed six themes focused on parental concerns, including: (a) long/short term health complications of T1D; (b) challenges of managing both diseases every day; (c) financial concerns associated with managing both diseases; (d) child's or adolescent's emotional and mental health; (e) experiences with healthcare providers; and (f) experiences with people outside of the family or people at school.…”
mentioning
confidence: 99%