Parental anxiety before invasive cardiac procedure in children with congenital heart disease: Contributing factors and consequences

Abstract

Objective Medical information provided to parents of a child with a congenital heart disease can induce major stress. Visual analog scales have been validated to assess anxiety in the adult population. The aim of this study was to analyze parental anxiety using a visual analog scale and to explore the influencing factors. Design This prospective cross‐sectional study. Setting Tertiary care regional referral center for congenital heart disease of Marseille—La Timone university hospital. Patients Parents of children with a congenital heart disease, as defined by the ACC‐CHD classification, referred for cardiac surgery or interventional cardiac catheterization, were offered to participate. Intervention and outcome measure The parental level of anxiety was assessed using a visual analog scale (0‐10) before intervention and after complete information given by the cardiologist, the surgeon or the anesthetists. Results Seventy‐three children [7 days‐13 years], represented by 49 fathers and 71 mothers, were included in the study. A total of 42 children required cardiac surgery and 31 children underwent interventional cardiac catheterization. The mean score of maternal anxiety was significantly higher than the paternal anxiety (8.2 vs 6.3, P < .01). A high level of maternal anxiety (visual analog scale > 8) was associated with paternal anxiety (P = .02), the child's comorbidity (P = .03), the distance between home and referral center (P = .04), and the level of risk adjustment for congenital heart surgery (P = .01). In multivariate analysis, maternal anxiety was associated with paternal anxiety (OR = 4.9; 95% confidence interval [1.1‐19.2]), and the level of risk adjustment for congenital heart surgery (OR = 11.4; 95% confidence interval [1.2‐116.2]). No significant association was found between parental anxiety and prenatal diagnosis. Conclusion This study highlighted several factors associated with the parental anxiety. Identifying the parents at risk of high stress can be useful to set up psychological support during hospitalization.

Health-related quality of life in children with congenital heart disease aged 5 to 7 years: a multicentre controlled cross-sectional study

“…In general, parents of children with chronic health diseases are prone to developp stress and anxiety, undermining the well-being or overall stability of their family, as well as their ability to cope (44)(45)(46). In paediatric cardiology, factors contributing to parental stress may involve a past trauma, as after prenatal diagnosis, an anguish of death during cardiac surgery, and an inability to empower their child (47). Therefore, it is necessary to integrate psychosocial support dedicated to such parents (17,48) and develop multidisciplinary family-centred psychosocial care for patients with CHD, as recommendated by the AEPC psychosocial working group (49).…”

Electric Toy Car to Reduce Anxiety Before a Cardiac Catherization: Randomized Controlled Trial

“…Thus, the toy car seems to have had a distractive effect on the parents also. Alleviating parental anxiety is important, as anxiety in the parents increases stress in the child [7,9,22]. Therapeutic education and adapted parental information before heart surgery, for example, has been proven effective in decreasing parental anxiety [23].…”

Health-related quality of life in children with congenital heart disease aged 5 to 7 years: a multicentre controlled cross-sectional study

“…In general, parents of children with chronic health diseases are prone to developp stress and anxiety, undermining the well-being or overall stability of their family, as well as their ability to cope (44)(45)(46). In paediatric cardiology, factors contributing to parental stress may involve a past trauma, as after prenatal diagnosis, an anguish of death during cardiac surgery, and an inability to empower their child (47).…”